Pancreatic Cancer Support Group

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Comments (491)

Hello! My name is Dale, I was diagnosed with pancreatic cancer in December 2023. My cancer...

https://connect.mayoclinic.org/comment/1026603/

Discussion: Pancreatic Cancer Group: Introduce yourself and connect with others

Support Group: Pancreatic Cancer

Posted: Mar 3 9:11am

Your daughter has in the tumor what is known as a somatic BRCA mutation. They occur...

https://connect.mayoclinic.org/comment/1067175/

Discussion: BRCA mutation in tumor but not in patient

Support Group: Pancreatic Cancer

Posted: May 13 10:53am

I think it was RevMed that had a section about expanded access on their web page...

https://connect.mayoclinic.org/comment/1080767/

Discussion: Pancreatic Cancer Group: Introduce yourself and connect with others

Support Group: Pancreatic Cancer

Posted: Jun 4 12:53pm

You are a model of what can happen with the BRCA gene, but none of this...

https://connect.mayoclinic.org/comment/1099024/

Discussion: What exactly is NED (no evidence of disease)?

Support Group: Pancreatic Cancer

Posted: Jul 4 8:41am

My husband was diagnosed with mass on pancreas 1-1/2 yrs ago. We were told to leave...

https://connect.mayoclinic.org/comment/1087278/

Discussion: Tumour on pancreas 6cm, tumour markers 120,000: Need advice

Support Group: Pancreatic Cancer

Posted: Jun 15 9:44am

stageivsurvivor, Was your cancer pancreatic cancer? Also, was it ductal cell pancreatic cancer or acinar cell...

https://connect.mayoclinic.org/comment/1113792/

Discussion: Anyone with BRCA 2 mutation taking Olaparib?

Support Group: Pancreatic Cancer

Posted: Jul 29 7:55am

If I may ask, how is this different from SBRT? SBRT has been recommended S a...

https://connect.mayoclinic.org/comment/1114969/

Discussion: Options for unresectable tumor with SMV involvement

Support Group: Pancreatic Cancer

Posted: Jul 31 6:12am

Hello markymarkfl, Thank you for the information you provide to all of us, it is so...

https://connect.mayoclinic.org/comment/1089523/

Discussion: Pancreatic Cancer Group: Introduce yourself and connect with others

Support Group: Pancreatic Cancer

Posted: Jun 19 6:43am

@denip , You're very welcome. Too late to edit my initial comment, but there's a typo...

https://connect.mayoclinic.org/comment/939905/

Discussion: CA 19-9 Levels - What is High Enough to Cause Concern for Prognosis?

Support Group: Pancreatic Cancer

Posted: Oct 1, 2023

I appreciate both comments. I also had y90 to my liver and it worked extremely well....

https://connect.mayoclinic.org/comment/1092243/

Discussion: Questions about SBRT radiation therapy targeting liver mets

Support Group: Pancreatic Cancer

Posted: Jun 23 7:58am

After I completed standard of care chemotherapy which was Folfirinox, the concern was what could be...

https://connect.mayoclinic.org/comment/841558/

Discussion: 12 months free of disease with clear CT scans: What is next?

Support Group: Pancreatic Cancer

Posted: Apr 11, 2023

Hi i am still hanging on and getting ready to start a clinical trial. Its a...

https://connect.mayoclinic.org/comment/676385/

Discussion: Talking Frankly about Living with Advanced Cancer

Support Group: Cancer

Posted: Jan 30, 2022

I went on a clinical trial specifically for my rare genotype and did well for 2...

https://connect.mayoclinic.org/comment/680730/

Discussion: CA 19-9 and pancreatic cancer: What do the numbers mean?

Support Group: Pancreatic Cancer

Posted: Feb 14, 2022

My platelets have dropped recently ,also on Folfurinox.Not too low to stop chemo though.I was wondering...

https://connect.mayoclinic.org/comment/869684/

Discussion: Low Platelets: Anyone else go through this?

Support Group: Pancreatic Cancer

Posted: May 31, 2023

Drs think its up to them when we leave here ,guess what ,its not.We don't have...

https://connect.mayoclinic.org/comment/875287/

Discussion: Struggling with my MD's style

Support Group: Pancreatic Cancer

Posted: Jun 9, 2023

I am doing well. My husband and I went in a 6000 mile driving trip to...

https://connect.mayoclinic.org/comment/166006/

Discussion: Talking Frankly about Living with Advanced Cancer

Support Group: Cancer

Posted: Sep 13, 2018

November 2022, at the Society for Immunotherapy of Cancer (SITC) 37th Annual Meeting, Oncolytics reported interim...

https://connect.mayoclinic.org/comment/893295/

Discussion: Help Finding Clinical Trials

Support Group: Pancreatic Cancer

Posted: Jul 10, 2023

https://baptisthealth.net/baptist-health-news/clinical-trial-at-miami-cancer-institute-helping-extend-survival-for-pancreatic-cancer-patients Here a new clinical trial I think in phase 3

https://connect.mayoclinic.org/comment/868100/

Discussion: Help Finding Clinical Trials

Support Group: Pancreatic Cancer

Posted: May 28, 2023

Many of you mentioned the role of the pharmacist as part of your care team and...

https://connect.mayoclinic.org/comment/196566/

Discussion: Overmedication with cancer and other conditions

Support Group: Head & Neck Cancer

Posted: Apr 19, 2018

Hi, I’m a 59 year and have pancreatic cancer. I also went to Dana Faber in...

https://connect.mayoclinic.org/comment/797730/

Discussion: Pancreatic cancer: How do I decide which hospital is best?

Support Group: Pancreatic Cancer

Posted: Jan 16, 2023

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