389 total results
Discussion
CBD pre-transplant?
I currently being monitored (not listed yet) by Mayo Jax for possible Lung Transplant in the future. I have NSIP with fibrosis, plus Bronchiectasis. I...
Discussion
Interesting article about ECMO and lung transplants
I found this article to be very interesting and thought others might find it of interest. https://www.newyorker.com/science/annals-of-medicine/how-ecmo-is-redefining-death
Comment
Hi, Terri. Your discussion has created a place to meet other lung transplant patients. I hope...
Discussion
Need help and advice. Where to stay for transplant review in JAX?
Coming in to Jacksonville on August 14th. Gabriel house has a waiting list.My best friend has been asked to arrive August 13th begin a 7...
Discussion
Peth test: Waiting for transplant
Has anyone had a peth test that was positive that hardly is decreasing? My husband had one positive (he was told he could drink for...
Discussion
Double Lung and a Kidney transplant, followed by a series of strokes.
My 43-year-old daughter received two lungs and a kidney last February. A few days after the procedures, she had called me, walked the hall for...
Comment
@francisanne, I would have replied sooner, but I was at Mayo Rochester for my annual evaluation....
Discussion
Transplant stories that inspire: What's yours?
Good morning everyone! As everyone in this group has seen, stories from people who have been through transplant can be inspiring to those who are...
Discussion
After liver transplant, I have developed multiple lung nodules
I had one lung nodule because of old respiratory infection before liver transplant which was 3 years ago. In 3 years the nodules have increased....
Discussion
Applying for Disability
Members have asked about Disability and the guidelines that are set that makes one eligible. Click here for the guidelines: https://www.ssa.gov/disability/professionals/bluebook/3.00-Respiratory-Adult.htm#3_07 Bronchiectasis, COPD, Asthma, Pulmonary...
Discussion
Iowa Medicaid and transplants
The financial dept is a joke. My daughter is 36 and needs a heart and double lung transplant. She moved to Iowa from Montana to...
Discussion
Living with cytomegalovirus (CMV) after liver transplant: Anyone?
Hi. Almost 1 year to the day on a full liver transplant. Things have gone really well except for a 4th trip back to AZ...