Central Pontine and extra pontine myelinolysis
I’m having a dickens of a time with my central nervous system – brain fog, etc. so in 2009 went thru 3-day battery of testing for alzheimer’s. Nope, still smarty-pants and medically fit however brain MRI radiologist report indicated I have CPM & see neurologist asap. Neurologist said don’t worry about it & said increase salt intake. August 2016 went to ER as I collapsed to the left while sitting in restaurant. ER doctor said I had nystagmus and I had another MRI, the very same radiologist said in addition CPM I now have extra pontine spots on the brain. Back to a different neurologist at a major PPO here in North Dakota. They refused to look at the disc I hand-carried nor the radiologist’s report because they did not order MRI. All they did was order EEG (negative) & put me on some drug that didn’t work. Eyes going nuts, falling down/breaking bones (3 so far), can’t swallow liquids without choking. Anyways the 3rd & last neurologist (still won’t look at last MRI, nor report) indicated I have ataxia. To make a single point cane with triangular base my new BFF and ordered physical therapy for the nystagmus, still having problems. I’m sorry for this long post. I know I’ll eventually find out what the heck is going on as I am going to Mayo this August.