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oceanfun1
@oceanfun1

Posts: 16
Joined: Jan 22, 2016

Falling

Posted by @oceanfun1, Jun 9, 2016

I have had two falls in the last month. The doctors are asking me why I am falling so much. Well I am wondering if anyone has had the experience of excessive pain causing dizziness and/or falling. One of the falls happened when I was very tired from being on a trip. I thought I was okay and then I bent to open a mail locker the key stuck and I lost my balance. About 4 weeks later I let go of the railing and fell down the stairs. I was tired again and having difficulty with pain management. Now I am trying to recovery from two falls. I have two brain injuries, neuropathy, fibromylgia and migraines. The doctor is keeping my hydrocodene at 2 tablets of 500/325. My pain level ranges from 7.5 to 10 daily. It is never below 7.5.
Thanks in advance for any thoughts you may have.

REPLY

I’m sorry to hear that the falling has returned (continued?) Oceanfun. Did you see this thread https://connect.mayoclinic.org/discussion/balance-and-falling-a-lot/ @rosesareredmylove2016 @overcomer11 and @dmedina71 had several thoughts to add.

@colleenyoung

I’m sorry to hear that the falling has returned (continued?) Oceanfun. Did you see this thread https://connect.mayoclinic.org/discussion/balance-and-falling-a-lot/ @rosesareredmylove2016 @overcomer11 and @dmedina71 had several thoughts to add.

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I had been doing so well. Then my pain from the fibro got high and the falls started. I have been following the other thread. I am on a low dosage of norco and wondered if I need to ask to increase that if high levels of pain could cause falls. Thanks for responding.

Does the fall come from dizziness or weakness or do you black out?

Good question @jeans. @oceanfun1 what is the pattern just before you fall?

The first fall I was in pain and tired. I was doing something not that complicated on a level surface. Unfortunately it was concrete. I was bending over.
The second time I was in level 8 pain and going to get water for my pain med. I noticed something was wrong with the railing so I let go and walked down the stairs to look at it and I fell.
Just now I almost fell down the concrete steps in front my house. I am in a level 9 pain and I had taken my pain med but it had not had time to work.
I am wondering if my pain meds need to be increased. I am on two norco a day 500/325. It is difficult to get a higher dose because of all the concerns about opiates.
My pain level is never below a 7 and usually is around an 8 and moves to a 10 about one day a week.
I do have a brain injury and it could me my brain is shutting down due to pain.
I have seen my nuerologist who has no answers, my internist who asked me why it was happening and PT who said my balance was acceptable.
So if anyone has any thoughts that would be great.

My many falls eventually led the Docs to suspect Parkinson’s – and they
were right.

@trouble4343

My many falls eventually led the Docs to suspect Parkinson’s – and they
were right.

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Thank you for that. I have been shuffling my feet at times and this is one of the things my Dad did. He had Parkinson’s. How did they diagnosis you ? Perhaps I need to be assessed by a different nuerologist. I have some shaking in my hands but he said it was from the nueropathy.

Yes, maybe I would try a different neurologist (i.e., second opinion – done all the time) I think the hand tremors and my gait when I walked probably did the trick, but also I don’t swing my arms when I walk. How about you?

@trouble4343

Yes, maybe I would try a different neurologist (i.e., second opinion – done all the time) I think the hand tremors and my gait when I walked probably did the trick, but also I don’t swing my arms when I walk. How about you?

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When I went to PT she did say I don’t swing my left arm. She asked me to do so and it was a conscious act. I have tremors at times. Like putting in my contacts is hard because I have tremors when I do that. I will be holding my phone with my left hand and my hand shakes badly. When I was on the phone and my son came in he said why is your hand shaking like that. But it is not consistent. I cannot get up out of a chair like I use to. I have to have support. Could be fibro which I assumed but it is listed under Parkinson’s. I also have that shuffle that all of a sudden starts when I am walking. I am going to make an appointment with a new neurologist on Monday. I am scared.

Don’t be scared.Knowledge is power!

I have fibromyalgia and what they’re calling cerebellar ataxia, which means my balance is terrible and I have had some bad falls so now I use a cane outside the house. I don’t know if these are really 2 separate problems or if the balance stuff is from the fibro.
I imagine that if you see a doctor about the falls they are just going to say you’re on too much norco. You could try a cane-it gives me a better chance of catching myself and not actually falling. The biggest hassle is not having that hand free to carry things.

@trainwreck54

I have fibromyalgia and what they’re calling cerebellar ataxia, which means my balance is terrible and I have had some bad falls so now I use a cane outside the house. I don’t know if these are really 2 separate problems or if the balance stuff is from the fibro.
I imagine that if you see a doctor about the falls they are just going to say you’re on too much norco. You could try a cane-it gives me a better chance of catching myself and not actually falling. The biggest hassle is not having that hand free to carry things.

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Thank you for you response. The doctors decided my narco had to go up. I am never below a 7.5 and most of the time 8 to 10. They think that level of pain may be reducing my level of clarity and ability to process things. After I hit 9 my brain is just in a fog and I get dizzy. It is too busy processing pain to do anything else.
I could of done it on my own but I don’t like to play with opiates.
I have injured both hands so for the time being weight on my hands is not an option but that is a great idea and when my hands heal I hope I can use a cane. Thanks for telling me about the cerebellar ataxia. I will do some research on that.
Takes a ton of patience.

@trouble4343

Don’t be scared.Knowledge is power!

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Of course you are right. Thank you for reminding me.

@trouble4343

My many falls eventually led the Docs to suspect Parkinson’s – and they
were right.

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When my tremor got bad enough to look stuff up about it, I learned that people with Parkinson’s have tremor at rest, like when their hands are in their lap. People with “benign” essential tremor, which is my type (thanks, Mom!) have what’s called an intention tremor-the harder I try to do something the more difficult it gets. This is totally maddening especially when the earring I’ve tried 3 times to put in gets dropped on the floor twice. Eye makeup is a lost cause.
I don’t have a citation for this distinction and I can’t make a medical diagnosis but I thought you’d be interested.

@trouble4343

My many falls eventually led the Docs to suspect Parkinson’s – and they
were right.

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Yes, I know all about essential tremor. I do have Parkinson’s but I have essential tremor worse. We tried Mysoline to settle it down, but it only worked for a little while. Now I am in the process of going off Mysoline so I can go on Propranolol (SP?) I’ll be ready by the middle of the week.But of course the new med will cause problems with one of my blood pressure meds, so it will probably have to be changed. I also have bipolar disorder so every new med must be checked with all the meds I am on for that. I have been taking Sinemet for a long time and it didn’t do anything for the tremor. I now wonder if it is doing anything for me at all, but I hate to stop it in case it is keeping some other Parkinson’s characteristics in under control. Don’t you just love this – for me “this” means getting old – really old!

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