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257 total results
Comments (238)
My arachnidalus was caused by a knee replacement operation by a stupid what do you call...
replacement operation by a stupid what ... allergic to everything plus I have polyneuropathy ... I don't know what to do the doctors ... neuropathy and none of the antidepressants help
Support Group: Spine Health
Posted: Jun 3, 2022
Gabapentin is prescribed for poly neuropathy and neuropathy that is the only medication that they have...
and I have heard that it also does help ... is for nerve pain so I’m not sure what ... lifesaver for me as I have Demyelinating polyneuropathy
Support Group: Chronic Pain
Posted: Mar 18, 2022
What did you do about the arachnoid? I also have that foot 3 years now, and...
What did you do about the arachnoid? ... spondylolithisis ln 3 areas, plus polyneuroppithy ... Docs arnt very helpful at all. ... Prayers seem to help to deal with it
Support Group: Spine Health
Posted: Feb 20, 2022
Every year since I was born, my birthday was a special day for me. As a...
However, on my 61st birthday, what started ... called “severe axonal sensorimotor polyneuropathy ... I needed help entering and leaving a ... places in hopes that someone could help ... I have suffered with polyneuropathy
@martyk I'm sorry for taking so long to respond to your message. I haven't had a...
tried so many medications - first, what ... prescribed (the typical meds for peripheral polyneuropathy ... , Gabapentin, etc), then what my neurologist ... mistake of only going up to half of what ... My thinking is that it would help for
Support Group: Neuropathy
Posted: Mar 26, 2021
@jjheying I'm glad you took the initiative and started this conversation. When I was diagnosed with...
Idiopathic small fiber peripheral polyneuropathy ... View, it was really hard to believe what ... I think that helps to take some of the
Discussion: depression
Support Group: Neuropathy
Posted: Mar 14, 2021
My twitching has been primarily in my legs also. My left leg is usually much worse...
Small fiber polyneuropathy. ... with you, it makes me feel better, helps ... and I don't eat much meat but what
Support Group: Neuropathy
Posted: Jan 28, 2021
Hello @fuzzy1southernga, Thank you for the private message. You mentioned being diagnosed with progressive idiopathic sensory...
more discussions that you might find helpful ... Member Neuropathy Journey Stories: What ... member-neuoropathy-journey-stories-whats-yours ... / - Axonal Sensorimotor Polyneuropathy ... Does anyone find that a type of shoe helps
Support Group: Neuropathy
Posted: Nov 2, 2020
Hi @rwinney and @trip17, thank you so much for sharing your journey with us so far....
Neuralgia and Small Fiber Peripheral Polyneuropathy ... story is I now know "roughly" what ... trends and looking our best despite what ... ..even if I had a sleepless night (what ... there, but exercise and stretching helps
Support Group: Digestive Health
Posted: Aug 7, 2020
@summertime4 Have you asked your neurologist for supplement/vitamin recommendations? Outside of B vitamins, Stabilized R Alpha...
L Carnatine are thought to be most helpful ... you can just afford those, it may help ... unfortunately, and noone can exactly pinpoint what ... I have polyneuropathy so legs are just ... one and I. able to look back and see what
Support Group: Neuropathy
Posted: Apr 21, 2020
Hello @neuroliz and welcone! I'm curious what kind of Dr you are referring to that is...
I'm curious what kind of Dr you ... denial, scraping and searching for any help ... my disease but, I was desperate for help ... underlying cause of progressive small fiber polyneuropathy ... We are here to help, support, encourage
Support Group: Neuropathy
Posted: Mar 12, 2020
@cehunt57 - Chronic Inflammatory Demyelinating Polyneuropathy (CIDP). Great place to learn more about the condition is...
Chronic Inflammatory Demyelinating Polyneuropathy ... www.shiningthroughcidp.com/everyday-life-with-cidp/what-is-cidp ... have a lot of good information to help
Support Group: Neuropathy
Posted: Jan 7 7:52am
@lisalucier at this point, I have seen 3 Neurologists who specialize in Movement Disorders. They all...
seeing for about 10 years because of Polyneuropathy ... more “hoops” for now, so I will see what ... Thank you for your help!
@debbienod I and most of us here can totally relate! I’m on my 3rd neurologist -...
- a young smart guy, who confirmed what ... (large fiber) sensor motor Axonal Polyneuropathy ... This latest neurologist explained what ... stated, having the knowledge hopefully helps ... us to accept what we can’t change.
Support Group: Neuropathy
Posted: Aug 11, 2025
Hi, Sorry to hear about all the different health challenges. I also right after Covid shot...
fibromyalgia and the worst nightmare one polyneuropathy ... Helps take the edge off the symptoms ... have extreme brain fog or who knows what ... many doctors and no one is able to help ... Not sure what I will do next ??
Support Group: Autoimmune Diseases
Posted: Jul 18, 2025
Hi, Yes that is what I experience apart from the march instruction, I have not been...
Hi, Yes that is what I experience apart ... instructed so don't actually know what ... I have had no medication or help for ... This is one of the issues Autonomic polyneuropathy ... I have not time to do anything but what
Support Group: Neuropathy
Posted: Apr 5, 2025
My husband has a similar issue with his left leg. If the PT person tells him...
So what have you been doing/taking to ... help you with this. ... will definitely ask about Autonomic Polyneuropathy
Support Group: Neuropathy
Posted: Apr 5, 2025
Hi again, that is what I was diagnosed with 8 yrs ago. Large fiber idiopathic polyneuropathy....
Hi again, that is what I was diagnosed ... Large fiber idiopathic polyneuropathy ... Dont know if any help.
Support Group: Neuropathy
Posted: Feb 14, 2025
This is my first time so please bear with me. I’m itsmeagain and I developed CIDP-chronic...
CIDP-chronic inflammatory demylinating polyneuropathy ... a physical therapy dept. which is helping ... The ivig treatments have been helpful ... now reached a plateau and don’t know what ... up the treatments because they are helping
Posted: Feb 6, 2025
Hi, A diagnosis of IBS is given because they have no other idea of what you...
because they have no other idea of what ... label given when they have no idea what ... not a life I wish to have, with no help ... label of IBS has turned into Autonomic polyneuropahy
Posted: Nov 29, 2024