Support Groups

Osteoporosis & Bone Health Support Group

Lock icon Public Support Group
9,617 total results
Discussion
Is it common to switch from one osteoporosis drug to another?
I honestly thought most people worked with their physician to choose a drug that felt right for their circumstances, and stuck with it. I also...
Last active: Feb 5 12:23pm
Discussion
Anyone else being treated for Osteoporosis and Scoliosis?
Greetings: I just finished the 12 month course of Evenity without any serious problems. Other than occasional soreness at the injection sites on my arms,...
Last active: May 13, 2023
Discussion
Reclast Risk of Atrial Fibrillation with Mitral Valve Regurgitation
I'm 64 and in good health except for mild (1+) mitral and (1 or 1-2+) tricuspid valve regurgitation last checked two years ago . I...
Last active: May 7 1:51pm
Discussion
Recently diagnosed with severe osteoporosis of lumbar spine -3.4 T sco
I just saw an endocrinologist (referred by my OB/GYN) and all of my bloodwork came out within normal ranges. Although she did not test my...
Last active: Apr 1, 2024
Discussion
Osteoporosis meds and mast cell activation syndrome
I have mast cell activation syndrome and my metabolic bone doctor at Hospital for Special Surgery in NYC wants me to take Evenity and Tymlos...
Last active: Jul 2 9:05pm
Discussion
Choosing Our Poison
Our bodies are very complex entities. The drugs used to treat Osteoporosis can also affect other functions but that often seems to be ignored or...
Last active: Jun 29, 2024
Discussion
Bone meds prior to spinal fusion
I had seen a doctor recommended by my PCP to explore injectables - spine is -1.9 and hip is -2.3, worse than scan two years...
Last active: Jan 12, 2023
Discussion
Taking Tymlos but Forteo recommended
Has anyone switched from Tymlos to Forteo and had fewer side effects? I went to a new endocrinologist today. She said that in her experience,...
Last active: Oct 23, 2024
Discussion
Tymlos or Forteo to treat osteoporosis with underlying adult HPP
Anyone have experience taking Forteo or Tymlos for osteoporosis with underlying Adult HPP? I am in a unique situation. I have adult HPP (confirmed with...
Last active: May 25 6:45am
Discussion
Confused about my TBS score
Hello all-- I finally read my FULL results of my Dexa last November (doctor just said I had severe osteoporosis and scheduled reclast infusion) and...
Last active: Mar 10 8:40pm