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Comments (754)
@naiviv, in this discussion about cardiac amyloidosis you can connect with @danab and @jeannepasquinucci. Here's another...
, in this discussion about cardiac amyloidosis ... helpful posts by @jhoffmanj - Cardiac Amyloidosis ... /connect.mayoclinic.org/discussion/amyloidosis ... - Successful treatment of cardiac amyloidosis ... newsfeed-post/successful-treatment-of-cardiac-amyloidosis-depends-on-early-diagnosis
Support Group: Heart & Blood Health
Posted: Jun 9, 2023
@divyanshi, macular amyloidosis sounds like it is quite rare. If you'd like, there are a few...
@divyanshi, macular amyloidosis sounds ... other discussions on Connect regarding amyloidosis ... members have discussed other types of amyloidosis ... connect.mayoclinic.org/discussion/al-amyloidosis ... diagnosis is multiple myeloma and amyloidosis
Posted: Feb 6, 2019
@shirleygirl One of the things you need to be aware of is pulmonary amyloidosis. Look at...
you need to be aware of is pulmonary amyloidosis ... about amyloidosis. ... there about nodules and pulmonary amyloidosis ... , which is the primary witness for amyloidosis ... at https://bit.Ly/1w7j4j8 Look at Amyloidosis
Support Group: Lung Health
Posted: Nov 12, 2017
My plasma cells from my bone marrow biopsy are 15% so the doc thinks I now...
No test results yet for AL amyloidosis ... He said kappa amyloidosis is rare, but ... it just less common than lambda amyloidosis
Posted: Oct 3 9:32am
@irene5, @boomerexpert Subtle neuropsychiatric and neurocognitive changes in hereditary gelsolin amyloidosis (AGel) amyloidosis is a great...
neurocognitive changes in hereditary gelsolin amyloidosis ... (AGel) amyloidosis is a great read ... Oral Health for Hereditary Gelsolin Amyloidosis
@cemeterygal01, as you gather information on your particular combination of both amyloidosis and multiple myeloma, you...
your particular combination of both amyloidosis ... older discussions: - Treatment for amyloidosis ... connect.mayoclinic.org/discussion/treatment-for-amyloidosis-and-multiple-mylemoa ... / - Current diagnosis is Amyloidosis
@like2dance2, I'm sorry you have not yet heard back from Mayo Clinic. You may wish to...
with other members diagnosed with AL Amyloidosis ... discussions: - Diagnosed with MGUS/Amyloidosis ... What is the current protocol for al Amyloidosis ... what-is-the-current-protocol-for-al-amyloidosis ... search=Amyloidosis&index=discussions
Welcome to Connect, @tollie It sure helps to feel that you’re not alone when you have...
number of members in our forum with Al-Amyloidosis ... links to informational articles on Amyloidosis ... can meet other members who have Al-Amyloidosis ... You can find more by typing in Al-Amyloidosis ... / ~ Diagnosed with AL Amyloidosis
Hi Jim, I'm not sure why no one has responded to your discussion about cardiac amyloidosis....
responded to your discussion about cardiac amyloidosis ... for others reading this: * Cardiac Amyloidosis ... /multimedia/what-is-cardiac-amyloidosis-video ... /vid-20112205 * Cardiac Amyloidosis ... * Video Q&A about Amyloidosis
Posted: Nov 23, 2017
@oldkarl and other members with Amyloidosis, hATTR, and polyneuropathy. I thought you might be interested in...
@oldkarl and other members with Amyloidosis ... Hereditary ATTR (hATTR) amyloidosis ... In hATTR amyloidosis, the TTR gene change ... As a hereditary disease, hATTR amyloidosis ... If one parent has hATTR amyloidosis,
@gala75, @oldkarl, @cgarcia56 and others. I thought you might find the following upcoming webinar interesting and...
Hereditary ATTR (hATTR) amyloidosis ... In hATTR amyloidosis, the TTR gene change ... As a hereditary disease, hATTR amyloidosis ... If one parent has hATTR amyloidosis, ... mean that they will develop hATTR amyloidosis
Support Group: Autoimmune Diseases
Posted: Oct 4 5:38pm
Hi @joycehocm, Thanks for updating the group about your visit! Have you had a chance to...
here on Connect regarding Cardiac Amyloidosis ... /connect.mayoclinic.org/discussion/amyloidosis ... health/conditions-and-diseases/cardiac-amyloidosis ... www.mayoclinic.org/diseases-conditions/amyloidosis ... your next appointment to rule out amyloidosis
Posted: Nov 19 12:33pm
Hi Becky, Here's a good discussion to connect with others talking about amyloidosis - Diagnosed with...
connect with others talking about amyloidosis ... - Diagnosed with AL Amyloidosis. ... connect.mayoclinic.org/discussion/diagnosed-with-al-amyloidosis-would-like-to-hear-from-someone-about-what
Posted: Aug 17, 2022
Hello @boo55 -- I believe @oldkarl and @doodersnana have discussed amyloidosis and may be able to...
oldkarl and @doodersnana have discussed amyloidosis ... Hereditary ATTR Amyloidosis Testing ... www.hattrguide.com/diagnosing-hattr-amyloidosis ... / Amyloidosis Foundation -- http:// ... amyloidosis.org/facts/al/ Diagnosis
Discussion: Amyloidosis
Support Group: Neuropathy
Posted: Jul 13, 2019
Hi @jewel8888 You can connect with other members who have amyloidosis in these discussions on Connect....
connect with other members who have amyloidosis ... - Current diagnosis is Amyloidosis ... mayocl.in/2bAqF5j - Diagnosed with AL Amyloidosis ... webinar with Mayo Clinic experts "Amyloidosis
Clifford, you may be interested in this related discussion as you research more about amyloidosis: -...
discussion as you research more about amyloidosis ... : - Diagnosed with AL Amyloidosis. ... connect.mayoclinic.org/discussion/diagnosed-with-al-amyloidosis-would-like-to-hear-from-someone-about-what
Posted: Apr 20, 2023
@oldkarl All bronchiectasis cases are chronic and incurable. But I have trouble understanding how bronchiectasis and...
understanding how bronchiectasis and amyloidosis ... But I know I don't have amyloidosis ... Besides, Gelsolin amyloidosis is mostly
Support Group: MAC & Bronchiectasis
Posted: Aug 20, 2018
@brad830, sorry to hear of your most recent diagnosis. If you are comfortable sharing, has it...
been shared with you which type of amyloidosis ... quite a few discussions dedicated to amyloidosis ... /connect.mayoclinic.org/discussion/amylodosis ... connect.mayoclinic.org/discussion/waldenstroms-and-amyloidosis ... connect.mayoclinic.org/discussion/al-amyloidosis-maybe
Support Group: Chronic Pain
Posted: Jan 9 1:28pm
in reply to @asergio714 Hi there, I just pulled this off of the internet for you.Amyloidosis...
pulled this off of the internet for you.Amyloidosis ... oneAMYLOIDOSISvoice Amyloidosis is ... AA amyloidosis may be preventable if ... There's no cure for amyloidosis, ... Amyloidosis: Causes, Types, Symptoms
Support Group: Neuropathy
Posted: Jan 1 7:32am
Being a WM patient and knowing other WM and Amyloidosis patients, I concur with Colleen that...
WM patient and knowing other WM and Amyloidosis ... specialist who specializes in both WM and Amyloidosis ... Clinic, specializes in both WM and Amyloidosis