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Pancreatic Cancer Support Group

Public Support Group
951 total results
Discussions (86)
Vertigo and Folfirinox?
Has anyone experienced vertigo attacks while undergoing Folfirinox treatment? My husband has been suffering from vertigo since 10/17 which was a week after treatment #3....
Support Group: Pancreatic Cancer
Last active: May 20 9:58am
What's next after folfirinox?
My husband is on #11 (next Monday) of 12 cycles of folfirinox. Dr has said he is throwing the whole kitchen sink at him with...
Support Group: Pancreatic Cancer
Last active: May 6 10:28am
Began folfirinox treatment - have a few questions
My husband started his folfirinox regimen on Tuesday. I'm thinking that Tuesday is counted as day 1? Many thanks to all who've posted information about...
Support Group: Pancreatic Cancer
Last active: Oct 27, 2023
Modified Folfirinox chemotheraphy regimen. Is it still effective?
Hello. My husband was diagnosed in December with Stage 4 Pancreatic Adenocarcinoma Cancer. Irregular appearance of the pancreatic tail with area of hypodensity measuring 3.5...
Support Group: Pancreatic Cancer
Last active: Mar 31, 2023
Not completing Adjuvant Folfirinox after Whipple Surgery
Hi guys, After checking, the pain comes from the stomach since the stomach is moving too slow after whipple and thus some of the food...
Support Group: Pancreatic Cancer
Last active: Jan 26 9:04pm
Oxaliplatin: What are the effects of dropping it from FOLFIRINOX?
Diagnosed in Dec 2021 with stage 4 PANCAN with metastsis to liver. Started Foflornix in Jan 2022. Did 12 treatments, last one without Oxeplatin because...
Support Group: Pancreatic Cancer
Last active: Dec 4, 2023
Changing chemo regimen after 4 cycles of Folfirinox?
I'm a 74 y.o. guy diagnosed with Adenocarcinoma at the head of my pancreas (Stage 1b). My initial diagnosis and first round of Folfirinox occurred...
Support Group: Pancreatic Cancer
Last active: Aug 10, 2023
Anyone have light headedness from chemo (folfirinox)?
Anyone have light headedness from folfirinox? My husband has had to be careful for about 6 weeks now. He thinks it started when he first...
Support Group: Pancreatic Cancer
Last active: May 25 10:32am
Immune system after Folfirinox: What precautions are necessary?
My husband was told he needed to stay away from family and gatherings for 6 mo after tx . What is Mayo’s protocol ?
Support Group: Pancreatic Cancer
Last active: Jan 16, 2023
Anyone have Losartan and Folfirinox to shrink PC tumors?
Anybody out there have any experience or knowledge regarding the addition of the blood pressure drug Losartin to standard Folfirinox chemotherapy. There is some thinking...
Support Group: Pancreatic Cancer
Last active: Jul 31, 2023
Nausea when eating during Folfirinox Adjuvant Chemotherapy
Hi guys, My relative has been suffering from nausea right during eating , and he is taking a three week break during the 6th Folfirinox...
Support Group: Pancreatic Cancer
Last active: Feb 7 11:26am
Switch from Folfirinox to Gem/Abrax due to non response
Hello, my dad has had 8 rounds of Folfirinox, and initially was told that he was a candidate for surgery by both our local healthcare...
Support Group: Pancreatic Cancer
Last active: Nov 20, 2023
Had FOLFIRINOX pre Whipple surgery: Questions about chemo after
12 rounds of folfirinox taken before surgery. Whipples on 31/08/23. Now how many round of chemo helpful. Any side effects? How helpful is it?
Support Group: Pancreatic Cancer
Last active: Nov 4, 2023
Has anyone had Folfirinox stop working and had to start a new chemo dr
I have stage IV pancreatic cancer. I had a cyst which turned out to be cancerous. Long story short, I had 20 sessions of Folfirinox...
Support Group: Pancreatic Cancer
Last active: May 10 11:52am
Anyone on gemcitabine without abraxane after folfirnox and oral chemo?
My sister received 12 rounds Folfirinox and was on oral capecitabine but suffered a stroke. Aphasia is improving but low platelets prevent any anticoag administration....
Support Group: Pancreatic Cancer
Last active: Jun 28 12:59pm
Treatment for lymph nodes?
My husband's latest CT scan showed no progression of disease, except "Enlarging centrally necrotic appearing retroperitoneal lymph nodes". His CA19-9 numbers had gone up after...
Support Group: Pancreatic Cancer
Last active: Nov 8 11:05am
Radio frequency ablation in liver Mets
Hello Fam..!! Does anyone have idea about Radio frequency ablation of liver lesion in mets? How effective is that? What is the procedure? Any drawbacks?...
Support Group: Pancreatic Cancer
Last active: May 13 8:46pm
Change of Chemo
Question...brother has been on folfirinox for about 9.5 months. Recently...although no new spots...a couple of spots have grown a tiny bit. We are contemplating doing...
Support Group: Pancreatic Cancer
Last active: Mar 24 12:11pm
Anyone have experience with mRNA trials for pancreatic cancer?
Hi! I was diagnosed December 2023, had modified Whipple February 2024 with clear margins, completed 12 rounds of Folfirinox in September. CA19-9 and CT scans...
Support Group: Pancreatic Cancer
Last active: Oct 26 10:16am
Treatment delayed due to low WBC and platelets
Has any one had round 2 folfirinox delayed for 2nd time due to low WBC and low Platelets ? What can help besides medications like...
Support Group: Pancreatic Cancer
Last active: Sep 16 9:51am