Post-COVID Recovery & COVID-19 Support Group

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Comments (513)

Hello. I was diagnosed with POTS as Long COVID is attacking my autonomic nervous system and...

https://connect.mayoclinic.org/comment/1011730/

Discussion: Has anyone been diagnosed with an autoimmune disease after covid?

Support Group: Post-COVID Recovery & COVID-19

Posted: Feb 8, 2024

Yes in the beginning. I experienced PoTS like symptoms. Pace yourself and go slow be sure...

https://connect.mayoclinic.org/comment/684725/

Discussion: Trouble doing laundry. Anyone else struggling with simple daily tasks?

Support Group: Post-COVID Recovery & COVID-19

Posted: Feb 26, 2022

Hi Janetbender, I’m Kelly. I am sorry to hear of the essential Thrombocytosis. Blood cancer, correct?...

https://connect.mayoclinic.org/comment/1139852/

Discussion: Newest and best long covid recovery treatments?

Support Group: Post-COVID Recovery & COVID-19

Posted: Sep 11, 2024

I was helped tremendously with getting my tachycardia (POTS) under control by doing seated exercise. I...

https://connect.mayoclinic.org/comment/1051857/

Discussion: What am I actually supposed to be doing to get better?

Support Group: Post-COVID Recovery & COVID-19

Posted: Apr 16, 2024

My child with mild POTS' doctor prescribed it for them for fatigue and brain fog based...

https://connect.mayoclinic.org/comment/921118/

Discussion: Low dose naltrexone for Post-Covid Recovery experiences?

Support Group: Post-COVID Recovery & COVID-19

Posted: Aug 29, 2023

Hi, I know this is an older post, but wondering if you’re still doing well? I’m...

https://connect.mayoclinic.org/comment/1140684/

Discussion: Brain fog - ask your doctor about amantadine

Support Group: Post-COVID Recovery & COVID-19

Posted: Sep 12, 2024

Thanks Colleen, Do you know any doctors that took over for Dr. Van, at the long...

https://connect.mayoclinic.org/comment/1037152/

Discussion: POTS, Pre- or Post-COVID: Where did you find treatment and what helps?

Support Group: Post-COVID Recovery & COVID-19

Posted: Mar 20, 2024

The Naltrexone dose used for opioid addiction is 50mg. I started a low dose (2mg) two...

https://connect.mayoclinic.org/comment/843386/

Discussion: Low dose Naltrexone for POTS helping alot

Support Group: Post-COVID Recovery & COVID-19

Posted: Apr 15, 2023

I have post Covid POTS. I use a FitBit to track my heart rate and it...

https://connect.mayoclinic.org/comment/804339/

Discussion: Anyone using wearable devices to track and manage long Covid?

Support Group: Post-COVID Recovery & COVID-19

Posted: Jan 31, 2023

That's very similar to my experience. I was diagnosed with POTS and improved management of it...

https://connect.mayoclinic.org/comment/1085677/

Discussion: NIH to Open Clinical Trials for Long COVID Post Exertional Malaise

Support Group: Post-COVID Recovery & COVID-19

Posted: Jun 12, 2024

After very early Covid I have ET, essential Thrombocytosis which is a chronic leukemia. My platelet...

https://connect.mayoclinic.org/comment/1392709/

Discussion: Has anyone else experienced leg problems

Support Group: Post-COVID Recovery & COVID-19

Posted: Sep 13, 2025

I’ve been having this since my vaccine in March 2021! I never knew how to explain...

https://connect.mayoclinic.org/comment/850937/

Discussion: Post COVID: Anyone experiencing internal vibrations?

Support Group: Post-COVID Recovery & COVID-19

Posted: Apr 28, 2023

I had a tilt table test and increased my HR by 30 beats (right on the...

https://connect.mayoclinic.org/comment/1117570/

Discussion: Failed tilt table test

Support Group: Post-COVID Recovery & COVID-19

Posted: Aug 4, 2024

I have been to my PCP in person and via messaging at least once per week....

https://connect.mayoclinic.org/comment/752537/

Discussion: Continuous tummy pain post covid

Support Group: Post-COVID Recovery & COVID-19

Posted: Sep 22, 2022

I forgot thisbotherbpart no one is talking about. This change in metabolism also makes it sobwe...

https://connect.mayoclinic.org/comment/784606/

Discussion: Anyone Found Help/Explanation for Long Covid Neurological Symptoms?

Support Group: Post-COVID Recovery & COVID-19

Posted: Dec 13, 2022

Hi there. I also have anxiety issues, tachycardia & palpitations. I’m extremely sensitive to medications &...

https://connect.mayoclinic.org/comment/864028/

Discussion: What to use for anxiety with higher heart rate and a sensitive body.

Support Group: Post-COVID Recovery & COVID-19

Posted: May 21, 2023

I formerly posted my miracle turn-around. After 3 yeas of LC, I was finally given a...

https://connect.mayoclinic.org/comment/966515/

Discussion: Have you been cured of POST COVID?

Support Group: Post-COVID Recovery & COVID-19

Posted: Nov 17, 2023

My symptoms definitely are worse in the morning as I am more dehydrated. I wake up...

https://connect.mayoclinic.org/comment/758825/

Discussion: Are your heart symptoms worse in morning, better as day progresses?

Support Group: Post-COVID Recovery & COVID-19

Posted: Oct 8, 2022

Hello, Sorry and my apologies for the following grammar exc. Dealing with Long covid issues since...

https://connect.mayoclinic.org/comment/1273461/

Discussion: POTS, Pre- or Post-COVID: Where did you find treatment and what helps?

Support Group: Post-COVID Recovery & COVID-19

Posted: Apr 3, 2025

I have had facial pain. In addition, I have had extreme swelling. My teeth started falling...

https://connect.mayoclinic.org/comment/1028050/

Discussion: Facial Pain as symptom of Covid?

Support Group: Post-COVID Recovery & COVID-19

Posted: Mar 5, 2024

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