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Polymyalgia Rheumatica (PMR) Support Group

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Weight loss with PMR
Since being dx with PMR 2 1/2 years ago I have lost weight, even on prednisone. I was on prednisone for 18 months, losing about...
Last active: Jul 7 8:31pm
Discussion
Weight loss with GCA and Polymyalgia
I have had GCA and polymyalgia for 2 years. Actemra injections every 14 day. Continual weight loss unable to gain. All blood tests are good...
Last active: Jul 15, 2024
Discussion
My story/Initial weight loss?
Did you initially lose weight easily with PMR, even on Prednisone? I started hurting in Jan 1 2026 and started steroids May 1st. I lost...
Last active: 1 day ago
Discussion
Has anyone lost weight with PMR/GCA on high dose Prednisone?
My husband was diagnosed with PMR May 2023, GCA February 2024. He lost about 10 pounds or maybe a little more between being diagnosed with...
Last active: Feb 25 9:46pm
Discussion
Ozempic for PMR?
Ozempic and other weight loss injectables. Has anyone had any experience with the many weight loss drugs that are on the market? How do these...
Last active: Jun 17, 2025
Discussion
Dx of SIBO as a result of acid reducers from use of prednisone?
Just wondered if any of you with stomachs affected by prednisone use were prescribed acid reducers and as a consequence are diagnosed with Sibo (small...
Last active: 2 days ago
Discussion
Anybody have high GGT liver results since PMR?
My labs this week show a GGT reading (liver) of 300. Normal is 5-30. Heard from my doctor and I have to go in for...
Last active: Sep 21, 2024
Discussion
PMR Experimenting with GLP-1, metformin, Jardiance Exercise
Since my last post, Experience with GLP-1, metformin, and Jardiance; and PMR Posted by Sirref (@sirref), Jun 22, 8:45 pm. I have conducted self-experiments by...
Last active: Nov 15, 2025
Discussion
After remission ... has anyone discontinued Actemra or Kevzara?
Although I don't have any problems with Actemra for PMR ... I don't seem to be able to discontinue Actemra. I'm very happy to be...
Last active: Jun 30, 2025
Discussion
Damage to adrenals? Addison's Disease?
I've been treating PMR for 3+ years. I also have an immunological deficiency that makes me very prone to infections, I've been on Methylprednisolone for...
Last active: Aug 9, 2025