Red light therapy idiopathic neuropathy numbness tingling

@cwloeffler thank u for your input. I found one on the top of neurology teams at mass General in Boston and they have done. absolutely nothing for me ?They tell me this will be progressive overtime and we can give you medication for pain. I could not be more disappointed, even though it is idiopathic, which we know means they don’t know the cause I feel that nobody is even trying to discover the cause…it almost feels like they’re shrugging their shoulders. They even said doing the EMG and they would do it if I want it, but it would probably not change the protocol! Why would I put myself through that discomfort for no reason at all ?people in this kind of discomfort are absolutely desperate, I am just looking for some hope …unfortunately the scammers know that and take cash only for what they tell you is a cure. I wish there was somebody out there I could trust who actually had some interest in finding out what the issue was.

@cwloeffler
I had neuropathy of both legs I'm a diabetic the my provider told me I had neuropathy so I did everything I could to help it the whole thing everything you could think of come find out I had a CT scan on my legs and it wasn't neuropathy at all it was I wasn't getting any blood in my legs which was causing cramping the hold on yards pain and I started taking blood flow and it all stopped so a lot of people think they have neuropathy come and find out it's just you're not getting any blood in your lower part of your body I could get blood fine up at the top but you couldn't even find a pulse in my toe had to reach clean up to the groin to find a pulse so that isn't neuropathy that's no blood going to your things I hope this helps somebody God bless you all

I have idiopathic neuropathy in my feet. In addition to a couple of oral supplements and topicals, I've used red light therapy (double boot) for the past 4 months. I try do it three times a week for 15-20 minutes, but have missed a few sessions. So far, I can't say that it has helped much, if at all. Might my neuropathy be a little worse without the red light therapy? Who knows?

@cwloeffler
I had neuropathy of both legs I'm a diabetic the my provider told me I had neuropathy so I did everything I could to help it the whole thing everything you could think of come find out I had a CT scan on my legs and it wasn't neuropathy at all it was I wasn't getting any blood in my legs which was causing cramping the hold on yards pain and I started taking blood flow and it all stopped so a lot of people think they have neuropathy come and find out it's just you're not getting any blood in your lower part of your body I could get blood fine up at the top but you couldn't even find a pulse in my toe had to reach clean up to the groin to find a pulse so that isn't neuropathy that's no blood going to your things I hope this helps somebody God bless you all

@cwloeffler thank u for your input. I found one on the top of neurology teams at mass General in Boston and they have done. absolutely nothing for me ?They tell me this will be progressive overtime and we can give you medication for pain. I could not be more disappointed, even though it is idiopathic, which we know means they don’t know the cause I feel that nobody is even trying to discover the cause…it almost feels like they’re shrugging their shoulders. They even said doing the EMG and they would do it if I want it, but it would probably not change the protocol! Why would I put myself through that discomfort for no reason at all ?people in this kind of discomfort are absolutely desperate, I am just looking for some hope …unfortunately the scammers know that and take cash only for what they tell you is a cure. I wish there was somebody out there I could trust who actually had some interest in finding out what the issue was.

@cwloeffler thank u for your input. I found one on the top of neurology teams at mass General in Boston and they have done. absolutely nothing for me ?They tell me this will be progressive overtime and we can give you medication for pain. I could not be more disappointed, even though it is idiopathic, which we know means they don’t know the cause I feel that nobody is even trying to discover the cause…it almost feels like they’re shrugging their shoulders. They even said doing the EMG and they would do it if I want it, but it would probably not change the protocol! Why would I put myself through that discomfort for no reason at all ?people in this kind of discomfort are absolutely desperate, I am just looking for some hope …unfortunately the scammers know that and take cash only for what they tell you is a cure. I wish there was somebody out there I could trust who actually had some interest in finding out what the issue was.

@lindamaegirl
I feel as though I could have written your post Linda. I have been trying to find the root cause of my neuropathy symptoms for over 3 years. I have been sent to every specialist imaginable and multiple EMGs that say my pain, numbness and tingling is not neuropathy. The only treatment option offered is gabapentin (docs) or Tumeric (ai) Meanwhile, my symptoms continue to progress and my quality of life deteriorates. So frustrating and sad. Five years ago I walked five miles a day - today I can barely make it around the block. No hope in sight

@lindamaegirl
I feel as though I could have written your post Linda. I have been trying to find the root cause of my neuropathy symptoms for over 3 years. I have been sent to every specialist imaginable and multiple EMGs that say my pain, numbness and tingling is not neuropathy. The only treatment option offered is gabapentin (docs) or Tumeric (ai) Meanwhile, my symptoms continue to progress and my quality of life deteriorates. So frustrating and sad. Five years ago I walked five miles a day - today I can barely make it around the block. No hope in sight

@snarky101
have you had genetic testing. I have had lots of tests and they couldn’t identify what cause my neuropathy. I asked my dr for a genetic evaluation. Which is scheduled for next week. I have been researching the different types and I think that my problem.