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bobuloops

After Hep C Treatment

Posted by @bobuloops in Infectious Diseases, Dec 11, 2014

post harvoni treatment how did you feel before and how do you feel now

daveniles

Posted by @daveniles, Dec 27, 2014

I'm Taking Harvoni for almost 3 weeks.Dont feel any change yet, but I am hopeful. Does anyone have any knowledge on that?

pagegirl

Posted by @pagegirl, Wed, Nov 9 at 3:38pm CST

I completed treatment in April 2015.....you won't feel any changes, at least I didn't. But I was never sick from hep c....didn't even know I had it. However I had it so long I developed cirrhosis. So hopefully my liver will start healing.

smaug48

Posted by @smaug48, Jan 18, 2015

Does anyone have information about the Mayo Clinic treating people for Post Interferon Syndrome? I had 92 weeks of interferon for Hepatitis C (which didn't work) 2008-2009 and now feel much worse than I did before starting treatment. Any information would be appreciated, thanks.

airtruck54

Posted by @airtruck54, Mar 12, 2015

I have had chronic hep c for at least 10 years and I thought it was a death sentence! 3 weeks ago I started taking Harvoni and went for a blood test-after 3 weeks my liver levels were normal and no signs of hepc levels were detected in my blood! I hope every one can take this mdrt cured!

sharonmsmith

Posted by @sharonmsmith, Jun 2, 2015

I have been diagnosed with Hepatitis C and want to know more about good foods to eat and natural remedies to combat this disease without drugs if possible. Also want to consider any info you have on Harvoni Medication?

colleenyoung

Posted by @colleenyoung, Wed, Jan 20 at 8:55pm CST

Hi @sharonsmith,
How are you doing? Did you decide to take Harvoni? http://www.mayoclinic.org/diseases-conditions/hepatitis-c/in-depth/easier-hepatitis-c-treatment/art-20109998

@afterthetreatment would really like to connect with someone who's been there.

Colleen
Connect Community Director

pagegirl

Posted by @pagegirl, Thu, Nov 10 at 6:36pm CST

I went through Harvoni treatment a year 1/2 ago .It will get rid of hep c , but there are many side affects ....some deadly. Although it hasn't been proven....as of yet. I developed cancerous tumors. One on my pancreas, liver, 3 on my lungs. I have read many testimonials today of people with the same issues. Also I only know of 1 other person that has taken the drug, and he is having the same issues, only he's in worse condition than me. I had to have part of my pancreas removed, along with my spleen. Now I am seeing a specialist about the cyst on my lungs. I am now seeking legal advice.

afterthetreatment

Posted by @afterthetreatment, Sat, Jan 16 at 7:04pm CST

I finished treatment of Solvaldi and Ribo 2 mo ago and want to hear from others what they are feeling?

colleenyoung

Posted by @colleenyoung, Sun, Jan 17 at 9:57am CST

Welcome to Connect, @afterthetreatment.
You'll notice that I moved your message to an existing discussion about Hep C treatment in the Infectious Diseases group. Here you'll meet @airtruck54 @daveniles @bobuloops.

How are you feeling now 2-months post treatment?

Colleen
Connect Community Director

afterthetreatment

Posted by @afterthetreatment, Sun, Jan 17 at 3:13pm CST

2 months post treatment I am feeling totally unmotivated about anything a bit depressed I'd say, and tired. Really thought I would be feeling better, but ? My platelets are low, have had my spleen removed three years ago. Anyone have elevated white blood count? Mine was like 13.

afterthetreatment

Posted by @afterthetreatment, Wed, Jan 20 at 11:46am CST

Hi, I'm so ,lost trying to find a place where others are chatting about post treatment. Do you have Hep C Coleen?

colleenyoung

Posted by @colleenyoung, Wed, Jan 20 at 2:41pm CST

Hi @afterthetreatment.
I do not have Hep C. I'm the Community Director of Connect. When I moved your thread here, I was hoping that past members @airtruck54 @daveniles @bobuloops might return to share with you. I will continue to look for people who have Hep C and will join this discussion.

Hang in there!
Colleen
Connect Community Director

pagegirl

Posted by @pagegirl, Wed, Nov 9 at 4:01pm CST

Colleen.....Do you know of anyone that developed any serious heath issues after taking harvoni. I took it last year and developed a tumor on my pancreas, don't know for a fact that it's related. But I know of someone else that has the same problem. Could be a coincidence but sure would like to know.

colleenyoung

Posted by @colleenyoung, Wed, Nov 9 at 11:33pm CST

Hi @pagegirl, I did a very quick google search and found several mentions of a potential link between harvoni and liver damage and possibly liver cancer. I found no mention of pancreatic tumours. Has your cancer team suggested that it might be related? Would this influence what type of treatment you would get for the pancreatic tumor?
These are questions I would want to ask my cancer care team.

kanaazpereira

Posted by @kanaazpereira, Thu, Nov 10 at 5:46pm CST

Hi @pagegirl,
I'm Kanaaz Pereira, and I moderate the Infectious Disease group as well. I see that Colleen did reply to you, and I also wanted to follow up by introducing you to other members who have taken Harvoni, and may be able to offer more information. Please meet @airtruck54, @cldreif330, @bobuloops, @rkz06, and @peakbagger.

