After PMR and return to good health

Posted by alan bruce @alanbruce, Jan 25 11:23pm

I had PMR for twenty months and thanks to Prednisone, good doctors and advice from Mayo Connect I was able to taper my way back to reasonably good health. I do get colds and numerous sinus and chest congestion issues all of which seem to last much longer than before PMR. I understand PMR weakens our immune systems so I assume that our immune system may return to normal after PMR. Question: does anyone have an idea how long it normally takes to have our immune system to return to normal or will it?

Hello Alan @alanbruce, Sorry I missed your post. Glad to hear you are doing well with your PMR. You ask a great question. I'm not sure of the answer other than what I've heard from my rheumatologist that once you have been diagnosed and treated for polymyalgia rheumatica (PMR) even when it goes away after being treated it's still in your system and can come out of remission at any time. I think that might be due to lifestyle events, diets, other illnesses, etc. that might trigger it again. I've had 2 occurrences and my PMR has been in remission almost 2 years now. Have you made any changes like adding more anti-inflammatory foods to your diet?

I still get colds but not very often and I do get a flu shot every year now. I also am extra vigilant with washing my hands during the cold season doing "fist bumps" instead of hand shakes if a person has a cold ☺

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Hello, I had a serious sinus infection that lasted an entire year. Finally in July 2019 I had surgery and much better now. Funny thing is that I tested negative for all allergies and they couldn’t understand where it came from. Hindsight, I think it was attributed to my failing autoimmune system. Last week, my blood work finally showed elevation in C reactive and my RA finally feel better about diagnosis of PMR. I opted to take 800mg of ibuprofen instead of steroids. Now, granted, it doesn’t get rid of my pain as well as the steroids but my mobility has been great! I can take up to 2400mg /day but I take less. I’m able to workout and so all sorts of physical activities which is great!

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@asklizzie

Hello, I had a serious sinus infection that lasted an entire year. Finally in July 2019 I had surgery and much better now. Funny thing is that I tested negative for all allergies and they couldn’t understand where it came from. Hindsight, I think it was attributed to my failing autoimmune system. Last week, my blood work finally showed elevation in C reactive and my RA finally feel better about diagnosis of PMR. I opted to take 800mg of ibuprofen instead of steroids. Now, granted, it doesn’t get rid of my pain as well as the steroids but my mobility has been great! I can take up to 2400mg /day but I take less. I’m able to workout and so all sorts of physical activities which is great!

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@asklizzie, It's good to hear that you able to treat your PMR without the steroids and get rid of most of the pain. Have you discussed the long term use of ibuprofen with your doctor? From what I've read, regular use of ibuprofen may eventually cause kidney and liver damage, bleeding in the stomach and bowels, and increased risk of heart attack. More information from Harvard Medical School site:

Pain relief: Taking NSAIDs safely
https://www.health.harvard.edu/pain/pain-relief-taking-nsaids-safely

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