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972 total results
Comments (925)
Have you seen this discussion started by @julbpat? Wondering if it might be helpful to learn...
Wondering if it might be helpful to ... learn what she has shared. -- Tegretol ... for Length-Dependent Small Fiber Neuropathy ... discussion/tegretol-for-length-dependent-small-fiber-neuropathy
Support Group: Neuropathy
Posted: Oct 23, 2024
I'm so sorry you've been going through this. Your symptoms and experience mirror mine in so...
fiber neuropathy. ... Fiber Neuropathy Center (I live in ... Here are some helpful links. ... What Is Small Fiber Neuropathy? ... my.clevelandclinic.org/health/diseases/17479-small-fiber-neuropathy
Support Group: Neuropathy
Posted: Oct 20, 2024
I think this was mentioned already, but small fiber neuropathy presents with a normal EMG because...
fiber neuropathy presents with a normal ... Small fiber nerves are responsible for ... fiber neuropathy. ... fiber neuropathy because the wait for ... fiber neuropathy, but unfortunately
Support Group: Neuropathy
Posted: Sep 4, 2024
@tjjordan1 It is not clear what you were actually diagnosed with and why you would be...
@tjjordan1 It is not clear what you ... What results of tests do you have and ... doctor who doesn’t seem to care to help ... degenerative disc disease, osteoarthritis, small ... fiber neuropathy, etc.
Support Group: Chronic Pain
Posted: Sep 1, 2024
@dstone501957 P.S. My autocorrect changed my MRI to MEI. I have had head, cervical, thoracic, lumbar...
Acetyl l carnitine supplements for small ... fiber neuropathy. ... SFN and peripheral neuropathy seems ... is causing what anymore. ... care of myself, treat symptoms to help
Support Group: Autoimmune Diseases
Posted: Jun 26, 2024
@dstone501957 Have you had your thyroid TSH, T3, T4 and TPO levels checked? I have Hashimoto’s...
I also have idiopathic small fiber neuropathy ... there unfortunately is no cure for small ... fiber neuropathy. ... Doesn’t really help much and has long ... spine and head to look more closely at what
Support Group: Autoimmune Diseases
Posted: Jun 26, 2024
I’m sorry this is happening to you. I thought I’d share my experience with FGFR3 if...
share my experience with FGFR3 if it helps ... fiber neuropathy? ... I have small fiber neuropathy and also ... and some associate it with small fiber ... Other treatments for FGFR3+ small fiber
Support Group: Autoimmune Diseases
Posted: Jun 25, 2024
Hello @lym, I also have small fiber PN but I only have numbness and some tingling,...
Hello @lym, I also have small fiber ... remission, I try to be conscious of what ... suggestion in the following discussion: -- Small ... Fiber Neuropathy: What helps? ... /connect.mayoclinic.org/discussion/small-fiber-neuropathy
Support Group: Neuropathy
Posted: Jun 13, 2024
@annie1 I have lumbar stenosis and DDD. I have been getting injections to delay surgery as...
spine surgeon say that surgery would help ... blood flow, nutritional deficiencies, small ... fiber neuropathy, etc. could be linked ... You may want to look into what can be ... Are you doing physical therapy to help
Support Group: Spine Health
Posted: Jun 12, 2024
@snowmass I can totally relate. I am a 54 year old single parent of a 14...
medication bandaids on when they don’t know what ... My neurologist tested me for small fiber ... neuropathy with the punch biopsy in ... Some have neuropathy from chemo treatments ... What I am doing now for my SFN, spinal
Support Group: Neuropathy
Posted: Jun 8, 2024
Hello @rfsau140, Welcome to Connect. There are a lot of causes for neuropathy. Without testing and...
specialist, a GP doc can tell you what ... neurologist diagnosed me with idiopathic small ... fiber peripheral neuropathy and sadly ... 't have any better answers for what ... , your symptoms and what treatments
Support Group: Neuropathy
Posted: Jun 2, 2024
Welcome @housewrk, You are not alone wanting to get a better diagnosis and wanting to know...
I was diagnosed with idiopathic small ... fiber peripheral neuropathy at Mayo ... everyone of on my primary care docs knew what ... answer about treatments available to help ... with the numbness which was what first
Support Group: Neuropathy
Posted: May 11, 2024
Until I received the biopsy results, I assume I had Peripheral neuropathy basically because I lacked...
and large fiber neuropathy. ... fiber neuropathy. ... Per my neurologist, large fiber neuropathy ... Small fiber neuropathy affects smaller ... themselves, it is worth time to sharing what
Support Group: Neuropathy
Posted: Apr 28, 2024
Here is a link I found a few days ago. It is easy to understand and...
think sharing the graphics showing what ... you are experiencing might help your ... https://suzycohen.com/articles/small-fiber-neuropathy-its-different
Support Group: Neuropathy
Posted: Mar 24, 2024
Good evening, @moakes. I want to follow up with you on the subject of MFR therapy....
Here is a helpful link to explain what ... treatment-options-that-have-worked-for-small-fiber-neuropathy
Support Group: Neuropathy
Posted: Mar 17, 2024
To be truthful I am surprised also. Dr. Anne Oaklander and her daughter been researching neuropathy...
What have I noticed I am 61 and have ... There is more help for diabetics then ... axonal sensorimotor polyneuropathy, small ... fiber neuropathy along with dysautonomic ... neuropathy.
Support Group: Neuropathy
Posted: Mar 16, 2024
Hi, Nemo1. 🙂 Thank you for your kind words. My faith is what is giving me...
My faith is what is giving me strength ... , small fiber neuropathy, radiculopathy ... never diagnosed with diabetes) which helped ... tied to my central nervous system/neuropathy ... addition to my spinal cord) and autonomic neuropathy
Well. Ha. Just lost about three paragraphs of an answer to you! Switching back and forth...
One will show what muscle function is ... of the leg, under the heel, and a small ... show where the sensory damage is in small ... fiber neuropathy. ... I am happy to help explain, find research
Support Group: Neuropathy
Posted: Feb 11, 2024
Thank you for your reply, Tricia! I don't mind long posts at all. And it's great...
showed that I have the beginnings of small ... fiber neuropathy. ... And if so, what are your thoughts? ... From what I can tell, there are &#34 ... neuropathy?
Support Group: Neuropathy
Posted: Feb 11, 2024