Brain fog - ask your doctor about amantadine

Posted by ericy210 @ericy210, Sep 1 6:49pm

4 months into long Covid and in clinical studies at University of Illinois Chicago and Northwestern U. Dozens of memory gaps throughout the day, like blackouts. I’d take a guitar lesson and be shown a riff. I’d have to write down each note and play it while reading. I couldn’t remember a handful of notes and I’ve been playing 20 years.
A Northwestern neurologist suggested we try amantadine. You can look it up. One thing it helps with is older people with cognitive issues. I’m 45 and healthy. After two weeks, I’m a new guy, and I had lost all hope. A had a lesson a couple days ago. He’d show me a riff and I’d play it right back and we would move on to the next part. I’m doing my job far better. I can remember my whole day. I recovered physically after three months but had been stuck on this memory issue until now.
I’m not a doctor, just a regular guy on this long journey. Just suggesting you ask your doctor. Best to all.

Interested in more discussions like this? Go to the Post-COVID Recovery & COVID-19 group.

@ericy210, I was wondering how you were doing. The last time you posted things weren't sounding so good. I see you've posted several helpful and encouraging comments today. It's great to get some good news from long haulers.

Here's some info about amantadine from Mayo Clinic:
– Amantadine (Oral Route) https://www.mayoclinic.org/drugs-supplements/amantadine-oral-route/description/drg-20061695

Except:
"Amantadine is an antidyskinetic medicine. It is used to treat Parkinson's disease and its symptoms, including dyskinesia (sudden uncontrolled movements). […] Amantadine is also an antiviral medicine. It is used to prevent or treat certain influenza (flu) infections (type A). It may be given alone or together with flu shots. Amantadine will not work for colds, other types of flu, or other virus infections."

This seems to be a promising off-label use of the drug.
– The use of amantadine in the prevention of progression and treatment of COVID-19 symptoms in patients infected with the SARS-CoV-2 virus (COV-PREVENT): Study rationale and design https://www.sciencedirect.com/science/article/pii/S1551714422000817

Eric, how long will you have to take it? Enjoy the guitar playing.

REPLY
@colleenyoung

@ericy210, I was wondering how you were doing. The last time you posted things weren't sounding so good. I see you've posted several helpful and encouraging comments today. It's great to get some good news from long haulers.

Here's some info about amantadine from Mayo Clinic:
– Amantadine (Oral Route) https://www.mayoclinic.org/drugs-supplements/amantadine-oral-route/description/drg-20061695

Except:
"Amantadine is an antidyskinetic medicine. It is used to treat Parkinson's disease and its symptoms, including dyskinesia (sudden uncontrolled movements). […] Amantadine is also an antiviral medicine. It is used to prevent or treat certain influenza (flu) infections (type A). It may be given alone or together with flu shots. Amantadine will not work for colds, other types of flu, or other virus infections."

This seems to be a promising off-label use of the drug.
– The use of amantadine in the prevention of progression and treatment of COVID-19 symptoms in patients infected with the SARS-CoV-2 virus (COV-PREVENT): Study rationale and design https://www.sciencedirect.com/science/article/pii/S1551714422000817

Eric, how long will you have to take it? Enjoy the guitar playing.

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Thank you. I got invoked in two university hospital long Covid programs. Tons of tests and doctors appointments. Five day hospitalization to do a visual EEG to assess if I was having seizures that were causing memory issues. Lots of vacation days spent on all of this. I got obsessed with googling long Covid news everyday, searching for research. I was desperate but my let Covid consume my entire life, well beyond the disease itself. So I had to take a step back from spending ALL my free time on Covid and shift some focus to things I can still enjoy within my limitations. At this very moment, I’m feeling pretty good. I know it could be bad tomorrow. So I’ll choose to do something fun with my family tonight.
FYI. I’ve checked in on some at work who have had Covid. A surprising amount say they are still having issues. When I confidentially share my experience, they say, “I thought I was the only one!” and we then chat about it. As bad as it is, I take comfort in knowing incan be of support to another long-hauler, it only to listen without dismissing their symptoms.

REPLY
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