Support Groups

Prostate Cancer Support Group

Public Support Group
1,358 total results
Discussions (86)
Radiation treatment with endorectal balloons
Has anyone with hemorrhoids had radiation treatment (proton or photon) with endorectal balloons instead of Spaceoar gel? Experience?Thanks.
Support Group: Proton Beam Therapy
Last active: Jan 9 7:35am
Orgovyx and Zytiga combined
I’m preparing for proton radiation therapy at UFHPTI (Jax). Was all nice and tidy with containment to the prostate only. Did a final PET scan...
Support Group: Prostate Cancer
Last active: Apr 10 4:20pm
Prostate Cancer Treatment Options
Diagnosed with prostate cancer with Gleason score 3+4, PSA of 12, and a single lesion approximately 4-5 mm in size, confined to the prostate. Initially...
Support Group: Prostate Cancer
Last active: May 5 6:51pm
RALP in Colorado Springs
Anyone have experience with UC health Urologists. Gleason 8 PSA 4.5 PET PSMA and bone scan shows no spread. 6 of 13 cores had cancer,...
Support Group: Prostate Cancer
Last active: May 18 7:17am
Testosterone “Supplements” After RT?
I had proton therapy @ Mayo/PHX (can’t recommend them high enough) in 2019, PSA now below 0.2. I caught Covid in late October, just now...
Support Group: Prostate Cancer
Last active: Dec 9, 2022
How soon should treatment start for aggressive cancer?
Hi everyone. I have Gleason 9 prostate cancer spread to pubic bone. My local urologist was unenthusiastic when I mentioned the possibility of pursuing proton...
Support Group: Prostate Cancer
Last active: May 16 7:41am
PSA at 3 months after radiation: Should it be lower?
PSA about 11.0 before Proton Beam radiation. Received 44 treatments. Now 3 months later PSA is 5.81. Should be lower?
Support Group: Prostate Cancer
Last active: Apr 12 10:00am
Small PSA Rise: What might be the cause?
I completed proton beam therapy October 30th 2023 for one core Gleason score 3+6 and I took my third PSA test last week having a...
Support Group: Prostate Cancer
Last active: Apr 30 5:12am
PSA jumped from 2 to 2.4 after four years from treatment??
Does this jump in PSA from 2 to 2.4 a cause for alarm. Had 20 proton beam treatments nearly four years ago and it dropped...
Support Group: Prostate Cancer
Last active: Jun 5 9:19am
SpaceOAR causing issues
I just spoke with my urologist today and he indicated that the hospital affiliated with his practice is no longer using SpaceOAR. Doctors in various...
Support Group: Prostate Cancer
Last active: Feb 21, 2023
Calypso radiation
The Nebraska Med Center is using a new radiation procedure called Calypso has anyone had experience with this how does it compare to Proton? I...
Support Group: Prostate Cancer
Last active: Oct 10, 2023
What does Mayo say about MRgRT (e.g. MRIdian)?
Do they have a Viewray or an Elekta Unity? I can't find a reference to it online if they do. So do they just try...
Support Group: Prostate Cancer
Last active: Apr 4 6:24pm
Finished treatment. Ok to get Covid booster now?
Finished proton treatment 5 weeks ago, scheduled for follow up PSA test in about 7 weeks. Have plans for cruise two weeks from today. Is...
Support Group: Prostate Cancer
Last active: Apr 16 11:53am
Anyone have experience with Dr. Abdul-Muhsin at Mayo Phoenix?
Getting a second opinion soon and just wondering if anyone has had any experiences with Dr. Abdul-Muhsin. Looking into robotic surgery vs Proton. Any doctors...
Support Group: Prostate Cancer
Last active: Apr 8 11:08am
Radiation instead of removal (surgery delayed due to illness)
I had to cancel my RP prostate surgery do to a cold. The doctors would not put me under with a cold. I have rescheduled...
Support Group: Prostate Cancer
Last active: Mar 14 6:17pm
Getting approval from Insurance Companies
Need any idea's, I am 63 so no Medicare. I applied for 28 Proton Treatments thru Blue Cross of Il., if I cannot get that...
Support Group: Proton Beam Therapy
Last active: Jan 4, 2023
Treatment Path with Simultaneous Radiation, HT and Chemo
After a PSA of 37 which indicated a PSA doubling in 6 months, an MRI with two PIRAD 5 tumors in my prostate, a biopsy...
Support Group: Prostate Cancer
Last active: May 3 8:41pm
Proctitis from radiation: Is your Dr addressing this with you?
I’m seeing more reports of Proctitis or rectal bleeding . This is from RadiationDr Schol of PCRI suggests Drs use Spacor or HydroGel to protect...
Support Group: Prostate Cancer
Last active: Jun 27 11:51am
Protein intake and ADT
One of the side effects of ADT is muscle loss. I start ADT on May 13. Shortly after I will receive 44 fractions of proton...
Support Group: Prostate Cancer
Last active: Apr 28 3:50am
Rising PSA's after treatment - an answer
First let me reintroduce myself. I'm one of the grade 10's. An aggressive 10 at that so I have to be on top of things...
Support Group: Prostate Cancer
Last active: Jan 11 8:59am