286 total results
Discussions (17)
CMV positive what now?
I tested positive for cmv on my Thursday labs. Called the 24 hour coordinator she said it was low it was 120 UI/ml. I haven’t...
Liver transplant with CMV infection
Hi, I have just completed 2nd months of liver transplant but got to know I have been infected with CMV and was on Valcyte 900...
Mycophenolate discontinued after CMV reoccurrence
Hi, I have just completed 4 months of my liver transplant and was on Tacrolimus 3 mg daily & Mycophenolate 1000 mg daily. Since CMV...
Living with cytomegalovirus (CMV) after liver transplant: Anyone?
Hi. Almost 1 year to the day on a full liver transplant. Things have gone really well except for a 4th trip back to AZ...
Anyone experience multiple CMV resurgences post kidney transplant?
Hi everyone, Anyone here who has experienced with multiple CMV resurgence? My husband got CMV about 3 months post transplant, donor was positive and he...
What is the condition of your Transplanted Organ? - Do you know?
Can this be the main cause of all the side effects we are all experiencing? Take a moment and look-up the side effects of CMV...
Anyone stop valcyte early?
I am 10 weeks post liver transplant and my wbc is low. So low that my Dr took me off valcyte two weeks early. I...
Cytomegalovirus Post Transplant - New Drug
The FDA has approved the use of Maribavir (Livtencity) to treat episodes of post transplant CMV for recipients 12 and up. This is an important...
Anyone take prednisone with tacolimus?
Because of CMV my doctor is taking me off microphenolate and replacing it with prednisone 10 mg. I also take tacrolimus and now valcyte. Any...
Transplant: BK Virus
Hi all, It's Friday night at 7:45pm and I just received an email notification from my local lab that my BK virus test came back...
How to stay positive when spouse has no energy
My husband is 17 months post kidney transplant. Lots of up and downs. This time diagnosed with cmv. No energy, he's, coping better than me....
Recurring infections post transplant!
My husband received his kidney transplant August 2024 and has been hospitalized 6 times due to pseudomonas aeruginosa, cmv, bk 5 of the 6 times,...
Transplant: Regarding Cellcept dosage, is there a test?
Hi Transplant Family! I just celebrated my one year post kidney transplant anniversary! My only challenge has been neutropenia, leukopenia (supported with Neupogen shots when...
BK Virus in Heart Recipient, going on 3 years or so
Hello All, Like many, post transplant has been a bit of a roller-coaster ride. Some ups and downs, twists and turns but it's been a...
Increased Enzymes post liver transplant for ALF
Our Son aged 6 had acute liver failure for unknown reasons and underwent liver transplant surgery on 01/09/2022. It was a living donor transplant where...
Uncontrollable high blood sugars in tacro patients
Hi. I have a daughter who was born with biliary atresia. She had the Kasai procedure done at 9 weeks old and it eventually failed...
Coping with transplant issues and honoring those who pass
In the summer of 2023 after returning from a vacation to Europe with my wife celebrating my retirement my acid reflux worsened. A local Dr....
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