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Can anyone share their experience with this procedure? How much discomfort did you experience? Also, would appreciate any insights to Proton Beam Therapy for treating prostate cancer? I am about to got through this process….
I had 39 EBRT treatments with the Spaceore incertion. The insertion was very easy and had no pain at all. The Dr. placed the gold markers in the prostate and then at the same time inserted Spaceore to "distance" the space from the prostate. When they do radiation sometimes the rectum is damaged by the radiation so this gives him a little more room to work. He uses a local anesthesia so you won't feel anything except a little "fullness" for a short while and after you will not even know it's there. The gel will dissolve on it's own in a few months.
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Thank you so much for sharing your experience relating to the marker and Spaceore placement. I am a person that has great fear of things like surgeriy… How are you now that your have completed your 39 EBRT? Did you have Proton Beam radiation?
I did not have "proton beam", I had "external beam". I am doing fine now 2mo. after finishing and my psa was <0.1 undetectable. I understand side effects may not occur for months or years after. My PC was detected last year and went on AS until Jan./2021 when it progressed to Gl 7,4+3 from Gl 6 3+3. I am also on final 2 months of ADT (Lupron) and I will certainly be glad to get off that. Doing good overall though.
I hope you are good with the decision you make, we are all different and react in different ways to treatments so good luck to you & hope you do well!
Thank you. May God bless you and your family.
Three years ago I was diagnosed with prostrate cancer with a GL of 4+4. I chose Proton beam therapy at Mayo. They inserted the carbon markers but not the SPACEOAR. They inserted into the rectum a balloon filled with liquid before each treatment. It does the same thing as SPACEOAR. The insertion of the carbon markers had some slight pain, but nothing to worry about. If your doctor says this won't hurt, ask him if they've ever had it done to them.
I chose Proton beam therapy because I felt it caused the least amount of damage to surrounding tissue, which was the case. The only issue that you can't avoid is damage of the urethra because it runs through the prostrate. I had 20 doses of radiation and after the 5th I had pain with urination, which is common. They prescribed Flomax, which I still take. I didn't have pain after taking Flomax, but the walls of the urethra have hardened so I will continue taking it to help with urination. I believe the most recent forms of photon radiation is able to reduce tissue damage by bypassing any organs.
Don't know if you will also be taking Antigen Deprivation Therapy as well. I had 18 months of Lupron, which is standard for higher risk cancer. Yours is moderate and it's more optional, but the side effects of ADT do go away with time. Given the benefits, it's worth it
Best of luck to you. Been there. Keep a good attitude.
waynen, I loved ur comment on pain. My urologist told me to just relax, I replied let me shove a tube up ur rectum and have u relax!
Thank you for sharing your experience Waynen! It helps a lot to hear from folks like you that have been there. Means a lot that you would take your time to help someone like me. May God Bless you and keep you healthy….
Being able to talk to others who made the same decision I did helped me. Happy to pass on my experience if it helps. If you want to learn more about men who chose Proton Beam Therapy, you can check out a group called the Brotherhood of the Balloon at protonbob.com.
Did it with just a Valium. Very painful and it radiates up ur penis
Hello there cdcfbw.
I will be having the markers and spaceoar inserted the first week of October at Mayo Jacksonville. My urologist suggested I do IMRT which I was trying to avoid but the Jacksonville facility doesn’t have a proton treatment yet. I will be getting 20 treatments and no ADT. The radiologist told me I didn’t have to take the ADT. I was wondering if you had a choice of radiation where you had treatment? Was it at a Mayo hospital? I’m afraid of having side effects down the road. I hope the doctors know what they are doing as I’m putting my future in their hands. I hope you well.
It is the best treatment. I had 20 treatments at Mayo Phx last January. Proton beam side effects are minimal. I had some problems with urination and flomax quickly relieved that problem. Some tiredness but that goes with it and much less than standard radiation. You are going to right place. While invasive there really no pain. Good Luvck
Has anyone experienced bleeding following the insertion of the SpaceOAR prior to Proton therapy and if so what was the source or area of bleeding from and how long did it last?
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