Post-COVID Recovery & COVID-19 Support Group

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Comments (508)

I think even with your 40 point HR swing , 45-95 bpm, it would be classed...

https://connect.mayoclinic.org/comment/1141825/

Discussion: Newest and best long covid recovery treatments?

Support Group: Post-COVID Recovery & COVID-19

Posted: Sep 15, 2024

Hi @kitty2- I had looked up Dr. Tam when @christine8 replied to me. Here is the...

https://connect.mayoclinic.org/comment/1038052/

Discussion: POTS, Pre- or Post-COVID: Where did you find treatment and what helps?

Support Group: Post-COVID Recovery & COVID-19

Posted: Mar 22, 2024

Hello! It was my relative that recovered from LC after 4 years. She had severe POTS...

https://connect.mayoclinic.org/comment/1105175/

Discussion: Problems walking after covid

Support Group: Post-COVID Recovery & COVID-19

Posted: Jul 14, 2024

3 years. Finally got someone to pay attention to my blood pressure. Its all good to...

https://connect.mayoclinic.org/comment/840158/

Discussion: Are long haulers more prone to long covid after another infection?

Support Group: Post-COVID Recovery & COVID-19

Posted: Apr 9, 2023

@mjay8- Welcome to Mayo Clinic Connect. It looks as if you've had a very, very rough...

https://connect.mayoclinic.org/comment/604521/

Discussion: Any tips to help recovery for a COVID Long-Hauler?

Support Group: Post-COVID Recovery & COVID-19

Posted: May 25, 2021

That’s interesting that the midodrine exacerbated your insomnia. Thanks for sharing; it just so happens that...

https://connect.mayoclinic.org/comment/1124377/

Discussion: Failed tilt table test

Support Group: Post-COVID Recovery & COVID-19

Posted: Aug 15, 2024

Snap, caught my first infection of covid 19 over 5 years ago (with 2 further ones...

https://connect.mayoclinic.org/comment/1300648/

Discussion: blood pressure variability

Support Group: Post-COVID Recovery & COVID-19

Posted: May 9, 2025

I had very early Covid, then ET, A type of blood cancer, then became short of...

https://connect.mayoclinic.org/comment/1138985/

Discussion: Heart Palpitations

Support Group: Post-COVID Recovery & COVID-19

Posted: Sep 9, 2024

What covid clinic said that to you?? I'm horrified they would do that. New studies are...

https://connect.mayoclinic.org/comment/1371921/

Discussion: Anyone experiencing muscle atrophy/muscle wasting due to Long COVID?

Support Group: Post-COVID Recovery & COVID-19

Posted: Aug 16, 2025

I had ‘postural hypotension’ diagnosed this January on a tilt test table; I thought I had...

https://connect.mayoclinic.org/comment/1141103/

Discussion: Newest and best long covid recovery treatments?

Support Group: Post-COVID Recovery & COVID-19

Posted: Sep 13, 2024

I'd like to help, but I'm just a patient like you are. You're in the state...

https://connect.mayoclinic.org/comment/1018886/

Discussion: I feel like I’m slowly dying and nobody is helping

Support Group: Post-COVID Recovery & COVID-19

Posted: Feb 19, 2024

@beebee000 The denial said they are unable to offer me an appt in the Neurology Department...

https://connect.mayoclinic.org/comment/1479789/

Discussion: Long COVID providers/specialists?

Support Group: Post-COVID Recovery & COVID-19

Posted: Jan 11 2:39pm

AI doesn’t seem to have picked up many LC sufferers have symptoms like mine ( high...

https://connect.mayoclinic.org/comment/1329786/

Discussion: Post Covid, night time, shortness of breath and racing heart.

Support Group: Post-COVID Recovery & COVID-19

Posted: Jun 18, 2025

I was a high energy, go - go - go person. This was really hard to...

https://connect.mayoclinic.org/comment/1000723/

Discussion: I am so damn tired

Support Group: Post-COVID Recovery & COVID-19

Posted: Jan 20, 2024

Thanks for your message of hope. We all need that. I appreciate your advice about limiting...

https://connect.mayoclinic.org/comment/803240/

Discussion: How long have you had post-covid?

Support Group: Post-COVID Recovery & COVID-19

Posted: Jan 29, 2023

Hi Stuart, This is what Dr. Grach at Mayo Rochester wrote about LDN in my notes:...

https://connect.mayoclinic.org/comment/1355301/

Discussion: Low dose naltrexone for Post-Covid Recovery experiences?

Support Group: Post-COVID Recovery & COVID-19

Posted: Jul 24, 2025

@prn2016 - I've had ME/CFS since 1986 and have been on LDN for 6 years. LDN...

https://connect.mayoclinic.org/comment/845798/

Discussion: Low dose Naltrexone for POTS helping alot

Support Group: Post-COVID Recovery & COVID-19

Posted: Apr 19, 2023

I am on day two after a bilateral ultrasound guided stellate ganglion block. I have severe...

https://connect.mayoclinic.org/comment/1181272/

Discussion: Have you tried this treatment? Stellate Ganglion Block study

Support Group: Post-COVID Recovery & COVID-19

Posted: Nov 28, 2024

Not everyone has the same symptoms. My autonomic nervous system has been damaged and I have...

https://connect.mayoclinic.org/comment/955797/

Discussion: Recommendations on specific clinics for long COVID

Support Group: Post-COVID Recovery & COVID-19

Posted: Oct 29, 2023

@doug8576 I am in a similar boat. I just got back from Mayo and they did...

https://connect.mayoclinic.org/comment/1436864/

Discussion: If you have these symptoms would love your input.

Support Group: Post-COVID Recovery & COVID-19

Posted: Nov 12, 2025

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