Pancreatic Cancer Support Group

How would yall feel about fluctuating/rising CA-19?Diagnosed August 2022 (ca19 of 174). Surgery July 2023 (ca19 of 12 at surgery, 43 a month after surgery)....

If you’re using CREON, has anyone chef the difference in prices from CVS retail and CVC mail order? I paid $190 for a one month...

Hello all, My mom has gone through 13 sessions of Folfirinox and was found to have had a complete metabolic response. We went to Mayo...

Is this really the best? How do you handle travel for 45 treatments? Mayo is in Minnesota, about 5 hours from us in Wisconsin.

From the Mayo Clinic Health Letter, January 2021. Pancreatic cancer New treatments, better outcomes Pancreatic cancer begins in the tissues of your pancreas — an...

I was diagnosed 10/22. 12 rounds of chemo and 15 radiation treatments. I’ve been off treatment since last June. My mayo oncologist sees a couple...

Has anyone had Video visits with their oncology doctor (at Mayo Clinic) after their CT periodic CT scans? Wonder if you feel this is as...

Brand new diagnosis. We are reeling. Is Mayo in Jacksonville the best place for treatment? Do they have proton therapy? I don’t even know where...

My father was diagnosed with pancreatic cancer yesterday. His tumor is attached to 2 vessels so the surgeon doesn’t want to operate. Are there any...

Hello,…I have to ask for people’s experience and support. I am 68 years old. In June of 2022, during a routine examination (for a hernia)...

My husband is home from Whipple surgery a week ago at Rochester Mayo and doing well—no pain, ambulating well, is eating. Extremely tired, of course....

I am looking for a direct link to the information for getting a second opinion at Mayo. I cannot find it and all searching only...

Does anyone have Mayo’s current success (survival) rates for the various Stages (1 - 4) regarding Pancreatic Cancer? Or put another way, what is the...

My husband had melanoma 4 months ago. Had surgery. Ctscan today showed melanoma gone, but a spot on his pancreas. He does have diabetes. They...

Hello, my dad has had 8 rounds of Folfirinox, and initially was told that he was a candidate for surgery by both our local healthcare...

I decided to not have the surgery in which Dr Truty at Mayo was going to remove my pancreas stomach and spleen. I guess I’m...

In viewing a video from a doctor surgeon from St. Joseph’s (don’t remember the location), he mentioned that if the Cyst is larger than 5cm,...

I had mentioned having the HIPEC procedure in one of the other discussions and there was interest from others in more discussion, so here goes....

We are all in different places, both literally and figuratively, but we share so much through our virtual friendship. Wherever you're at, I wish you...

I have a 12mm IPMN: CT and MRI. I’m scheduled for EUS-FNA on Wednesday. I have symptoms now: upper back pain, stomach pain, nausea, weight...