Post-COVID Recovery & COVID-19 Support Group

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Comments (508)

I’m now in the care of the Long Covid clinic The Leading Edge Clinic headed up...

https://connect.mayoclinic.org/comment/1073366/

Discussion: Cat Scans and Post Covid follow-up

Support Group: Post-COVID Recovery & COVID-19

Posted: May 23, 2024

Years ago I caught a virus after the virus I developed chronic fatigue syndrome also syncopy...

https://connect.mayoclinic.org/comment/984746/

Discussion: Some possible answers: Diagnosed with POTS

Support Group: Post-COVID Recovery & COVID-19

Posted: Dec 22, 2023

3 years of not feeling well since covid infection. Then had horrible reaction immediately after last...

https://connect.mayoclinic.org/comment/1512070/

Discussion: Living with LPSVS (long post-COVID vaccination syndrome)

Support Group: Post-COVID Recovery & COVID-19

Posted: Feb 22 12:43pm

@truwomandi What you describe is why this is called in an "invisible illness." If you have...

https://connect.mayoclinic.org/comment/1581360/

Discussion: It seems like everytime I see a medical practitioner...

Support Group: Post-COVID Recovery & COVID-19

Posted: 5 days ago

Long COVID since 9/11/2020 - well before vaccines. Second bout of COVID March 2023. Heart racing-palpitations,...

https://connect.mayoclinic.org/comment/874930/

Discussion: COVID, Paxlovid and other treatments for COVID

Support Group: Post-COVID Recovery & COVID-19

Posted: Jun 8, 2023

I’m not sure whether this is applicable or not, but controlling the tachycardia in POTS doesn’t...

https://connect.mayoclinic.org/comment/1426487/

Discussion: autonomic dysfunction

Support Group: Post-COVID Recovery & COVID-19

Posted: Oct 30, 2025

I also have temperature dysregulation especially in the heat. Even a soak in a hot bath...

https://connect.mayoclinic.org/comment/1281539/

Discussion: Anyone else notice new heat/humidity intolerance since Long Covid?

Support Group: Post-COVID Recovery & COVID-19

Posted: Apr 14, 2025

I had very early Covid and for years was told all my odd symptoms symptoms were...

https://connect.mayoclinic.org/comment/1148995/

Discussion: Long covid rare symptoms

Support Group: Post-COVID Recovery & COVID-19

Posted: Sep 29, 2024

Hi- I realize this post is older, but if you see this I was wondering if...

https://connect.mayoclinic.org/comment/1140117/

Discussion: NAC supplement?

Support Group: Post-COVID Recovery & COVID-19

Posted: Sep 11, 2024

Well, I had the test and don't have the gene for HPP so the neurologist said...

https://connect.mayoclinic.org/comment/1579565/

Discussion: Anyone else experienced periodic episodes of paralysis? Covid related?

Support Group: Post-COVID Recovery & COVID-19

Posted: May 21 6:09am

You're describing very common symptoms for Covid long-haulers, and yes, it certainly affects the nervous system....

https://connect.mayoclinic.org/comment/758908/

Discussion: Post COVID: Anyone experiencing internal vibrations?

Support Group: Post-COVID Recovery & COVID-19

Posted: Oct 8, 2022

I have POTS and was prescribed Midrdine and Fludrocortisone. My legs felt like spaghetti and I...

https://connect.mayoclinic.org/comment/1322718/

Discussion: Has anyone else experienced leg problems

Support Group: Post-COVID Recovery & COVID-19

Posted: Jun 8, 2025

POTS - I had bad reactions to Midrodine and Fludrocortisone. I tried each separately and then...

https://connect.mayoclinic.org/comment/1365828/

Discussion: Health problems from COVID injections increasing your immunity.

Support Group: Post-COVID Recovery & COVID-19

Posted: Aug 7, 2025

Sure! She is in her 30's. She did do PT and she took meds for her...

https://connect.mayoclinic.org/comment/1105482/

Discussion: Problems walking after covid

Support Group: Post-COVID Recovery & COVID-19

Posted: Jul 14, 2024

Naturally they might. If you follow the Google doc, avoid carbs and histamine foods. Go on...

https://connect.mayoclinic.org/comment/808884/

Discussion: Amalgamation of Research - Self-Treatment

Support Group: Post-COVID Recovery & COVID-19

Posted: Feb 9, 2023

Hello. Im new to this forum, but I was wondering how and who tested you for...

https://connect.mayoclinic.org/comment/760417/

Discussion: Post COVID: Anyone experiencing internal vibrations?

Support Group: Post-COVID Recovery & COVID-19

Posted: Oct 12, 2022

I am so sorry for her and you navigating her care. Mornings are rough for me...

https://connect.mayoclinic.org/comment/754706/

Discussion: Continuous tummy pain post covid

Support Group: Post-COVID Recovery & COVID-19

Posted: Sep 28, 2022

My husband is having same problem. In 2022 had mild case of Covid. Immediately thereafter developed...

https://connect.mayoclinic.org/comment/1197384/

Discussion: How can I find a MD who will acknowledge long covid?

Support Group: Post-COVID Recovery & COVID-19

Posted: Dec 26, 2024

After Covid I’ve had fluctuating pulse rates. Lab tests didn’t diagnose the problem, but changing my...

https://connect.mayoclinic.org/comment/1182503/

Discussion: Has anyone else experienced high pulse rates after having Covid?

Support Group: Post-COVID Recovery & COVID-19

Posted: Dec 1, 2024

I use LMNT Zero Sugar Electrolytes. - Raw Unflavored Salt | Drink Mix | 30-Count individually...

https://connect.mayoclinic.org/comment/1153831/

Discussion: recommendations for electrolytes (for POTS)

Support Group: Post-COVID Recovery & COVID-19

Posted: Oct 8, 2024

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