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Osteoporosis & Bone Health Support Group

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Discussions (343)
Anyone else being treated for Osteoporosis and Scoliosis?
Greetings: I just finished the 12 month course of Evenity without any serious problems. Other than occasional soreness at the injection sites on my arms,...
Last active: May 13, 2023
Reclast Risk of Atrial Fibrillation with Mitral Valve Regurgitation
I'm 64 and in good health except for mild (1+) mitral and (1 or 1-2+) tricuspid valve regurgitation last checked two years ago . I...
Last active: May 7 1:51pm
Recently diagnosed with severe osteoporosis of lumbar spine -3.4 T sco
I just saw an endocrinologist (referred by my OB/GYN) and all of my bloodwork came out within normal ranges. Although she did not test my...
Last active: Apr 1, 2024
Choosing Our Poison
Our bodies are very complex entities. The drugs used to treat Osteoporosis can also affect other functions but that often seems to be ignored or...
Last active: Jun 29, 2024
Osteoporosis meds and mast cell activation syndrome
I have mast cell activation syndrome and my metabolic bone doctor at Hospital for Special Surgery in NYC wants me to take Evenity and Tymlos...
Last active: Jul 2 9:05pm
Bone meds prior to spinal fusion
I had seen a doctor recommended by my PCP to explore injectables - spine is -1.9 and hip is -2.3, worse than scan two years...
Last active: Jan 12, 2023
Taking Tymlos but Forteo recommended
Has anyone switched from Tymlos to Forteo and had fewer side effects? I went to a new endocrinologist today. She said that in her experience,...
Last active: Oct 23, 2024
Tymlos or Forteo to treat osteoporosis with underlying adult HPP
Anyone have experience taking Forteo or Tymlos for osteoporosis with underlying Adult HPP? I am in a unique situation. I have adult HPP (confirmed with...
Last active: May 25 6:45am
Confused about my TBS score
Hello all-- I finally read my FULL results of my Dexa last November (doctor just said I had severe osteoporosis and scheduled reclast infusion) and...
Last active: Mar 10 8:40pm
CTX Testing Question
All, I asked my new doc about having a CTX done since I am entering the post-Evenity (and Tymlos) phase of my treatment plan. Since...
Last active: Jul 25, 2024
Update after seeing Stanford Bone Clinic endocrinologist
Someone asked me for an update after I had seen an endocrinologist affiliated with the Stanford Bone Clinic. I had my appointment in late April...
Last active: Jun 3 10:20am
Which specialist is best-Rheumatologist, Endocrinology, or Physiology?
I am beginning this Osteoporosis journey. 2 yrs ago the Rheumatologist had some labwork done and a couple x-rays and said that Evenity would be...
Last active: Jun 20, 2023
High calcium score in 24 hr urine test. What's next for testing?
I have severe osteoporosis, with lumbar spine DEXA of -3.9, which is 10.7% worse than 2.5 yrs ago when it was -3.2. My endocrinologist ordered...
Last active: 6 days ago
Reclast infusion today
I just wanted to let people know about my recent Reclast infusion. I hydrated for a couple of days before the infusion with water and...
Last active: Apr 14 1:45pm
For those with mild osteopenia but multiple fragility fractures
My dexascans show mild osteopenia ... -lumbar spine -2.1, total hip -2.0 and femoral neck at -2.2. I am 69 but seem to have lost...
Last active: Jun 23, 2024
First Evinity Shot! 7/17
Hello Everyone! I just had my first shot of Evenity on 7/17 I wanted to write down my first shot experience. I dint have to...
Last active: Jul 20 9:27pm
Supplements with Tymlos or Forteo
I tried for years to improve my bones naturally with diet and exercise. Then I broke 4 bones in 13 months. I tried the full...
Last active: Aug 19, 2024
DEXA results after mostly partial Tymlos dosing
A few people have asked me to post my DEXA results since I did not do a full dose of Tymlos (except for a few...
Last active: Jun 6, 2024
Those with Vertebral Fractures - Please share your story and advice
I am 74 with severe osteoporosis, worse in my spine (T-score -4.1). I believe I recently developed a vertebral fracture and will see my PCP...
Last active: Oct 15, 2024
How long can a person hold the gains from an anabolic plus reclast?
So, I had a very shocking and discouraging comment from my endo about how long a person generally holds gains from drug therapy for OP,...
Last active: Apr 9 6:03am