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335 total results

Comments (309)

Has anyone developed nystagmus or other eye movement problems from their hEDS (not sure if it...

https://connect.mayoclinic.org/comment/1171519/

was finally diagnosed with hEDS and MCAS

Newsfeed Post: Head and Neck Concerns in EDS/HSD

Blog: Ehlers-Danlos Syndrome

Posted: Nov 11, 2024

I'm so very sorry to hear this and I wish your fiance a full recovery. It...

https://connect.mayoclinic.org/comment/904898/

You can research MCAS (mast cell activation

Discussion: I’m SO worried fiance 26 month LONG Covid - declining - ALONE

Support Group: Post-COVID Recovery & COVID-19

Posted: Jul 31, 2023

Sorry you are going through this Sandy1234, You may want to do a bit of research...

https://connect.mayoclinic.org/comment/739423/

help if your doctor were to suspect MCAS ... consult a doctor about possibility of MCAS

Discussion: Undiagnosed for nearly 4 years, need some quality of life back!

Support Group: Digestive Health

Posted: Aug 19, 2022

I omitted some points. The labs she ordered were to ID or rule out MCAS: IGE...

https://connect.mayoclinic.org/comment/1084140/

she ordered were to ID or rule out MCAS

Discussion: Phlegm in my throat and post nasal drip after Covid

Support Group: Post-COVID Recovery & COVID-19

Posted: Jun 10, 2024

I have not been tested for anything in regards to my adrenal glands, hormones, anything. I...

https://connect.mayoclinic.org/comment/857741/

leaning towards hyperPOTS and possibly MCAS

Discussion: Please help - Adrenaline spikes and other things

Support Group: Diabetes & Endocrine System

Posted: May 10, 2023

I looked up Dupixent and to me I doubt it has anything to do with neuropathic...

https://connect.mayoclinic.org/comment/810048/

with both overproduction of IL-4 with MCAS

Discussion: What do you do for Neuropathy itch?

Support Group: Skin Health

Posted: Feb 11, 2023

I just found you all during a google search. I have been sick for 4 years...

https://connect.mayoclinic.org/comment/217859/

Followed by a POTS, MCAS and possibly

Discussion: Possible Ehlers-Danlos Syndrome with craniocervical instability

Support Group: Bones, Joints & Muscles

Posted: Nov 28, 2020

Hi Mark, Thank you. Wow, you have a lot of really intense symptoms.... I do believe...

https://connect.mayoclinic.org/comment/131443/

I only learned about POTS, and MCAS ... mention, and they are listed in POTS, or MCAS

Discussion: Median Arcuate Ligament Syndrome (MALS)

Support Group: Digestive Health

Posted: Oct 11, 2018

Born premature, massive stroke at 6 months old gave me right sided mild cerebral palsy with...

https://connect.mayoclinic.org/comment/812184/

flushing, etc. which was diagnosed as MCAS

Discussion: A Neurological Cocktail , Anyone Else?

Support Group: Brain & Nervous System

Posted: Feb 15, 2023

https://connect.mayoclinic.org/comment/796835/

supplements and was diagnosed with Mcas

Discussion: For anyone who can't find a diagnosis: Undiagnosed Disease Network

Support Group: Autoimmune Diseases

Posted: Jan 15, 2023

Hello, In 2015 I was diagnosed with chronic hives, which is MCAS. I was tested for...

https://connect.mayoclinic.org/comment/701961/

diagnosed with chronic hives, which is MCAS

Discussion: Chronically ill without diagnosis and don’t know what to do next

Support Group: Just Want to Talk

Posted: Apr 24, 2022

I'm so grateful that the internet exists because otherwise I feel certain I'd STILL be looking...

https://connect.mayoclinic.org/comment/203169/

I found out about MCAS when I was combing ... began to read the symptoms list for MCAS ... that got me started learning about MCAS

Discussion: Mysterious shortness of breath: What has helped you?

Support Group: Lung Health

Posted: Sep 10, 2020

Yes, I have felt the same thing, and I am still waiting to be tested for...

https://connect.mayoclinic.org/comment/894338/

I have hypermobility EDS and MCAS as

Discussion: Non-Anxiety "Panic Attacks" with POTS?

Support Group: Heart Rhythm Conditions

Posted: Jul 12, 2023

Yes, I am a Tikosyn user for over the past year. I have a lifetime of...

https://connect.mayoclinic.org/comment/274565/

ablation (my 3rd.), I am left with MCAS

Discussion: Dofetilide (Tikosyn): adjusting dosage

Support Group: Heart Rhythm Conditions

Posted: Sep 1, 2019

I never found a physician who could find anything wrong with me via test (including MCAS...

https://connect.mayoclinic.org/comment/893620/

wrong with me via test (including MCAS

Discussion: Leg weakness and hand tremors

Support Group: Brain & Nervous System

Posted: Jul 10, 2023

Hi, I have had dizziness, fatigue and Inappropriate Sinus Tachycardia as my main symptoms of long...

https://connect.mayoclinic.org/comment/1164726/

my doctor suggested that I may have MCAS

Discussion: Any tips for LC dizziness?

Support Group: Post-COVID Recovery & COVID-19

Posted: Oct 29, 2024

Hello, I honestly can’t remember if I already introduced myself or not. Ain’t brain fog fun?...

https://connect.mayoclinic.org/comment/1175497/

typically use to treat it because of my MCAS

Discussion: Chronic Pain members - Welcome, please introduce yourself

Support Group: Chronic Pain

Posted: Nov 18, 2024

Okay, Please look into symptoms of salicylate intolerance. Many people with MCAS are allergic to asprin...

https://connect.mayoclinic.org/comment/134378/

Many people with MCAS are allergic to

Discussion: Mast Cell Activation

Support Group: Blood Cancers & Disorders

Posted: Jun 29, 2019

Hi Littlematters, Ouch! LC on top of HIV/AIDES! Big HUGS to you! I think we all...

https://connect.mayoclinic.org/comment/1008415/

My earlier symptoms of asthma, and MCAS

Discussion: Has anyone tried some form of antiviral cocktail regimen for their LC?

Support Group: Post-COVID Recovery & COVID-19

Posted: Feb 2, 2024

Hi @tls5alex. Tracy I am so sorry you've gone thru so much. Your story so mimics...

https://connect.mayoclinic.org/comment/1269833/

rashes, fevers, body pains/ changes, mcas

Discussion: Post COVID: Anyone experiencing internal vibrations?

Support Group: Post-COVID Recovery & COVID-19

Posted: Mar 30 7:46am