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Polymyalgia Rheumatica (PMR) Support Group

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Discussions (270)
Can ultrasound help confirm PMR diagnosis?
Diagnosed with PMR Jan 2024. Did the 20 mg prednisone to start, tapered down to 7.5 by August when symptoms returned. Back up to 20...
Last active: Feb 7, 2025
How much Prednisone to increase?
Tapered from 10 mgm Prednisone to 7.5 mgm and it was too much. Increased to 10 mgm 10 days ago, but I'm still having pain...
Last active: Sep 1, 2024
PMR recurrence
After 15 months my PMR resolved in Aug of ‘25. Just after New Year I started having symptoms. Put off testing until recently. It’s definitely...
Last active: Mar 27 2:45pm
Anyone experienced low-grade headaches as they ended the tapering?
I've had PMR for a year. Started prednisone in January tapering up from 1 to 8 mg. My side effects were horrendous so I started...
Last active: Sep 1, 2025
Using methotrexate with PMR
My husband, 72yo, was diagnosed with PMR in March of 2024. He had rather severe symptoms...couldn't get out of chair and pain in neck and...
Last active: Mar 31 4:36pm
Weight based prednisone dosing
I was diagnosed with PMR in early December 2024. Classic symptoms. Prednisone rapidly relieved symptoms. Was initially given 40 mg but weaned quickly to 20....
Last active: Mar 7 1:36pm
Foot pain
Hello all. I haven’t been able to find another thread on this, but apologize if there is. Does anyone experience severe foot pain? One of...
Last active: May 27, 2024
PMR Dosages and Managing Symptoms
I've read through the discussions and note all the different dosages of prednisone, different lengths of time taking prednisone, plus the addition of other meds,...
Last active: Jul 27, 2024
PMR/GCA
Hello everyone, I am dealing with PMR/GCA and have experienced some brief episodes of double vision which my Ophthamologist says are inconsequential. I am slowly...
Last active: Apr 6 11:24pm
Weaning off Prednisone
Here is something I think may be strange. I am down to 1 mg. Prednisone with no stiffness or thigh/leg aches. Now, am trying to...
Last active: Aug 23, 2024
Prednisone increase amount to treat flare up
I developed a very severe case of PMR 2 years ago. I started on a fairly high dose of prednisone and responded well quickly. I...
Last active: Apr 3, 2024
Where to go for comprehensive evaluation?
Wanted to know where in the United States to go for a comprehensive evaluation for PMR? Not responding to prednisone taper and Kevzara. Looking for...
Last active: May 25, 2024
Methotrexate vs Prednisone
I have decided after researching and discussing with my Dr to ween off Prednisone while switching to methotrexate. I do not like how prednisone makes...
Last active: Aug 23, 2024
Initial Dosage of Prednisone Impacts Long Term Recovery
https://academic.oup.com/rheumatology/article/55/2/347/1822760 Higher initial dosages LOWERED the total time needed to taper to 5mg of prednisone. This study was for Giant Cell Arteritis, a closely related...
Last active: Mar 29, 2023
Mental confusion side effect from Steroids
hi. I started 20mg Prednisone/Methylpredisolone one month ago. I am noticing that my brain doesn’t function like it used to. very forgetful and the strangest...
Last active: Feb 24, 2022
Safe dose and tapering on Glucocorticoid therapy.
British Medical Journal article. This is the most informative article i have read so far and answers questions about tapering schedules, split dosing and why...
Last active: Mar 7, 2024
PMR and fingers swollen and painful
I was diagnosed with PMR June 2024. I have been tapering off prednisone since then. In August my hands began to swell, painful to make...
Last active: Nov 12, 2025
Prednisone and neuropathy
Before prednisone and PMR, I had a very, very mild case of non-diabetic neuropathy. I've been on pred for five months and in the last...
Last active: Mar 3 9:27pm
PMR and sleep apnea
Has anyone developed sleep apnea some time after being diagnosed with PMR? I recently have, and I think it's a redistribution of fat and/or weight...
Last active: Feb 12 1:49pm
New to PMR diagnosis
Hi, I am new here and just finding my way. I have some questions. I was recently diagnosed with PMR. I took the initial diagnostic...
Last active: Feb 19 4:35am