Support Groups

Prostate Cancer Support Group

Public Support Group
1,609 total results
Discussions (99)
What were your side effects of proton therapy both during and after?
What were your side effects of proton therapy both during and after treatment? I am about to start proton therapy and am interested in members'...
Support Group: Prostate Cancer
Last active: Jul 30, 2023
First PSA test after Proton therapy. Pre PSA: 17 Post PSA number??
My 21 treatment program finished early July. PSA of 17. 4 cores out of 12 positive...only one at 4+3. I chose to forgo hormone therapy....
Support Group: Prostate Cancer
Last active: Sep 27, 2023
Urologist not wanting to see you if you seek different provider
I have excellent care at my provider. However when diagnosed with prostrate cancer they did not offer proton radiation therapy that my primary doctor said...
Support Group: Prostate Cancer
Last active: Dec 22, 2023
Photon Stereotactic Body Radiation Therapy (SBRT)
I am looking for individuals who have had PHOTON (not proton) beam SBRT to tell me about their experiences. Thank you in advance.
Support Group: Prostate Cancer
Last active: Jan 6, 2023
Radiation treatment with endorectal balloons
Has anyone with hemorrhoids had radiation treatment (proton or photon) with endorectal balloons instead of Spaceoar gel? Experience?Thanks.
Support Group: Proton Beam Therapy
Last active: Jan 9 7:35am
Orgovyx and Zytiga combined
I’m preparing for proton radiation therapy at UFHPTI (Jax). Was all nice and tidy with containment to the prostate only. Did a final PET scan...
Support Group: Prostate Cancer
Last active: Aug 13 9:21am
Mayo Clinic Jacksonville RT
Does anyone know whether Mayo Jacksonville offer MRgRt (elekta Unity) and/or Proton therapy?
Support Group: Prostate Cancer
Last active: Oct 7 7:36am
Long-term radiation side effects post surgery: Any experiences or data
Is anyone aware of any data involving long term side effects (10+ years after radiation treatment) of post Radical Proctectomy radiation (Proton or Photon) to...
Support Group: Prostate Cancer
Last active: Jul 24 8:56am
Prostate Cancer Treatment Options
Diagnosed with prostate cancer with Gleason score 3+4, PSA of 12, and a single lesion approximately 4-5 mm in size, confined to the prostate. Initially...
Support Group: Prostate Cancer
Last active: May 5 6:51pm
Testosterone “Supplements” After RT?
I had proton therapy @ Mayo/PHX (can’t recommend them high enough) in 2019, PSA now below 0.2. I caught Covid in late October, just now...
Support Group: Prostate Cancer
Last active: Dec 9, 2022
RALP in Colorado Springs
Anyone have experience with UC health Urologists. Gleason 8 PSA 4.5 PET PSMA and bone scan shows no spread. 6 of 13 cores had cancer,...
Support Group: Prostate Cancer
Last active: May 18 7:17am
How soon should treatment start for aggressive cancer?
Hi everyone. I have Gleason 9 prostate cancer spread to pubic bone. My local urologist was unenthusiastic when I mentioned the possibility of pursuing proton...
Support Group: Prostate Cancer
Last active: May 16 7:41am
PSA at 3 months after radiation: Should it be lower?
PSA about 11.0 before Proton Beam radiation. Received 44 treatments. Now 3 months later PSA is 5.81. Should be lower?
Support Group: Prostate Cancer
Last active: Apr 12 10:00am
Small PSA Rise: What might be the cause?
I completed proton beam therapy October 30th 2023 for one core Gleason score 3+6 and I took my third PSA test last week having a...
Support Group: Prostate Cancer
Last active: Apr 30 5:12am
Anyone had MRI-assisted radiosurgery (MARS) treatment?
Hello. I'm looking at varius treatmnt programs for prostae cancer. I'm leaning toward proton but I wonder has anyone had the MARS treatment? Thanks.
Support Group: Prostate Cancer
Last active: Aug 3 11:08am
Calypso radiation
The Nebraska Med Center is using a new radiation procedure called Calypso has anyone had experience with this how does it compare to Proton? I...
Support Group: Prostate Cancer
Last active: Oct 10, 2023
SpaceOAR causing issues
I just spoke with my urologist today and he indicated that the hospital affiliated with his practice is no longer using SpaceOAR. Doctors in various...
Support Group: Prostate Cancer
Last active: Feb 21, 2023
PSA jumped from 2 to 2.4 after four years from treatment??
Does this jump in PSA from 2 to 2.4 a cause for alarm. Had 20 proton beam treatments nearly four years ago and it dropped...
Support Group: Prostate Cancer
Last active: Jun 5 9:19am
What does Mayo say about MRgRT (e.g. MRIdian)?
Do they have a Viewray or an Elekta Unity? I can't find a reference to it online if they do. So do they just try...
Support Group: Prostate Cancer
Last active: Aug 20 12:52pm
Anyone have experience with Dr. Abdul-Muhsin at Mayo Phoenix?
Getting a second opinion soon and just wondering if anyone has had any experiences with Dr. Abdul-Muhsin. Looking into robotic surgery vs Proton. Any doctors...
Support Group: Prostate Cancer
Last active: Jul 14 3:05pm