@pagegirl, what is your doctors' opinion about the side effects of Harvoni?

pagegirl

Posted by @pagegirl, Thu, Nov 10 at 6:44pm CST

I actually didn't put 2 and 2 together until this week. A man (friend of a friend) whom had also taken harvoni, had developed the same issues I did. Only he's in bad shape. @ months ago I had my spleen and part of my pancreas removed, luckily the tumor was at the tail of my spleen. So now I am diabetic. I go back to see my surgeon next week. I'm going to take this information with me. You should google "Can Harvoni give me cancer" and check this out for yourself. It's scary ! Wish I had.

airtruck54

Posted by @airtruck54, Fri, Jan 22 at 9:41am CST

I. Felt sick all the time. I am not sick anymore

colleenyoung

Posted by @colleenyoung, Sun, Jan 24 at 4:14pm CST

Hi @airtruck54 Welcome back to Connect.
How long did you feel sick and when and how did you get better?

airtruck54

Posted by @airtruck54, Mon, Jan 25 at 3:03pm CST

I had hepc for 12. Years that i knew about. I used. To. Be. Tired and depressed also had pains in my liver! I. Also took percosets. And drank alot i. Am lucky to be alive! Afertreatment. I feel good! I want to go back to work! I was a business person and i am broke. Now! But i have. My health! I am 61. Years old! Good luck to everyone!

afterthetreatment

Posted by @afterthetreatment, Mon, Jan 25 at 2:32pm CST

Hi Bob, I had Sovaldi and Ribo for 6 mo. My platelets dropped to 10 prior to treatment and had to have my spleen taken out. 2 yrs later, treatment. I felt lethargic ALL the time prior to treatment, now 3 mo after treatment tired 40 percent of the time. I also was so foggy minded, I could not think straight before treatment, now I am starting to get my brains back ! I had no detection of Hep C at 3 weeks into my therapy. I have to get blood work this week to see how it's going 3 mo after treatment. It's been a very heavy cross to bear, praying this new yr will give me a chance to feel well. I am genoType 3 . Insurance wouldn't cover harvoni for me. How about you? C

airtruck54

Posted by @airtruck54, Mon, Jan 25 at 2:57pm CST

Hey bob. I got luckey. The bill for harvoni was. 95000.00. I was geno1b. The worst. You. Took sovaldi. You should be fine! Sovaldi is in harvoni. Good luck!

pagegirl

Posted by @pagegirl, Wed, Nov 9 at 3:53pm CST

I took harvoni beginning Jan 2015...12 weeks was cured. I'm wondering if you have had any other health problems, such as cyst/tumors on pancreas,liver or lungs. I only know of one other person that took harvoni and we both developed tumors...could be a coincidence...I don't know him personally (friend of a friend) I just had to have part of my pancreas and spleen removed. I'm trying to find out if it had anything to do with the drug ???? Please let me know.

afterthetreatment

Posted by @afterthetreatment, Mon, Jan 25 at 8:55pm CST

My name is not Bob lol I'm female 59 yrs old. CA. I am so glad you feel good ! How long after treatment finished did you start to feel good like you so
now?

airtruck54 likes this
pagegirl

Posted by @pagegirl, Wed, Nov 9 at 3:57pm CST

Did you take harvoni ? If so, have you developed any other health issues ? I'm trying to see if there is a connection with my issues. Please reply.

cldreif330

Posted by @cldreif330, Sun, Nov 20 at 9:44am CST

I have obtained the listing of all side effects reported to the FDA via a FOIA request. You name it and it ha been reported. There have been issues with pancreas and pretty much every other organ in the body. There have been a dozens of reported deaths as well from such things as respiratory failure, cardiac arrest, brain hemorrhage, etc.

airtruck54

Posted by @airtruck54, Tue, Jan 26 at 3:35am CST

As soon as i got. The results from my bloodwork. That told. Me. I was clear of the virus i felt. Good! I fi ished all of my harvoni pills 1. A day that is the beauty of harvoni! You should start to feel ready. After. Your treatment get active and forget about your disease! It is over. Live life love. Life!

afterthetreatment

Posted by @afterthetreatment, Tue, Jan 26 at 3:14pm CST

I love to hear stories like this . Wish I could say the same.

airtruck54

Posted by @airtruck54, Tue, Jan 26 at 3:37pm CST

Bob. I noticed after. My. Treatment. The skin on my face. Started to glo! I feel alive again. And i dont take. Pain pills anymore! Cheer up and keep on fighting! I live. Outside. Of boston.

rkz06

Posted by @rkz06, Sat, May 7 at 7:54pm CST

I have had hepatitis C for almost 20 years , I went through interferon and Ribavirin treatment a few years ago , after five months I was clinically depressed and had to go on antidepressants . After six months I stopped with no positive results , ( I wouldn't do it again ) then this year my doctor looked me in my eyes and told me he could cure me with Harvoni, i'm down to my last 10 days and have had two blood tests both showing viral load undetectable . I still don't feel great but I know that the disease is dead , and I plan on living my life the best I can . I've been sober since March 18, 2004 and my life is great on most days . I hope this helps somebody .

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