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Prostate Cancer Support Group

Public Support Group
1,839 total results
Discussions (116)
How soon should treatment start for aggressive cancer?
Hi everyone. I have Gleason 9 prostate cancer spread to pubic bone. My local urologist was unenthusiastic when I mentioned the possibility of pursuing proton...
Support Group: Prostate Cancer
Last active: May 16, 2024
Small PSA Rise: What might be the cause?
I completed proton beam therapy October 30th 2023 for one core Gleason score 3+6 and I took my third PSA test last week having a...
Support Group: Prostate Cancer
Last active: Apr 30, 2024
PSA at 3 months after radiation: Should it be lower?
PSA about 11.0 before Proton Beam radiation. Received 44 treatments. Now 3 months later PSA is 5.81. Should be lower?
Support Group: Prostate Cancer
Last active: Apr 12, 2024
Anyone had MRI-assisted radiosurgery (MARS) treatment?
Hello. I'm looking at varius treatmnt programs for prostae cancer. I'm leaning toward proton but I wonder has anyone had the MARS treatment? Thanks.
Support Group: Prostate Cancer
Last active: Aug 3, 2024
SpaceOAR causing issues
I just spoke with my urologist today and he indicated that the hospital affiliated with his practice is no longer using SpaceOAR. Doctors in various...
Support Group: Prostate Cancer
Last active: Feb 21, 2023
PSA jumped from 2 to 2.4 after four years from treatment??
Does this jump in PSA from 2 to 2.4 a cause for alarm. Had 20 proton beam treatments nearly four years ago and it dropped...
Support Group: Prostate Cancer
Last active: Jun 5, 2024
Calypso radiation
The Nebraska Med Center is using a new radiation procedure called Calypso has anyone had experience with this how does it compare to Proton? I...
Support Group: Prostate Cancer
Last active: Oct 10, 2023
What does Mayo say about MRgRT (e.g. MRIdian)?
Do they have a Viewray or an Elekta Unity? I can't find a reference to it online if they do. So do they just try...
Support Group: Prostate Cancer
Last active: Aug 20, 2024
Prostatitis after radiation? Treatment?
Asking for info my overseas doctor sister. She has an elderly friend who received radiation treatment for PCa (I assume traditional photon radiation- I don’t...
Support Group: Prostate Cancer
Last active: Feb 21 2:49pm
Anyone have experience with Dr. Abdul-Muhsin at Mayo Phoenix?
Getting a second opinion soon and just wondering if anyone has had any experiences with Dr. Abdul-Muhsin. Looking into robotic surgery vs Proton. Any doctors...
Support Group: Prostate Cancer
Last active: Jul 14, 2024
Radiation instead of removal (surgery delayed due to illness)
I had to cancel my RP prostate surgery do to a cold. The doctors would not put me under with a cold. I have rescheduled...
Support Group: Prostate Cancer
Last active: Mar 14, 2024
Getting approval from Insurance Companies
Need any idea's, I am 63 so no Medicare. I applied for 28 Proton Treatments thru Blue Cross of Il., if I cannot get that...
Support Group: Proton Beam Therapy
Last active: Jan 4, 2023
Hyperbaric treatment to help with recovery
I had my last proton theraphy in December of 2023. I have been doing o.k. No side effects, except ED. I urinated blood clots on...
Support Group: Prostate Cancer
Last active: Apr 1 9:09pm
When does Mayo stop collecting your PSA?
I got proton treatment in 2019 at PHX, and just got my latest PSA, 0.2 down from 11.0 when I was diagnosed. For several years...
Support Group: Prostate Cancer
Last active: Jan 28 8:25am
Finished treatment. Ok to get Covid booster now?
Finished proton treatment 5 weeks ago, scheduled for follow up PSA test in about 7 weeks. Have plans for cruise two weeks from today. Is...
Support Group: Prostate Cancer
Last active: Apr 16, 2024
Treatment Path with Simultaneous Radiation, HT and Chemo
After a PSA of 37 which indicated a PSA doubling in 6 months, an MRI with two PIRAD 5 tumors in my prostate, a biopsy...
Support Group: Prostate Cancer
Last active: May 3, 2024
Help-what treatment plan has anyone selected for Perineural invasion?
Age 74, diagnosed December 2024 with Gleason 4+4=8. PSA 2.001 June 2024, PSA 2.28 4K Score September 2024. October 2024, Prostate MRI PIRADS 4 High...
Support Group: Prostate Cancer
Last active: Apr 4 6:06am
Rising PSA's after treatment - an answer
First let me reintroduce myself. I'm one of the grade 10's. An aggressive 10 at that so I have to be on top of things...
Support Group: Prostate Cancer
Last active: Jan 11, 2024
Proctitis from radiation: Is your Dr addressing this with you?
I’m seeing more reports of Proctitis or rectal bleeding . This is from RadiationDr Schol of PCRI suggests Drs use Spacor or HydroGel to protect...
Support Group: Prostate Cancer
Last active: Feb 4 2:23pm
Post therapy Testosterone
I would be interested to hear about anyone’s experience concerning Testosterone therapy after Proton radiation and hormone pills. Earlier this year (2023) I had 29...
Support Group: Prostate Cancer
Last active: Aug 13, 2024