Support Groups

Polymyalgia Rheumatica (PMR) Support Group

Public Support Group
3,994 total results
Discussions (213)
PMR savvy doctors in Portland Oregon
I moved here from Eugene and am currently seeing a rheumatologist at Providence on NE Hoyt St. Although I was diagnosed with PRM in 2008,...
Last active: Dec 2, 2024
PMR/GCA
Hello everyone, I am dealing with PMR/GCA and have experienced some brief episodes of double vision which my Ophthamologist says are inconsequential. I am slowly...
Last active: Jul 8 7:46am
Traveling body weaknes
I have been in Kevzara for 14 weeks, prednisone taper down to 1 mg. Over this time I have noticed weakness, and or, soreness in...
Last active: 1 day ago
New to methotrexate
My rheumatologist started me on methotrexate this week, given my 15-month struggle to taper on prednisone. I'm wondering what I can expect in terms of...
Last active: Feb 7 9:10am
Cortisone Injection while taking Prednisone
Hello, I have been successfully tapering from 60 mg to 5 mg of Prednisone since diagnosed with PMR in April 2024. I am contemplating having...
Last active: Feb 6 10:22am
PMR tapering
I am new to this forum. I had to cut winter vacation short and head home because of aching shoulders, hips and lower back aches...
Last active: May 7 5:55am
I have PMR, as well as a high PTH level of 117, anyone else have this?
I was diagnosed 2 months ago with PMR. I started with 15mg per day of prednisone and am now down to 10mg per day. I...
Last active: May 21, 2023
Prednisone and vertigo
Hi all. As I taper down (6.5), I'm having intermittent vertigo. Dr. Internet tells me this is yet another symptom of our dear Predni. Others...
Last active: Apr 14 12:58pm
PMR: Anyone have Stress Fractures while on prednisone?
Anyone have any experience about having stress fractures while on prednisone? I was diagnosed with PMR almost 2 years ago. Started on 15 mgs. prednisone...
Last active: Jun 30, 2022
Is This a Safe Taper as Prescribed by my doctor?
I’ve been on prednisone for about 18 months trying to taper. I was down to 7.5 mg daily in December but totally debilitated with PMR...
Last active: Feb 24 7:53am
C Reactive Protein levels while tapering
When I was first diagnosed with PMR in August 2022, my C reactive protein (CRP) level was elevated: 25 mg/L should be < 7.0 mg/L...
Last active: Dec 19, 2022
Painful Kevzara Injection
I'm a 73-year-old female in otherwise good health, but was diagnosed with PMR in August 2024. After tapering down from 20 mg/day Prednisone to zero,...
Last active: 1 day ago
PMR due to immunotherapy for cancer.
I have cancer and receive immunotherapy. Now I have PMR due to an overactive immune system. I had a couple of treatments of the immunotherapy...
Last active: Aug 27, 2024
Prednisone love/hate support group
For anyone interested in a good source of information, the Prednisone Pharmacist is prolific with making videos on a wide variety of topics about prednisone....
Last active: Feb 8 5:39pm
Aching from the most minor of exercise
Diagnosed with PMR early this year. Shoulders, elbows and knees. Started with Prednisone, tapered to 5 mg, but pain is back. I am now experiencing...
Last active: Sep 15, 2024
New to this support group.
Hi, I was diagnosed with PMR and GCA (biopsy) in 2020. Started at 60 mg prednisone (to prevent blindness!) and took me two years to...
Last active: Jun 12 10:02am
Loss of smell and taste
DOES PREDNISONE CAUSE THIS?? IT STARTED A WEEK AGO I HAVE BEEN TAPERING DOWN FROM 60MG VERY SLOWLY JUST STARTED ON 15 MG. YESTERDAY FROM...
Last active: May 20, 2020
Increasing Prednisone Dosage
I have been on this site before, but I can’t seem to find my way back to the link. Today I was told that I...
Last active: Jun 6, 2019
New to PMR
I am new to this, so apologies if I am not using this forum correctly. Diagnosed last week with PMR by my GP, diagnosis confirmed...
Last active: Jul 6 9:54pm
PMR 2ys and 4mos. Tapering to 1.5mg
PMR started Feb. 2022. Having had a flare up at 6mg (Sept. 2022 while tapering by 1mg/month) I then was put back to 15mg for...
Last active: Jun 17 1:41pm