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Comments (317)

Ataxia snuck into my life little by little. Burst out of the box starting around 2013-14,...

https://connect.mayoclinic.org/comment/1023485/

Ataxia snuck into my life little by ... determining just what is the CAUSE of YOUR ataxia ... choose for addressing the challenges of ataxia

Discussion: What does having ataxia do to your life?

Support Group: Brain & Nervous System

Posted: Feb 27, 2024

Hi @marciski Such a good question. I'm tagging a few members, like @violetita07 @bmerxbauer @chamisa @jlms...

https://connect.mayoclinic.org/comment/213909/

necessarily because of an ATM gene mutation (Ataxia-Telangiesctasia

Discussion: ATM Gene Mutation and Care

Support Group: Breast Cancer

Posted: Aug 30, 2018

In addition to PN (including lack of sensation to temperature and vibration, ataxia, and lessened proprioception),...

https://connect.mayoclinic.org/comment/1188884/

sensation to temperature and vibration, ataxia

Discussion: Is there somebody who is diagnosed with megavitamin b6 syndrome ?

Support Group: Neuropathy

Posted: Dec 12, 2024

I have cerebellar degeneration of unknown cause that is most evident on a PET scan. This...

https://connect.mayoclinic.org/comment/975123/

I have found the National Ataxia Foundation ... The website is: https://www.ataxia.org

Discussion: Cerebellum atrophy with no known cause. What to do?

Support Group: Stroke & Cerebrovascular Diseases

Posted: Dec 4, 2023

@njed I respectfully disagree with your Neurologist. I believe Dilantin and Phenobarbital were the cause of...

https://connect.mayoclinic.org/comment/821593/

and coordination and also causing my Ataxia

Discussion: Doctors comments re: depakote's effect on bones, kidney stones?

Support Group: Epilepsy & Seizures

Posted: Mar 6, 2023

I appreciate your reply, @sears. I'm just wondering if you have talked with your doctor about...

https://connect.mayoclinic.org/comment/311829/

talked with your doctor about the ataxia

Discussion: Has anyone had ataxia from taking benzodiazepines or antidepressants?

Support Group: Mental Health

Posted: May 24, 2020

Hi, I’m Kate, Retiree from New Zealand. I was diagnosed with SPINO CEREBELLAR ATAXIA 5 years...

https://connect.mayoclinic.org/comment/1266793/

was diagnosed with SPINO CEREBELLAR ATAXIA

Discussion: Cerebellar ataxia: What treatment options should I explore?

Support Group: Stroke & Cerebrovascular Diseases

Posted: Mar 25 6:17pm

Amiodarone does seem to have a connection with PN... "Check with your doctor right away if...

https://connect.mayoclinic.org/comment/1019667/

amiodarone-related neurotoxicities are tremor, ataxia

Discussion: Have you tried the new Protocol 525 product for neuropathy relief?

Support Group: Neuropathy

Posted: Feb 21, 2024

I have fibromyalgia and what they're calling cerebellar ataxia, which means my balance is terrible and...

https://connect.mayoclinic.org/comment/104591/

and what they're calling cerebellar ataxia

Discussion: Falling

Posted: Jun 20, 2016

Hey there, I completely forgot about posting here until you replied. I too am gluten free...

https://connect.mayoclinic.org/comment/1002163/

I connected with an ataxia clinic in ... only two labs that do it, both at ataxia

Discussion: Anti-tranglutaminase-6 antibody test - Gluten Sensitivity Test

Support Group: Digestive Health

Posted: Jan 22, 2024

@delia74 Wow! You have been and continue to be going through so much! Question, you have...

https://connect.mayoclinic.org/comment/998717/

Question, you have Ataxia right? ... How has the Ataxia been affecting your

Discussion: What does having ataxia do to your life?

Support Group: Brain & Nervous System

Posted: Jan 17, 2024

Two years ago I told my doctor that I just didn’t feel like myself mentally. He...

https://connect.mayoclinic.org/comment/1001856/

brain has shrunk more, and now I have Ataxia

Discussion: Support Group for Those of Us Living With Mild Dementia

Support Group: Aging Well

Posted: Jan 22, 2024

I have similar issues! Some days I have a weird balance/ weakness issue when I am...

https://connect.mayoclinic.org/comment/910718/

My ENT thinks it is cerebellar ataxia

Discussion: Fibromyalgia and Central Sensitization Syndrome (CSS)

Support Group: Fibromyalgia

Posted: Aug 10, 2023

I will post as I learn more, hopefully. I am waiting for a phone Consult from...

https://connect.mayoclinic.org/comment/134702/

this is inherited spinocerebellar ataxia

Discussion: NET - Insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 9, 2019

Delia - thanks for your response - it contains helpful information. Yes, I have been to...

https://connect.mayoclinic.org/comment/1023815/

be told I have Spinal, Cerebellar Ataxia ... (No one has told me the cause of Ataxia

Discussion: What does having ataxia do to your life?

Support Group: Brain & Nervous System

Posted: Feb 27, 2024

Thank you! I’m learning…. We have no choice!! I’m sorry to hear your story. I am...

https://connect.mayoclinic.org/comment/1053868/

My main struggle is ataxia and tremor

Discussion: Cerebellar stroke experience, treatment, recovery

Support Group: Stroke & Cerebrovascular Diseases

Posted: Apr 19, 2024

Hello @artscaping and @ray666 Please see my reply to @jesfactsmon under Neuropathy Group discussing how Neuroplasticity...

https://connect.mayoclinic.org/comment/609711/

how Neuroplasticity helped solve my Ataxia

Discussion: Balance, high blood pressure medications, and …

Support Group: Neuropathy

Posted: Jun 17, 2021

I guess you can add me to the list. I woke up with dizziness, ringing in...

https://connect.mayoclinic.org/comment/51582/

sensory disfunction (somewhat like ataxia

Discussion: Constant dizziness/imbalance

Support Group: Brain & Nervous System

Posted: Feb 21, 2013

@oliver4 You may be right. Sometimes the doctors may not know, other times they may know,...

https://connect.mayoclinic.org/comment/785932/

balance problems and I believe my Ataxia

Discussion: Can neuropathy in my feet cause balance problems?

Support Group: Neuropathy

Posted: Dec 17, 2022

My Neurologist is at the Missouri University in Columbia Missouri. He sent my blood to Washington...

https://connect.mayoclinic.org/comment/161406/

Some patients have sensory ataxia or

Discussion: Anyone have the FGFR3 antibody gene?

Support Group: Neuropathy

Posted: Nov 8, 2017