I’m trying to find Proton centers that offer 5 fractionated Proton for prostate cancer. Preferrably someplace warm. Thank you for any suggestions.
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Mayo Rochester, MN: not always too warm but these folks wrote the protocols, are beyond meticulous, and that’s what i felt was important. I was treated in Feb 2020 and currently no evidence of active cancer. I did develop radiation cystitis which has been difficult but i needed treatment and no evidence of cancer is what i want…good luck.
Thank you, ramsa.
Do you have advice about lodging. Or anything else. Did you have an oar. What were your total gys.
I appreciate this encouragement.
3800 Gys, 5 sessions, plus stimulation and evaluation studies. I did have the hydrogel implant and, thankfully, have no bowel symptoms.
I am able to drive from Minneapolis so had buddies take me back and forth. For the treatment sessions. Given a bunch of other health issues, I’ve stayed at several of the connected hotel over the past 4 years. I used the Broadway Plaza long stay hotel when i had to be in town for a month and it was terrific. Currently, i use the Kahler Grand for short stays; across the street from the clinic and has a bar…
Was treated for PC at Mayo Rochester in Feb/March of 2022. Five treatments of proton beam with a Space Oar done prior. Started Lupron is Sep 2021 for 14 months. Side effects took a full six months to wear off, but I feel great now. PSA < .10
As for hotels, many have a discounted Mayo rate and most have shuttles that go to Mayo. Several hotels close to Mayo have underground access to Mayo so you never have to go outside. The Kahler is one of them.
I believe Mayo Scottsdale does the 5 treatment regimen as well, but I would confirm that with them.
Thanks, I was planning the 6week treatment in sunny La Jolla. But the 5 fraction is said to have fewer side effects. Do you mind if I ask about your radiology oncologist. And how long were you there for the pre CT and Oar placement. Is the Oar something that you feel as a lump just walking around after placement.
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I used to live in Riverside so I am familiar with La Jolla.
My RA was Dr. Davis who only treats prostate cancer. Excellent doc and very personable. The SpaceOar procedure took less than 2 hours and the doc that did it has been doing them for about 5 years so he was very experienced. Never felt the SpaceOar once – not even after I slipped and fell on some ice barely an hour after the procedure. I thought I had messed everything up, but they told me it was all good – and it was. The only side effects I had were related to the Lupron. Highly recommend Mayo – Rochester.
Mayo Phoenix also does the 5-treatment protocol and is way warmer than Rochester. I did the treatment with the SpaceOar gel, and I was great and didn't know anything had been done till 140 days after my last radiation dose. I started getting some blood on my 2nd stool of the day, like a streak on one side. Not every day but maybe every 3rd or 4th day and it has been going on for about two months. The amount of blood is miniscule compared to the pints I gave as I was a regular blood donor every 56 days for years before being diagnosed with the PC. I am scheduled for my nine month follow up in early January and see where it goes from there. There is a hotel right next door to Mayo for the patients and family.
Thanks for your helpful post! Glad you had a good experience. I'm concerned about the insertion of the SpaceOar. I've heard of a few complications. By chance, do you recall who did your SpaceOar?
Thank you. I was so worried about the oar. Now I can focus on the Orgovyx.
There is a painless treatment for radiation proctitis. In case yours gets any worse. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2893353/#:~:text=Radiofrequency%20ablation%20(RFA)%20has%20been,1%20or%202%20RFA%20sessions.
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