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Discussions (282)
Low Dose Naltrexone and Prednisone for PMR?
My doctor has prescribed LDN and I will be receiving it soon from a compounding pharmacy. I am tapering prednisone, now at 12.5 (from 20...
Random rapid heart rate tapering off of prednisone?
I started taking prednisone December 2024 20mg. I just tapered down to zero two weeks ago. I noticed about the last 3-4 months I seem...
Confused: Tapering vs cold turkey stopping prednisone
I was hoping to get some help here. I posted the topic “had pmr since Dec. 4. Was really desperate but now I find it...
Prednisone tapering is hard: Do complementary therapies help?
I have had PMR for 2 years ..I am down to 8 mg doing a slow taper but feel like hell ..dizziness and nausea I...
Anyone have discomfort or pain when tapering off prednisone?
I am currently on a 3 dose of prednisone. I have some shoulder discomfort that goes down my back on either side. The left side...
Prednisone tapering is challenging. What does remission feel like?
Hi all what’s remission feel like? Does it only happen when I’m completely off prednisone or can remission occur while I’m tapering? I’ve had PMR...
Prednisone taper: Apparently < 4mg no longer controls inflammation
Any thoughts on this. I had my 6 month check up with my PCP and was discussing my PMR. I am being treated by a...
Have you been able to taper prednisone with long lasting success?
I’ve had PMR for 8 months. Every time I taper the prednisone down to 5 mg the symptoms return. Getting frustrated and wonder how long...
Prednisone Taper from 40 mg to 7.5 in one day ‘
My doctor wants me to reduce my 40 mg of prednisone to 7.5 mg I feel like that is an awful big drop ! Has...
How did you cope with the side effects tapering off prednisone?
Has anyone experienced issues when they first started to taper? this is day 2 for me (went from 16 mg to 14 mg) and I...
I just started Kevzara and hope to tape of Prednisone., any advice?
I just started Kevzara and hope to tape of Prednisone. I live in a retirement home and enjoy social life around joint meals. With the...
Has anyone been put on Kevzara to help with the tampering down of the?
I was diagnosed with pmr in November 2025. I was recently reduced to 15 MG of prednisone, I have been down to 12.5 but with...
Quadriceps, predinisone and alternatives
Now in a second bought of PMR and been on prednisone for 2 years. At a certain point when tapering pain and weakness in quads-...
Ongoing jaw pain in established GCA/PMR patient
Hello everyone. I was diagnosed with GCA and PMR in September 2025 at age 70. My presenting symptoms were mild, right side jaw pain when...
still in pmr pain but markers are normal?
Told i had pmr, Intense pain and very high blood inflammation markers. Start prednisone, pain instantly reduced. Tapering back prednisone and all markers are normal...
Adrenal Support While Tapering
I’m in the “tough zone” at 3.5mg of prednisone, tapering half a milligram every four weeks to hopefully ease my adrenals back to life. I...
Prednisone and Antidepressants
I’m 63 and was diagnosed with PMR 4 months ago. My life is upside down. I have tapered down to 20mg Prednisone, not without a...
Doctors skeptical of PMR diagnosis
Have others with PMR had this issue, i.e, a new doctor (especially orthopedic) not wanting to acknowledge PMR as a "real" issue. Have been on...
Prednisone and post menopausal endometrial changes
I am 71 and was diagnosed with PMR about a year ago. Still tapering and down to 6mg a day and feeling well. It's been...
GCA Symptons while on Predisone
I’m wondering what the symptoms are for GCA if you’ve been on prednisone for 2 1/2 months. I’m experiencing some symptoms, but they don’t seem...
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