Pancreatic Cancer Support Group

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Comments (373)

Hi @hopeful33250, what kind of cysts did you have? Were they IPMN's? I had a CT...

https://connect.mayoclinic.org/comment/1231139/

Discussion: Cyst on Pancreas?

Support Group: Pancreatic Cancer

Posted: Feb 6 9:36pm

My husband's first two rounds of Folfironox created minimal issues. He started having diarrhea after the...

https://connect.mayoclinic.org/comment/849285/

Discussion: First chemo tomorrow--tips, suggestions, cautions?

Support Group: Pancreatic Cancer

Posted: Apr 25, 2023

Live alone, 62, can’t drive at all anymore because of all the meds so I’m stuck...

https://connect.mayoclinic.org/comment/954971/

Discussion: Anyone on Gemcitabine with Abraxane? How long? Effective?

Support Group: Pancreatic Cancer

Posted: Oct 27, 2023

At the time of my initial diagnosis, I had a stent, biopsy, and ERCP. I knew...

https://connect.mayoclinic.org/comment/901960/

Discussion: Post Whipple Surgery incontinence - Underwear?

Support Group: Pancreatic Cancer

Posted: Jul 25, 2023

I read all the post's on Pancreatic Cancer and treatments etc. Even though my cyst was...

https://connect.mayoclinic.org/comment/336178/

Discussion: Cyst on Pancreas?

Support Group: Pancreatic Cancer

Posted: Feb 26, 2021

My husband has been taking creon since last June. We always assumed the diarrhea was due...

https://connect.mayoclinic.org/comment/208588/

Discussion: What are other survivors doing about pancreatic enzymes replacement?

Support Group: Pancreatic Cancer

Posted: Apr 19, 2020

The chemo regimen he is receiving is Nalirifox if it contains Onivyde. This drug is micro...

https://connect.mayoclinic.org/comment/1080034/

Discussion: Anyone have experience with liver lesions from pancreatic cancer?

Support Group: Pancreatic Cancer

Posted: Jun 3, 2024

Thank you all for your continued comments and insights. Since the Standard of Care for Pancreatic...

https://connect.mayoclinic.org/comment/856470/

Discussion: Pancreatic Cancer - Has anyone had experience with Metabolic Oncology?

Support Group: Pancreatic Cancer

Posted: May 8, 2023

Thanks for asking. He's not doing very well - he's been re-hospitalized twice for serious GI...

https://connect.mayoclinic.org/comment/751281/

Discussion: Foods after Pancreatectomy/Splenectomy

Support Group: Pancreatic Cancer

Posted: Sep 18, 2022

@fassbinder EXACTLY! We still have been trying to get to a pancreatic or at least a...

https://connect.mayoclinic.org/comment/208593/

Discussion: What are other survivors doing about pancreatic enzymes replacement?

Support Group: Pancreatic Cancer

Posted: Apr 20, 2020

Hang in there! It sounds overwhelming, and frankly it can be, but you and he can...

https://connect.mayoclinic.org/comment/920473/

Discussion: He starts chemo: Now what do I expect?

Support Group: Pancreatic Cancer

Posted: Aug 28, 2023

I found an interesting article about overuse/abuse of Imodium here: https://www.addictioncenter.com/drugs/over-the-counter-drugs/loperamide-addiction-abuse/ Some Fecal Incontinence treatment options...

https://connect.mayoclinic.org/comment/892228/

Discussion: Post Whipple Surgery incontinence - Underwear?

Support Group: Pancreatic Cancer

Posted: Jul 8, 2023

Colleen, thanks for the response. My wife currently receives two chemo drugs, Fulfironox and Oxciliplatin. At...

https://connect.mayoclinic.org/comment/258574/

Discussion: Inoperable Pancreatic Cancer: What treatment options are there?

Support Group: Pancreatic Cancer

Posted: Apr 13, 2019

Hi everyone, I have been diagnosed with mixed-duct IPMN, main duct dilated to 1.2 cm, and...

https://connect.mayoclinic.org/comment/1104909/

Discussion: IPMN 2 cm mass head of pancreas caught EARLY.......

Support Group: Pancreatic Cancer

Posted: Jul 13, 2024

@buckslayer sorry to hear about your husband. My wife had an Appleby as well as other...

https://connect.mayoclinic.org/comment/326769/

Discussion: Digestive issues and pancreatic cancer

Support Group: Pancreatic Cancer

Posted: Feb 11, 2021

Hello, Yes, I have a dilated pancreatic duct of about 2.5 and have had it for...

https://connect.mayoclinic.org/comment/848269/

Discussion: Dilated pancreatic duct: Should I get a second opinion?

Support Group: Pancreatic Cancer

Posted: Apr 23, 2023

Papain contains only the single enzyme papain which is a protease enzyme. It is specific to...

https://connect.mayoclinic.org/comment/905503/

Discussion: What are other survivors doing about pancreatic enzymes replacement?

Support Group: Pancreatic Cancer

Posted: Aug 1, 2023

It's been 8 months. Thank you for the informative reply. I thought Immodium was only taken...

https://connect.mayoclinic.org/comment/891554/

Discussion: Post Whipple Surgery incontinence - Underwear?

Support Group: Pancreatic Cancer

Posted: Jul 7, 2023

Thank you for all this information. How are you handling things so far? Who else have...

https://connect.mayoclinic.org/comment/887107/

Discussion: Stage IV

Support Group: Pancreatic Cancer

Posted: Jun 29, 2023

@jqleck Your wife's situation has parallels to my wife. 3 years into treatment my wife started...

https://connect.mayoclinic.org/comment/718718/

Discussion: CA 19-9 and pancreatic cancer: What do the numbers mean?

Support Group: Pancreatic Cancer

Posted: Jun 18, 2022

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