To narrow your search, try adding quotation marks around phrases.

Search tips
  • Search by keywords or complete phrases.
  • To narrow your search, try adding quotation marks around phrases.
  • Example: "predictable behavior" will narrow the search results to only include content that has the exact phrase "predictable behavior" in it.
821 total results
Comments (750)
@lch713 I know how that is. I was misdiagnosed with COPD and bacterial pneumonia for about...
https://connect.mayoclinic.org/comment/215074/
testing, I have some form of Light Chain Amyloidosis ... available. https://bit.Ly/1w7j4j8 "Amyloidosis ... list of needed tests is also on my Amyloidosis
Discussion: Late dx, only 16% lung function
Support Group: MAC & Bronchiectasis
Posted: Sep 7, 2018
@sousou Hi, Saida. Your statement about more than one doctor finding nothing wrong hit a note...
https://connect.mayoclinic.org/comment/179549/
story free at HTTPS://bit.Ly/1w7j4j8 "Amyloidosis ... I have a form of Amyloidosis. ... "What the doctor should know about Amyloidosis ... Anyway, what you describe fits Amyloidosis ... subject is from Mayo's Morey Gertz, MD, "Amyoidosis
Discussion: Abdominal pain with severe constipation and weight loss
Support Group: Digestive Health
Posted: Jan 3, 2018
@gmhelin What you describe is part of like mine. I have had prostate (Gleason 7) for...
https://connect.mayoclinic.org/comment/78092/
appear to be from either AL or hATTRwt Amyloidosis ... to change the name of the file from Amyloidosis ... Series 16 to "Amyloidosis Dossier 16
Discussion: blood in urine with no cause
Support Group: Kidney & Bladder
Posted: Dec 26, 2017
John, I have had Chronic Bronchiectasis most of my life. I struggled hard with it for...
https://connect.mayoclinic.org/comment/180325/
as being a nearly 100% certainty of Amyloidosis ... Gelsolin, GSN or AGEL, or Finnish Amyloidosis
Discussion: Bronchiectasis: Understanding symptoms
Support Group: MAC & Bronchiectasis
Posted: Feb 24, 2021
@kgoodwin9 Yes to all you said. One thing you should know is that that there over...
https://connect.mayoclinic.org/comment/161427/
that there over 1,000 mutations of Amyloidosis ... good place to start is by reading the Amyloidosis ... I would suggest you read my Amyloidosis
Discussion: Anyone have the FGFR3 antibody gene?
Support Group: Neuropathy
Posted: Jan 2, 2018
FDA approves polyneuropathy treatment for adults The FDA has approved Amvuttra, an RNA interference therapeutic for...
https://connect.mayoclinic.org/comment/717559/
hereditary transthyretin-mediated amyloidosis ... hereditary transthyretin-mediated (hATTR) amyloidosis ... unmet medical needs, such as hATTR amyloidosis ... the release, 164 patients with hATTR amyloidosis ... making Amvuttra a reality for the hATTR amyloidosis
Discussion: Living with Neuropathy - Welcome to the group
Support Group: Neuropathy
Posted: Jun 14, 2022
I am so sorry for what you and your wife are going through. I can relate...
https://connect.mayoclinic.org/comment/978391/
said, “I think that you suffer from Amyloidosis ... husband to get a special CTScan for Amyloidosis ... husband was diagnosed with Cardiac Amyloidosis ... I am not saying that your wife has Amyloidosis ... Amyloidosis is a very tricky condition
Discussion: Concerned husband desperate for answers
Support Group: Digestive Health
Posted: Dec 11, 2023
Good morning, @vmarra, the best thing that’s happened is that your mom is now in the...
https://connect.mayoclinic.org/comment/726680/
information from Mayo Clinic’s site for AL Amyloidosis ... www.mayoclinic.org/diseases-conditions/amyloidosis ... discussions with members who have AL Amyloidosis ... Diagnosed with AL Amyloidosis. ... connect.mayoclinic.org/discussion/diagnosed-with-al-amyloidosis-would-like-to-hear-from-someone-about-what
Discussion: Recently diagnosed with AL Amyloidosis: Any advice?
Support Group: Blood Cancers & Disorders
Posted: Jul 14, 2022
@olegraymare Hi! Very interested in your list of symptoms and signs. They are classic. For some...
https://connect.mayoclinic.org/comment/108634/
For some forms of Amyloidosis, that ... story free at HTTPS://bit.Ly/1w7j4j8 "Amyloidosis ... I have a form of Amyloidosis. ... "What the doctor should know about Amyloidosis ... Anyway, what you describe fits Amyloidosis
Discussion: Autoimmune diagnosing problem
Support Group: Autoimmune Diseases
Posted: Jan 5, 2018