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Discussions (171)
Has anyone done Proton without Hormonal Therapy (ADT)?
Has anyone done the 5 session Proton beam treatment without ADT? Any results?
Do I need find a medical oncologist following proton therapy?
I was diagnosed with two Gleason score 8 prostate adenocarcinomas and one with a score of 7, measuring 7 mm, 4 mm, and 1 mm...
Follow up after proton beam treatment: GREAT PSA NUMBER
After I finished my last Proton Beam treatment for Prostate Cancer Jan 21,2020, I had my first PSA test last week May 28, 2020, and...
Can Proton Beam Therapy be used when prostate cancer has spread?
Are there any cases where proton beam therapy has been used when cancer has spread outside of the prostate?Thanks,bill
First PSA 1 month post-Proton Therapy higher than I would like
So, status update and gut check. I completed 5 sessions of high-dose Proton therapy at OU Stephenson on February 9. It took a few missed...
Little to no info from Dr prior to starting Proton 1-2 weeks out
Starting proton therapy next week after a 5 months of research, consultations and finally deciding on proton therapy for my 3+4 prostate cancer. I chose...
Why do some only need 5 proton beam sessions and others more?
I am 74 years old. In February of this year, a biopsy revealed two 4mm and one 1mm adenocarcinoma in one side of my prostate,...
What were your side effects of proton therapy both during and after?
What were your side effects of proton therapy both during and after treatment? I am about to start proton therapy and am interested in members'...
Expensive meds needed after proton beam therapy for prostate cancer?
Very long insurance story, but basically we can't sign up for Medicare Part D for drug coverage until open enrollment. Just wondering if anyone can...
Why I am glad I chose Proton Therapy (for now). Good, bad and ugly.
My Treatment Decision Journey – Surgery vs Radiation (Proton Therapy Experience) Making the decision about which prostate cancer treatment to pursue was agonizing. When I...
How long after Proton Therapy can I expect to be able to travel?
Getting PT probably in 2-3 weeks. How long before I can realistically start traveling again? I am having the 5 fraction (SBRT) version of PT....
First PSA test after Proton therapy. Pre PSA: 17 Post PSA number??
My 21 treatment program finished early July. PSA of 17. 4 cores out of 12 positive...only one at 4+3. I chose to forgo hormone therapy....
Urologist not wanting to see you if you seek different provider
I have excellent care at my provider. However when diagnosed with prostrate cancer they did not offer proton radiation therapy that my primary doctor said...
Photon Stereotactic Body Radiation Therapy (SBRT)
I am looking for individuals who have had PHOTON (not proton) beam SBRT to tell me about their experiences. Thank you in advance.
Radiation treatment with endorectal balloons
Has anyone with hemorrhoids had radiation treatment (proton or photon) with endorectal balloons instead of Spaceoar gel? Experience?Thanks.
Prostate calcifications and relationship to prostate cancer diagnosis?
Fifteen years (2010) ago proton radiation at Loma Linda Children's Hospital as it was named then. As most know, proton radiation began with children having...
Orgovyx and Zytiga combined
I’m preparing for proton radiation therapy at UFHPTI (Jax). Was all nice and tidy with containment to the prostate only. Did a final PET scan...
Any good videos showing how to do Kegel exercises?
Starting 20 Prostrate Proton sessions in September and looking for tips to keep my bladder full for each treatment. No ATD/Hormone RX with treatment really...
Long-term radiation side effects post surgery: Any experiences or data
Is anyone aware of any data involving long term side effects (10+ years after radiation treatment) of post Radical Proctectomy radiation (Proton or Photon) to...
Testosterone “Supplements” After RT?
I had proton therapy @ Mayo/PHX (can’t recommend them high enough) in 2019, PSA now below 0.2. I caught Covid in late October, just now...
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