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Polymyalgia Rheumatica (PMR) Support Group

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Discussions (269)
Prednisone tapering is hard: Do complementary therapies help?
I have had PMR for 2 years ..I am down to 8 mg doing a slow taper but feel like hell ..dizziness and nausea I...
Last active: May 17, 2021
How to Slowly and Safely Taper Off Prednisone but ... no set rules.
The following link addresses prednisone withdrawal symptoms and adrenal insufficiency. There is a nice video that explains how prednisone replaces our natural cortisol -- a...
Last active: Sep 26, 2025
Anyone have discomfort or pain when tapering off prednisone?
I am currently on a 3 dose of prednisone. I have some shoulder discomfort that goes down my back on either side. The left side...
Last active: Sep 11, 2025
Prednisone tapering is challenging. What does remission feel like?
Hi all what’s remission feel like? Does it only happen when I’m completely off prednisone or can remission occur while I’m tapering? I’ve had PMR...
Last active: Sep 3, 2023
Prednisone taper: Apparently < 4mg no longer controls inflammation
Any thoughts on this. I had my 6 month check up with my PCP and was discussing my PMR. I am being treated by a...
Last active: Aug 3, 2025
Have you been able to taper prednisone with long lasting success?
I’ve had PMR for 8 months. Every time I taper the prednisone down to 5 mg the symptoms return. Getting frustrated and wonder how long...
Last active: Jun 17, 2023
Prednisone Taper from 40 mg to 7.5 in one day ‘
My doctor wants me to reduce my 40 mg of prednisone to 7.5 mg I feel like that is an awful big drop ! Has...
Last active: May 11, 2023
How did you cope with the side effects tapering off prednisone?
Has anyone experienced issues when they first started to taper? this is day 2 for me (went from 16 mg to 14 mg) and I...
Last active: Jan 4, 2025
I just started Kevzara and hope to tape of Prednisone., any advice?
I just started Kevzara and hope to tape of Prednisone. I live in a retirement home and enjoy social life around joint meals. With the...
Last active: Aug 26, 2025
Quadriceps, predinisone and alternatives
Now in a second bought of PMR and been on prednisone for 2 years. At a certain point when tapering pain and weakness in quads-...
Last active: Mar 4, 2023
Ongoing jaw pain in established GCA/PMR patient
Hello everyone. I was diagnosed with GCA and PMR in September 2025 at age 70. My presenting symptoms were mild, right side jaw pain when...
Last active: Mar 4 2:13pm
Prednisone and Antidepressants
I’m 63 and was diagnosed with PMR 4 months ago. My life is upside down. I have tapered down to 20mg Prednisone, not without a...
Last active: Jan 8, 2025
PMR and pain levels
I was diagnosed with PMR the end of October. I’m presently taking 7 mg and on a tapering of 1 mg every 2 weeks. I...
Last active: Mar 29 11:05am
Prednisone and rosacea
I've been on prednisone for a year and a half. As high as 60mg and have now managed to taper to 3.5. I was diagnosed...
Last active: Apr 5 7:32am
PMR recurrence
After 15 months my PMR resolved in Aug of ‘25. Just after New Year I started having symptoms. Put off testing until recently. It’s definitely...
Last active: Mar 27 2:45pm
GCA Symptons while on Predisone
I’m wondering what the symptoms are for GCA if you’ve been on prednisone for 2 1/2 months. I’m experiencing some symptoms, but they don’t seem...
Last active: Mar 25, 2025
Tapering too quickly?
I posted earlier, but I don't see it anywhere. I started 10/31/25 on prednisone. Landed at 25mg. Rheumatologist had me start tapering 1mg every 7-10...
Last active: Feb 9 2:19pm
I have PMR, as well as a high PTH level of 117, anyone else have this?
I was diagnosed 2 months ago with PMR. I started with 15mg per day of prednisone and am now down to 10mg per day. I...
Last active: Apr 1 8:51am
Anyone experienced low TSH reflecting thyroid issue?
Been on prednisone for PMR for a little over 2 years. Currently in a slow tapper, which is going well for the PMR. My TSH...
Last active: 2 days ago
The importance of seeing a rheumatologist
I have been dealing with PMR symptoms since November 2024. Diagnosed (?) in May 2025. Was Told by 2 PRP s that I couldn’t possibly...
Last active: 5 days ago