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Polymyalgia Rheumatica (PMR) Support Group

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Discussions (283)
PMR and Flu Vaccine
I contracted PMR October 2024, went through a very painful 2 months before getting it diagnosed in January 2025, and now successfully tapered off Prednisone...
Last active: Nov 20, 2025
Painful Kevzara Injection
I'm a 73-year-old female in otherwise good health, but was diagnosed with PMR in August 2024. After tapering down from 20 mg/day Prednisone to zero,...
Last active: Jan 23 6:02pm
Knee pain and PMR?
I was diagnosed with PMR the end of October 2024 and have been on prednisone ever since and tapering. Right now I just increased from...
Last active: Feb 9 8:58pm
After PMR and return to good health
I had PMR for twenty months and thanks to Prednisone, good doctors and advice from Mayo Connect I was able to taper my way back...
Last active: Jan 19, 2024
Tingling and burning fingers, painful wrists in the morning
I had symptoms of PMR nine years ago and rheumatologist prescribed prednison. I took this for a few months and tapered off to 2 mg....
Last active: Dec 9, 2025
How hard is it to get on Actemra (Tocilizumab) with PMR?
Has anyone had experience with getting their doctors to prescribe, AND their insurance to pay for, Actemra (Tocilizumab) when they "only" have PMR? Some background:...
Last active: Apr 2, 2023
Saying Goodbye and Thank You ALL
It's been a week since I stopped taking my last daily dose of 1/4 mg of prednisone, tapering from 20 mg for the last 18...
Last active: Jan 29, 2025
Has anyone experienced steroid myopathy?
I’ve had what was diagnosed as PMR for 2 years. My pain and stiffness is getting worse as time goes on even though I’ve been...
Last active: Oct 6, 2024
Temporal Artery Biopsy VS a color Doppler Ultrasound for GCA diagnosis
Hello. I am new to this group and recently diagnosed with PMR. My blood work (SED, CRP, CCP) are all normal. My ANA panel was...
Last active: Sep 10, 2024
New to PMR
I am new to this, so apologies if I am not using this forum correctly. Diagnosed last week with PMR by my GP, diagnosis confirmed...
Last active: Jul 6, 2025
PMR with hand/wrist pain and swollen veins?
Hi, I've been struggling with PMR since May '22. Most of my symptoms are typical though apparently unusually stubborn; I'm currently on 40mg/day prednisone and...
Last active: May 16, 2025
PMR & Statins
Recently, I’ve been trying to research out the possible connection of PMR and the use of statin drugs. Does anyone have any information they would...
Last active: Oct 15, 2025
Additional Treatment while on prednisone.
I was diagnosed in March for PMR at the age of 64. At the time I could not raise my shoulders and my hips, both...
Last active: Jun 25, 2025
Revisit the 'PMRandIL6' site _PMR needs NEW FACES of patients
THANK you for the prompt about adrenal insufficiency @dadcue ! You wrote in the Kevzara thread : " I was diagnosed with adrenal insufficiency after...
Last active: Jun 18, 2023
Upcoming surgery prevents prednisone use
I have to have major back surgery in 3 weeks (rods, fusion etc) due to severe stenosis. The doctors think my steroids were covering any...
Last active: Feb 28, 2024
Out of frying pan, into fire? PMR aftermath
Three months since tapering off. Somehow, I imagined that once off prednisone and done with PMR, I’d go back to the body I had before....
Last active: Jan 18 11:33am
When your doctor stops prescribing prednisone
So I have been on prednisone and plaq for 20 years. this is because originally they thought i had lupus. I do not. fast forward...
Last active: Apr 29, 2022
Kevzara and prednisone for almost a year-
I have been treated for PMR with prednisone since June of 2022. Was doing well on 10 mg until 2 discs blew out in November...
Last active: May 21, 2024
Tapering angst
It’s been awhile since I joined and introduced myself. I began my PMR journey July 2022 taking 15mg daily. I thought I was doing a...
Last active: Aug 5, 2023
My story may help
I think we’ve all noticed that PMR and Prednisone seem to have different stories for everyone. I believe my experience may help some of you...
Last active: Jul 6, 2023