Mayo Clinic was one of the first centers to perform congenital heart surgery in North America. As a result, it has one of the largest and oldest cohorts of adults with congenital heart disease. The Adult Congenital Heart Disease Clinic at Mayo Clinic continues to attract referrals from all over the world every year. This robust outpatient practice is ideal for patient recruitment for prospective studies. Additionally, Mayo Clinic has a unique medical records system, containing clinical data accumulated over the last half-century. This feature is invaluable for conducting retrospective patient-oriented research.
Please contact Dr. Alexander Egbe for more information about these ongoing prospective studies.
ONGOING PROSPECTIVE STUDIES
This is a randomized, double-blind, placebo-controlled study assessing the effect of pulmonary vasodilators in reducing liver stiffness after Fontan palliation.
Fontan Outcomes Study to Improve Transplant Experience and Results (FOSTER) Study
This is a multicenter study involving six Adult Congenital Heart Disease Centers in the United States.
Registry of Efficacy and Safety of Non-vitamin K Antagonist Oral Anticoagulants for Thromboembolic Prevention in Patients with Congenital Heart Disease: The NOTE Registry
This is a multicenter study involving 38 Adult Congenital Heart Disease Centers in North America, Europe and the Netherlands.
Assessment of Splanchnic Circulation in Patients with Fontan Physiology Using 4D Phase Contrast Magnetic Resonance Imaging
Noninvasive Assessment of Cardiac Output in Fontan Patient: A correlation Between Echocardiography and Cardiac MRI
Occult Arrhythmia and Thromboembolism in Adult Fontan Patients with Cardiac Implantable Electronic Devices
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