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Pancreatic Cancer Support Group

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Discussions (29)
CREON..Pancreatic enzyme supplement cost
If you’re using CREON, has anyone chef the difference in prices from CVS retail and CVC mail order? I paid $190 for a one month...
Support Group: Pancreatic Cancer
Last active: Apr 3, 2025
Problems with enzymes and supplements
I am back again, 2 year survivor of Whipple. Have been unable to take Creon so started Metagentics spectra zyme pan 9x pancreatic enzyme. Help!!!...
Support Group: Pancreatic Cancer
Last active: Apr 8, 2023
Anyone tried over the counter enzymes to help digest fat post whipple?
I had whipple surgery 3 months ago. Fortunately, I was able to keep 1/2 my pancreas. I continue to have digestive issues (frequent trips to...
Support Group: Pancreatic Cancer
Last active: Nov 29, 2024
Expert help with proper dosing of Zenpep enzymes after Whipple
My husband had Whipple surgery in Feb.,2023 and completed Chemo at the end of September. He is still struggling with determining the proper dosage of...
Support Group: Pancreatic Cancer
Last active: Apr 28, 2024
Creon capsule too large to swallow: Any tips?
Does anyone know if Ceon in the capsule can be inserted in a smaller capsule to make it easier to swallow? I don’t like mixing...
Support Group: Pancreatic Cancer
Last active: Oct 25, 2023
Creon and stomach pain
I have had my pancreas and spleen removed and have stomachache every time I eat. I have had a day on broth only and no...
Support Group: Pancreatic Cancer
Last active: Nov 18, 2024
Pancreatic enzymes: They are expensive, any suggestions?
I had the Whipple procedure almost 3 years ago. I had no cancer. I read people who had this surgery should take creon or similar...
Support Group: Pancreatic Cancer
Last active: Jun 7, 2025
Liver mets and liver blood tests for pancreatic cancer recurrence?
Hello everyone, I had a question for those that have pancreatic cancer recurrence in the liver following the Whipple surgery. Upon discovery of the liver...
Support Group: Pancreatic Cancer
Last active: Jun 12, 2022
What are other survivors doing about pancreatic enzymes replacement?
I am a 4 year survivor of pancreatic cancer. I have been on creon since my Whipple. It is very expensive. I talked to someone...
Support Group: Pancreatic Cancer
Last active: Dec 7, 2025
If you had Whipple surgery, what are you eating or not eating?
I am looking for help with diet after the whipple. I had the whipple 8 months ago. I am taking enzymes with meals and snacks...
Support Group: Pancreatic Cancer
Last active: Jun 5, 2023
Anyone have chronic diarrhea while on digestive enzymes?
Has anyone experienced chronic diarrhea using digestive enzymes like Zenpep or Creon? If so, did adjusting the dosage help?
Support Group: Pancreatic Cancer
Last active: Jul 8, 2025
One Year Post-TP: Reflecting on the Journey and seeking support
A year ago, I underwent a total pancreatectomy (TP) at the Mayo Clinic, performed by Dr. Truty. My spleen and gall bladder were also removed...
Support Group: Pancreatic Cancer
Last active: Jun 16, 2025
IPMNs, concerned for diffuse pancreatic parenchymal atrophy
Hi,I almost feel whinny posting here. I don't have pancreatic cancer but I am looking for insight into pancreas changes. I have chronic hepatitis thought...
Support Group: Pancreatic Cancer
Last active: Apr 15, 2025
Any documented drug interactions between Keytruda and Creon?
I had lung surgery to remove a cancerous mass on my upper left lobe in June 2023. Entire lobe has been removed. In August 2023,...
Support Group: Pancreatic Cancer
Last active: Jan 19, 2024
Pancreas removal
I’m a 69-year-old woman and I’ve been living with chronic pancreatitis for around seven years. I suffer from regular, painful attacks which I currently manage...
Support Group: Pancreatic Cancer
Last active: Aug 15, 2025
Does anyone have chronic diarrhea?
My husband was diagnosed with acinar cell pancreatic cancer of the head Oct 11 2024 he started with diarrhea prior to diagnosis May 2024 with...
Support Group: Pancreatic Cancer
Last active: Jan 9 12:00pm
In hospital had infection in pancreas
Has anyone had an infection in the pancreas? My dr took more out no cancer 2 year survivor then he attached duct from pancreas to...
Support Group: Pancreatic Cancer
Last active: Jun 8, 2023
Diarrhea tips?
Hello all, My mom (74/F) was diagnosed with pancreatic cancer a couple months ago. She has started chemo and is fighting hard. Her quality of...
Support Group: Pancreatic Cancer
Last active: Dec 25, 2022
Problems with Dehydration: What do you do to keep hydrated?
A two year whipple survivor having problems with enzymes. Ceron. Because of my issues, bloating, bowel dumping, stomach pain. I become dehydrated and have to...
Support Group: Pancreatic Cancer
Last active: Jul 6, 2023