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Prostate Cancer Support Group

Public Support Group
1,839 total results
Discussions (116)
What is the longest time after Proton therapy without ED?
I'm looking for actual experiences people had past proton therapy one goes without ED. I have asked it in other threads but it never really...
Support Group: Prostate Cancer
Last active: Aug 10, 2023
Can Proton Beam Therapy be used when prostate cancer has spread?
Are there any cases where proton beam therapy has been used when cancer has spread outside of the prostate?Thanks,bill
Support Group: Prostate Cancer
Last active: Oct 3, 2023
Follow up after proton beam treatment: GREAT PSA NUMBER
After I finished my last Proton Beam treatment for Prostate Cancer Jan 21,2020, I had my first PSA test last week May 28, 2020, and...
Support Group: Prostate Cancer
Last active: Jan 29, 2024
Proton Therapy: any long term side effects? Any regrets?
Anyone who have proton treatment for prostate cancer wanna share his experience?Any long term side effects.Any regrets?
Support Group: Prostate Cancer
Last active: Mar 5 7:47pm
Has anyone done Proton without Hormonal Therapy (ADT)?
Has anyone done the 5 session Proton beam treatment without ADT? Any results?
Support Group: Prostate Cancer
Last active: Mar 30, 2023
MRI-Guided SBRT vs Proton Therapy (5-fraction)
I have these two choices (more but these are the best two, imo). 3 out of 16 samples positive, two are G6 (3+3)(approx 10% of...
Support Group: Prostate Cancer
Last active: Feb 24, 2024
Does Mayo do PSMA pet scans, and offer proton beam radiation?
I had robotic RP performed almost 4 weeks ago - pathology determined invasion in both seminal vesicles plus one lymph node. Recommended for ADT plus...
Support Group: Prostate Cancer
Last active: Dec 3, 2023
Why do some only need 5 proton beam sessions and others more?
I am 74 years old. In February of this year, a biopsy revealed two 4mm and one 1mm adenocarcinoma in one side of my prostate,...
Support Group: Proton Beam Therapy
Last active: Mar 10 7:34am
What were your side effects of proton therapy both during and after?
What were your side effects of proton therapy both during and after treatment? I am about to start proton therapy and am interested in members'...
Support Group: Prostate Cancer
Last active: Dec 31, 2024
First PSA test after Proton therapy. Pre PSA: 17 Post PSA number??
My 21 treatment program finished early July. PSA of 17. 4 cores out of 12 positive...only one at 4+3. I chose to forgo hormone therapy....
Support Group: Prostate Cancer
Last active: Sep 27, 2023
Urologist not wanting to see you if you seek different provider
I have excellent care at my provider. However when diagnosed with prostrate cancer they did not offer proton radiation therapy that my primary doctor said...
Support Group: Prostate Cancer
Last active: Dec 22, 2023
Photon Stereotactic Body Radiation Therapy (SBRT)
I am looking for individuals who have had PHOTON (not proton) beam SBRT to tell me about their experiences. Thank you in advance.
Support Group: Prostate Cancer
Last active: Jan 6, 2023
Radiation treatment with endorectal balloons
Has anyone with hemorrhoids had radiation treatment (proton or photon) with endorectal balloons instead of Spaceoar gel? Experience?Thanks.
Support Group: Proton Beam Therapy
Last active: Jan 9, 2024
Prostate calcifications and relationship to prostate cancer diagnosis?
Fifteen years (2010) ago proton radiation at Loma Linda Children's Hospital as it was named then. As most know, proton radiation began with children having...
Support Group: Prostate Cancer
Last active: Jan 23 8:11am
Orgovyx and Zytiga combined
I’m preparing for proton radiation therapy at UFHPTI (Jax). Was all nice and tidy with containment to the prostate only. Did a final PET scan...
Support Group: Prostate Cancer
Last active: Mar 1 10:00am
Long-term radiation side effects post surgery: Any experiences or data
Is anyone aware of any data involving long term side effects (10+ years after radiation treatment) of post Radical Proctectomy radiation (Proton or Photon) to...
Support Group: Prostate Cancer
Last active: Jul 24, 2024
Testosterone “Supplements” After RT?
I had proton therapy @ Mayo/PHX (can’t recommend them high enough) in 2019, PSA now below 0.2. I caught Covid in late October, just now...
Support Group: Prostate Cancer
Last active: Dec 9, 2022
Radiation treatment options at Mayo Clinic Jacksonville?
Does anyone know whether Mayo Jacksonville offer MRgRt (elekta Unity) and/or Proton therapy?
Support Group: Prostate Cancer
Last active: Oct 7, 2024
Prostate Cancer Treatment Options
Diagnosed with prostate cancer with Gleason score 3+4, PSA of 12, and a single lesion approximately 4-5 mm in size, confined to the prostate. Initially...
Support Group: Prostate Cancer
Last active: May 5, 2024
RALP in Colorado Springs
Anyone have experience with UC health Urologists. Gleason 8 PSA 4.5 PET PSMA and bone scan shows no spread. 6 of 13 cores had cancer,...
Support Group: Prostate Cancer
Last active: May 18, 2024