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826 total results
Comments (757)
Ibrutinib seems to be keeping my lab levels in check and will continue with it instead...
https://connect.mayoclinic.org/comment/663091/
to be tested next week for possible amyloidosis
I am having amyloidosis on skin..Doctor told not to scrub but i don't even touch it...
https://connect.mayoclinic.org/comment/244391/
I am having amyloidosis on skin..Doctor
@reagan1mc Hi, Reagan. First, Welcome. 2nd, You have bought a tough one. MCCD is one of...
https://connect.mayoclinic.org/comment/170421/
matter of what is MCCD and what is Amyloidosis ... of MCCD as the beginning stages of Amyloidosis ... Morey Gertz, of Mayo, Amyloidosis Diagnosis ... actually calls MCCD a mutation of Amyloidosis
@kellye5 Your statement about more than one doctor finding nothing wrong hit a note with me....
https://connect.mayoclinic.org/comment/107462/
story free at HTTPS://bit.Ly/1w7j4j8 "Amyloidosis ... I have a form of Amyloidosis. ... "What the doctor should know about Amyloidosis ... Anyway, what you describe fits Amyloidosis ... subject is from Mayo's Morey Gertz, MD, "Amyoidosis
Welcome to Connect, @dcp45. I'd like to introduce you to @azjulie whose husband has Waldenstrom's Macroglobulinemia....
https://connect.mayoclinic.org/comment/70600/
- Waldenstroms and amyloidosis http
I was diagnosed with AL Amyloidosis nearly 2 years ago. It was randomly found during a...
https://connect.mayoclinic.org/comment/1114762/
I was diagnosed with AL Amyloidosis ... Mayo is a leader in the treatment of amyloidosis
The ONLY symptom I had that brought me to a doctor was that I had the...
https://connect.mayoclinic.org/comment/88314/
symptoms are for sure related to AL Amyloidosis ... I was diagnosed with AL Amyloidosis
@12061948 Actually not particularly. Mine is related to my form of Light Chain Amyloidosis, probably Gelsolin...
https://connect.mayoclinic.org/comment/163065/
related to my form of Light Chain Amyloidosis
Lori, Thank you for the information and for your inquiry s to how my husband is...
https://connect.mayoclinic.org/comment/724274/
are the two main
symptoms Cardiac amyloidosis
I have brutal neuropathy from Amyloidosis and I am also waiting to see a Neurologist for...
https://connect.mayoclinic.org/comment/310955/
I have brutal neuropathy from Amyloidosis
@the3shus Hi! My cardio thought for some time that I had Prinzmetal, but seems to have...
https://connect.mayoclinic.org/comment/137096/
I think it was just a stage my Amyloidosis
Welcome to Mayo Connect. I was diagnosed with WM in 2014. I am an IWMF (International...
https://connect.mayoclinic.org/comment/624405/
WM let alone a second diagnosis of Amyloidosis ... specialists who also specialize in Amyloidosis
Sorry for what you both have been going through, it is stressful and frustrating. I hear...
https://connect.mayoclinic.org/comment/874734/
special tests diagnosed him with CARDIAC AMYLOIDOSIS ... marrow biopsy to confirm what type of Amyloidosis ... Amyloidosis is overlooked and it can
I know I say this a lot on these groups. "Stiff heart." and other such issues...
https://connect.mayoclinic.org/comment/102948/
, mine is apparently part of my AL Amyloidosis ... , Or another sort of Amyloidosis, and ... have found many MDs who will say "All amyloidosis
Hi @pysullivan, welcome to Connect. Here a few previous discussions in the community about Waldenstrom macroglobulinemia...
https://connect.mayoclinic.org/comment/256246/
lymphoma (NHL):
- Waldenstroms and amyloidosis ... connect.mayoclinic.org/discussion/waldenstroms-and-amyloidosis
@edda Just a thought about this. Sounds to me like some sort of slowly progressing disease....
https://connect.mayoclinic.org/comment/72867/
I have LiteChain Amyloidosis, and it ... Amyloidosis starts with a single atom
@aman_23_23 Sad to say, you are experiencing what most of us with an rare autoimmune disease...
https://connect.mayoclinic.org/comment/101817/
First, you probably have some for of Amyloidosis ... Karl" Mine is hereditary Gelsolin Amyloidosis ... Hospital of Helsinki, Finland, Boston Amyloidosis
I was diagnosed with IgG MGUS in 2021 and currently have blood tests for CBC PLT...
https://connect.mayoclinic.org/comment/770884/
had abdominal fat pad to rule out Amyloidosis
I have Light Chain Amyloidosis and the nature of this rare form is it attacks your...
https://connect.mayoclinic.org/comment/1293926/
I have Light Chain Amyloidosis and the
At the end of the presentation you mentioned there are possible toxicity issues with long term...
https://connect.mayoclinic.org/comment/381188/
My concern is that for relapsed AL Amyloidosis
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