Support Groups

Polymyalgia Rheumatica (PMR) Support Group

Public Support Group
3,107 total results
Discussions (134)
New to PMR and worried about Prednisone
I am a 75 year old male and I was diagnosed w poly myalgia rheumatica (pmr) two months ago while I was at Rochester while...
Last active: Sep 28, 2017
Pre-diabetes, likely due to long-term steroid use: Anyone else?
I was dismayed yesterday at a doctor’s visit, that my A1C was now is the “pre-diabetes” range. I knew this was a possible side effect...
Last active: Mar 25, 2022
How many of you are on your second flare-up?
How many people have come off of Prednisone only to have it reoccur a month later? I have had PMR for 3.5 years and was...
Last active: Oct 7, 2023
Does skin recover after prednisone?
I have been on a taper for a couple of months - now at 12.5 mg, down from 20 mg. Skin on my hands and...
Last active: Jun 10 2:39pm
Sed Rate still elevated, but pain much improved
I have tapered from 40 mg prednisone last February to a current dose of 9 mg. I’ve also been on methotrexate going on three months,...
Last active: Oct 27 11:01am
Associated migratory primarily thoracic back pain
I currently had to increase my 20 mg daily prednisone dose to 30 mg to minimize my hip pain and shoulder pain joint complaints but...
Last active: Jul 28, 2023
Giant cell arteritis:I’m afraid and would appreciate any advice
In April of 2015 I was diagnosed with polymyalgia and giant cell arteritis and was put on 60m of prednisone daily.<br />After a month my...
Last active: Nov 26, 2023
What justifies an increase in prednisone?
I have been tapering for 5 months. I just started 5mg this week. Each time I have tapered after getting below 10mg I always seemed...
Last active: Aug 8 6:17am
symptoms present but lab markers aren't high
Hi! Recently diagnosed or at least leaning in the direction of PMR around March of this year. Did like most, got on Prednisone 20mg and...
Last active: Sep 15 7:08pm
Is it PMR (and/) or Osteoarthritis?
My encounter with PMR began in November 2022, when suddenly I was beset with the pain and stiffness you are all familiar with. Even rolling...
Last active: Apr 10 2:54pm
Magnesium & PMR/GCA & digestive homeostasis
I've had to double my magnesium supplementation for "digestive homeostasis" (ie so I can poop regularly) since getting ill. I'm using magnesium glycinate & magnesium-threonate....
Last active: Mar 24, 2023
Living with someone on high-dose long-term prednisone
I’d love to hear other people’s experiences of living with someone on high-dose, long-term prednisone. My husband has PMR and a serious case of GCA...
Last active: May 10 10:01am
Prednisone Side Effects and Withdrawal Symptoms
Since it's been a couple of years since the last discussion I found about one of my problems since going on Pred---red eyes that are...
Last active: Aug 16 3:11pm
Urgent Question Regarding Prednisone Burst Dosage
Hello, I've had PMR for 2 years. After lots of struggles finally tapered to 5 mg daily. Currently on vacation hours from home, developed severe...
Last active: Aug 29, 2022
Rheumatoid Drs
I was diagnosed with PMR in August of 2023. My family doctor has been all I have seen about my disease. I was ok with...
Last active: Mar 13 6:24pm
Statins - side-effects, PMR, Giant Cell Arteritis
My husband was diagnosed with PMR May 2023, GCA (giant cell arteritis) Feb 2024. He's been on high-dose Prednisone the entire time. Started on 30...
Last active: May 26 11:42am
Non-bilateral neck pain
I have many of the classic PMR symptoms and responded immediately to a 15 mg dosage of Prednisone. I’ve been tapering since the original prescription...
Last active: Jun 27, 2023
Has anyone experienced steroid myopathy?
I’ve had what was diagnosed as PMR for 2 years. My pain and stiffness is getting worse as time goes on even though I’ve been...
Last active: Oct 6 1:36pm
PMR flare -Shoulder and neck pain..and headaches
I’ve had PMR now for a 18 months. Mostly pain in my hips, thighs, and lower back. I have been trying to taper down the...
Last active: Jun 14 3:53pm
Kevzara Side Effects?
I'm thinking of going off Prednisone and onto Kevzara. Having such bad side effects with Pred that I'm so wanting to stop taking it. The...
Last active: 4 days ago