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Transplants Support Group

Public Support Group
251 total results
Discussions (13)
CMV positive what now?
I tested positive for cmv on my Thursday labs. Called the 24 hour coordinator she said it was low it was 120 UI/ml. I haven’t...
Support Group: Transplants
Last active: Dec 8, 2023
Liver transplant with CMV infection
Hi, I have just completed 2nd months of liver transplant but got to know I have been infected with CMV and was on Valcyte 900...
Support Group: Transplants
Last active: Jul 11, 2024
Mycophenolate discontinued after CMV reoccurrence
Hi, I have just completed 4 months of my liver transplant and was on Tacrolimus 3 mg daily & Mycophenolate 1000 mg daily. Since CMV...
Support Group: Transplants
Last active: Aug 24, 2024
Anyone experience multiple CMV resurgences post kidney transplant?
Hi everyone, Anyone here who has experienced with multiple CMV resurgence? My husband got CMV about 3 months post transplant, donor was positive and he...
Support Group: Transplants
Last active: Dec 29, 2022
Complications post Heart Transplant
Hi everyone I wanted to see if others are haveing issues with viruses and Hemoglobin. I am 16 months post Heart transplant. I was diagnosed...
Support Group: Transplants
Last active: May 20, 2019
Anyone stop valcyte early?
I am 10 weeks post liver transplant and my wbc is low. So low that my Dr took me off valcyte two weeks early. I...
Support Group: Transplants
Last active: Dec 4, 2024
Cytomegalovirus Post Transplant - New Drug
The FDA has approved the use of Maribavir (Livtencity) to treat episodes of post transplant CMV for recipients 12 and up. This is an important...
Support Group: Transplants
Last active: Jan 14, 2022
Anyone take prednisone with tacolimus?
Because of CMV my doctor is taking me off microphenolate and replacing it with prednisone 10 mg. I also take tacrolimus and now valcyte. Any...
Support Group: Transplants
Last active: Jan 26, 2024
BK Virus in Heart Recipient, going on 3 years or so
Hello All, Like many, post transplant has been a bit of a roller-coaster ride. Some ups and downs, twists and turns but it's been a...
Support Group: Transplants
Last active: Mar 3 9:00pm
Transplant: BK Virus
Hi all, It's Friday night at 7:45pm and I just received an email notification from my local lab that my BK virus test came back...
Support Group: Transplants
Last active: Feb 1 12:19pm
Transplant: Regarding Cellcept dosage, is there a test?
Hi Transplant Family! I just celebrated my one year post kidney transplant anniversary! My only challenge has been neutropenia, leukopenia (supported with Neupogen shots when...
Support Group: Transplants
Last active: Jul 10, 2021
Uncontrollable high blood sugars in tacro patients
Hi. I have a daughter who was born with biliary atresia. She had the Kasai procedure done at 9 weeks old and it eventually failed...
Support Group: Transplants
Last active: May 30, 2019
Increased Enzymes post liver transplant for ALF
Our Son aged 6 had acute liver failure for unknown reasons and underwent liver transplant surgery on 01/09/2022. It was a living donor transplant where...
Support Group: Transplants
Last active: Nov 3, 2022