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363 total results

Comments (318)

Yes, just to reiterate what was said above, patients with ET should never donate blood or...

https://connect.mayoclinic.org/comment/1047370/

it sometimes is for patients with polycythemia ... vera, a related cancer.

Discussion: Essential Thrombocytosis symptoms

Support Group: Blood Cancers & Disorders

Posted: Apr 8, 2024

Hello Pink Flamingo, I understand medical insurance companies are difficult to navigaye among other issues. If...

https://connect.mayoclinic.org/comment/836434/

and explain you have a rare cancer, polycythemia ... vera and difficulty getting care they

Discussion: Blood Cancer - JAK2 - Autoimmune- Confusion

Support Group: Blood Cancers & Disorders

Posted: Apr 2, 2023

Hi @themyth, with Polycythemia Vera, too many red blood cells are produced resulting in the high...

https://connect.mayoclinic.org/comment/821819/

Hi @themyth, with Polycythemia Vera

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Mar 6, 2023

sandy1959 @sandy1959, Itch (also known as pruritus) Yes! Itching is 100% sign of cancer look under...

https://connect.mayoclinic.org/comment/817590/

allergist looked up and told me yes; polycythemia ... Vera avoid extreme temperatures.

Discussion: Essential thrombocythemia (ET) and breaking out in hives: What helps?

Support Group: Blood Cancers & Disorders

Posted: Feb 26, 2023

I was originally miss diagnosed with polycythemia Vera. Because I was borderline anemic and I worked...

https://connect.mayoclinic.org/comment/1044688/

was originally miss diagnosed with polycythemia ... Vera.

Discussion: Anyone have information about late stages of primary myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Apr 3, 2024

Hi @mordonmordon. Recently, while visiting my hematologist/oncologist for followup appts, my blood work showed an increasing...

https://connect.mayoclinic.org/comment/781624/

case of elevated RBC or Hemocrit is Polycythemia ... Vera.

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Dec 6, 2022

@rabab101, I found this information and negative or non-detectable JAK2 "Negative results for all JAK2 mutations...

https://connect.mayoclinic.org/comment/834318/

scheduled for to confirm or rule out polycythemia ... vera?

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Mar 30, 2023

Hi @raremiracle2, I had 1st phlebotomy in 2021 and this year second time. My history started...

https://connect.mayoclinic.org/comment/808508/

Until now I do not know if I have polycythemia ... vera or not. recently I did my second

Discussion: Your tips as I prepare for first phlebotomy

Support Group: Blood Cancers & Disorders

Posted: Feb 8, 2023

Hospital missed Polycythemia Vera Nov 2020 but; Mother/ Wife age 50 Hospitalized for cellulitis 2x (same...

https://connect.mayoclinic.org/comment/795964/

Hospital missed Polycythemia Vera Nov

Discussion: Chronic Myeloid Leukemia (CML)

Support Group: Blood Cancers & Disorders

Posted: Jan 12, 2023

I have polycythemia Vera..Cancer is not new to me, I had breast cancer in 2009 with...

https://connect.mayoclinic.org/comment/1093620/

I have polycythemia Vera..Cancer is

Discussion: Polycythemia Vera and Nutritional Ketosis

Support Group: Blood Cancers & Disorders

Posted: Jun 24, 2024

1pearl, Having faith in your healthcare provider is a great comfort when navigating conditions. I was...

https://connect.mayoclinic.org/comment/1252950/

I was diagnosed with Polycythemia Vera

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Mar 8 5:33am

New subject. I have Polycythemia Vera not sure how long however I noticed my cells were...

https://connect.mayoclinic.org/comment/1126243/

I have Polycythemia Vera not sure how

Discussion: What's the latest Jakafi (ruxolitinib) for polycythemia vera (PV)?

Support Group: Blood Cancers & Disorders

Posted: Aug 18, 2024

Hi Sue! All of my hematologists thought the flushing was due to polycythemia vera, but without...

https://connect.mayoclinic.org/comment/83502/

hematologists thought the flushing was due to polycythemia ... vera, but without the JAK2 mutation

Discussion: After Hep C Treatment

Support Group: Infectious Diseases

Posted: Feb 12, 2019

Hi Janie Don’t know if it’s the same, but about a month after my stroke I...

https://connect.mayoclinic.org/comment/1100727/

stroke was a result of undiagnosed Polycythemia ... Vera, no other underlying medical conditions

Discussion: Looking to connect with people who have non-diabetic neuropathy

Support Group: Neuropathy

Posted: Jul 7, 2024

Wow that is an extremely high amount to start on but I can only assume it...

https://connect.mayoclinic.org/comment/1065766/

I am JAK2 positive and have Polycythemia ... Vera, diagnosed 1/23.

Discussion: Polycythemia Vera or Essential Thrombocythemia ?

Support Group: Blood Cancers & Disorders

Posted: May 11, 2024

I have had Polycythemia Vera (PV) for 6 years now. No other symptoms before diagnose other...

https://connect.mayoclinic.org/comment/1031426/

I have had Polycythemia Vera (PV) for

Discussion: How bad is a diagnosis of Polycythemia Vera?

Support Group: Blood Cancers & Disorders

Posted: Mar 11, 2024

@tkp22, I can understand you're worried. It sounds like your health care team is being thorough....

https://connect.mayoclinic.org/comment/719785/

have a bone marrow disorder, like polycythemia ... vera, essential thrombocythemia, or

Discussion: Jak2 positive, biopsy next: Does it mean I have blood cancer?

Support Group: Blood Cancers & Disorders

Posted: Jun 21, 2022

mlm0601, I have had little or no effects from taking Hydroxyurea (Hydrea) for 6 years now....

https://connect.mayoclinic.org/comment/1052803/

much about ET but I do know about Polycythemia ... Vera (PV) which is one of the evil

Discussion: How fast do you start to feel hydroxyurea symptoms?

Support Group: Blood Cancers & Disorders

Posted: Apr 18, 2024

Hello @sap21981 Welcome to Mayo Connect. I’m sure you’re in panic mode right now! Being a...

https://connect.mayoclinic.org/comment/886233/

who also have been diagnosed with Polycythemia ... vera.

Discussion: PV and fatigue

Support Group: Blood Cancers & Disorders

Posted: Jun 27, 2023

I lived a completely normal confident life before this. I was great. I definitely know that...

https://connect.mayoclinic.org/comment/858897/

It's not polycythemia vera because

Discussion: What might this be? polycythemia vera, PCOS, lupus, something else?

Support Group: Blood Cancers & Disorders

Posted: May 12, 2023