Support Groups

Pancreatic Cancer Support Group

Public Support Group
496 total results
Discussions (40)
Creon and stomach pain
I have had my pancreas and spleen removed and have stomachache every time I eat. I have had a day on broth only and no...
Support Group: Pancreatic Cancer
Last active: Jun 22 6:04am
Can Creon be the cause of headaches and leg cramps?
Husbands last chemo was Aug. 29 yaaaaaaaaaaaaaaaaaaay He has been on Creon since his Whipple surgery in December. Has been feeling great. All of a...
Support Group: Pancreatic Cancer
Last active: Sep 13, 2023
CREON..Pancreatic enzyme supplement cost
If you’re using CREON, has anyone chef the difference in prices from CVS retail and CVC mail order? I paid $190 for a one month...
Support Group: Pancreatic Cancer
Last active: Jul 1 3:01pm
Can’t seem to locate Creon - 36000 units
All of my local pharmacies in New Mexico are unable to get Creon in 36000 units. They can get it in 6000 units. I’m supposed...
Support Group: Pancreatic Cancer
Last active: Oct 24, 2023
Creon capsule too large to swallow: Any tips?
Does anyone know if Ceon in the capsule can be inserted in a smaller capsule to make it easier to swallow? I don’t like mixing...
Support Group: Pancreatic Cancer
Last active: Oct 25, 2023
Bird picking at food after Whipple surgery and Creon
In a week I go in for my Whipple surgery. After the surgery my doctor and others on this forum have said I need to...
Support Group: Pancreatic Cancer
Last active: Jul 28 10:02pm
Possible Creon side effects: What helped you?
I have a variety of Side Effects that are all listed as possibly related to Creon, the most troublesome being gas which seems to last...
Support Group: Pancreatic Cancer
Last active: Oct 16, 2023
New Diagnosis of EPI, taking Creon: Sad and scared
I'm taking CREON with new diagnosis of severe EPI, sad about this and scared.
Support Group: Digestive Health
Last active: Aug 22, 2023
Any documented drug interactions between Keytruda and Creon?
I had lung surgery to remove a cancerous mass on my upper left lobe in June 2023. Entire lobe has been removed. In August 2023,...
Support Group: Pancreatic Cancer
Last active: Jan 19 12:02am
Still losing weight: Does timing of Creon help?
Husband is still losing weght....too much!!!! We got his Creon dialed in correctly....wondering if he took the Creon after he ate if this would help...
Support Group: Pancreatic Cancer
Last active: May 18, 2023
Anyone have stomach aches from Creon or developed SIBO?
Hi. Its Lilliejane2 again. I posted some good news about results of recent EUS, but I also have a question about ongoing abdominal discomfort and...
Support Group: Pancreatic Cancer
Last active: Aug 14, 2023
Is anyone taking Zenpep rather than Creon? If so what foods work?
I do not have diarrhea, but I have many bowel movements as my digestive system doesn't seem to get the nutrients needed. I go uup...
Support Group: Pancreatic Cancer
Last active: Sep 19 9:23am
What are other survivors doing about pancreatic enzymes replacement?
I am a 4 year survivor of pancreatic cancer. I have been on creon since my Whipple. It is very expensive. I talked to someone...
Support Group: Pancreatic Cancer
Last active: Aug 16 8:07pm
Watery stool after Whipple surgery
I had Whipple surgery done two weeks ago, I have suffered watery stool ever since. Tried Imodium 4 times a day, started CREON with each...
Support Group: Pancreatic Cancer
Last active: Feb 3 12:07pm
Is GOODRX trustworthy?
Anyone have bad experiences getting their Creon thru GOODRX?
Support Group: Pancreatic Cancer
Last active: Feb 5 12:02pm
Anyone have chronic diarrhea while on digestive enzymes?
Has anyone experienced chronic diarrhea using digestive enzymes like Zenpep or Creon? If so, did adjusting the dosage help?
Support Group: Pancreatic Cancer
Last active: Aug 17 10:27am
How to deal with stomach problems
My wife is stage IV, diagnosed in July 2023, she has endured 10 chemo sessions. Her C19 went form 880 to 1200 and is now...
Support Group: Pancreatic Cancer
Last active: Dec 20, 2023
Lots of oil when going to the bathroom?
Husband had Whipple surgery in December 2022 followed by chemo for 6 months. He's doing well..........the only problem is the huge amount of oil when...
Support Group: Pancreatic Cancer
Last active: Sep 24, 2023
Struggling to eat with pancreatic cancer: How do you manage?
I am really struggling to eat anything. I take creon 24000 unt with everything that I eat but constantly have stomach pain and diarrhea. What...
Support Group: Pancreatic Cancer
Last active: Apr 20, 2020
Color me confused (2 questions)
Background: diagnosis = metastatic adenocarcinoma of the pancreas; Now receiving modified "rescue" Folfurinox regimen; following a course of G-A that had to be adjusted in...
Support Group: Pancreatic Cancer
Last active: Jul 5, 2023