Support Groups

Transplants Support Group

Public Support Group
267 total results
Discussions (16)
CMV positive what now?
I tested positive for cmv on my Thursday labs. Called the 24 hour coordinator she said it was low it was 120 UI/ml. I haven’t...
Support Group: Transplants
Last active: Dec 8, 2023
Liver transplant with CMV infection
Hi, I have just completed 2nd months of liver transplant but got to know I have been infected with CMV and was on Valcyte 900...
Support Group: Transplants
Last active: Mar 25 8:24am
Mycophenolate discontinued after CMV reoccurrence
Hi, I have just completed 4 months of my liver transplant and was on Tacrolimus 3 mg daily & Mycophenolate 1000 mg daily. Since CMV...
Support Group: Transplants
Last active: Aug 24, 2024
Living with cytomegalovirus (CMV) after liver transplant: Anyone?
Hi. Almost 1 year to the day on a full liver transplant. Things have gone really well except for a 4th trip back to AZ...
Support Group: Transplants
Last active: Apr 19 10:38am
Anyone experience multiple CMV resurgences post kidney transplant?
Hi everyone, Anyone here who has experienced with multiple CMV resurgence? My husband got CMV about 3 months post transplant, donor was positive and he...
Support Group: Transplants
Last active: Dec 29, 2022
Anyone stop valcyte early?
I am 10 weeks post liver transplant and my wbc is low. So low that my Dr took me off valcyte two weeks early. I...
Support Group: Transplants
Last active: Dec 4, 2024
Complications post Heart Transplant
Hi everyone I wanted to see if others are haveing issues with viruses and Hemoglobin. I am 16 months post Heart transplant. I was diagnosed...
Support Group: Transplants
Last active: May 20, 2019
Cytomegalovirus Post Transplant - New Drug
The FDA has approved the use of Maribavir (Livtencity) to treat episodes of post transplant CMV for recipients 12 and up. This is an important...
Support Group: Transplants
Last active: Jan 14, 2022
How to stay positive when spouse has no energy
My husband is 17 months post kidney transplant. Lots of up and downs. This time diagnosed with cmv. No energy, he's, coping better than me....
Support Group: Transplants
Last active: Apr 10 10:31am
Anyone take prednisone with tacolimus?
Because of CMV my doctor is taking me off microphenolate and replacing it with prednisone 10 mg. I also take tacrolimus and now valcyte. Any...
Support Group: Transplants
Last active: Jan 26, 2024
Transplant: BK Virus
Hi all, It's Friday night at 7:45pm and I just received an email notification from my local lab that my BK virus test came back...
Support Group: Transplants
Last active: Feb 1 12:19pm
BK Virus in Heart Recipient, going on 3 years or so
Hello All, Like many, post transplant has been a bit of a roller-coaster ride. Some ups and downs, twists and turns but it's been a...
Support Group: Transplants
Last active: Mar 3 9:00pm
Transplant: Regarding Cellcept dosage, is there a test?
Hi Transplant Family! I just celebrated my one year post kidney transplant anniversary! My only challenge has been neutropenia, leukopenia (supported with Neupogen shots when...
Support Group: Transplants
Last active: Jul 10, 2021
Uncontrollable high blood sugars in tacro patients
Hi. I have a daughter who was born with biliary atresia. She had the Kasai procedure done at 9 weeks old and it eventually failed...
Support Group: Transplants
Last active: May 30, 2019
2020 - 2023 - Do you have Post Transplant issues - Especially 2023
Mayo Clinic Phoenix - Liver Transplant -Topic of this post: Organ Transplants with Hepatitis C and/or mismatch CMV - 2020 thru 2023 ****** Topic of...
Support Group: Transplants
Last active: 3 days ago
Increased Enzymes post liver transplant for ALF
Our Son aged 6 had acute liver failure for unknown reasons and underwent liver transplant surgery on 01/09/2022. It was a living donor transplant where...
Support Group: Transplants
Last active: Nov 3, 2022