Support Groups

Osteoporosis & Bone Health Support Group

Public Support Group
9,012 total results
Discussions (311)
Timing of Bone Markers - how often?
I was able to get CTX and P1NP bone markers in November '24. I had my first Reclast infusion in early Dec '24. If my...
Last active: Apr 2 7:48am
Does Collagen Help Bone Density?
I'm considering taking collagen for my bone density along with trying to find a doctor to prescribe Evenity. My Rheumatologist won't prescribe due to black...
Last active: Apr 6 12:19pm
Fracture while on Forteo
Has anyone had a fracture while taking Forteo? I am so disappointed that I had a foot fracture after 4 months on Forteo. I am...
Last active: Nov 6, 2024
Tymlos and continuous high heat rate even after stopping
I think Tymlos messed my heart forever, I started about 14 months ago, it always increased my heart rate( 130’s to 160’s) right after but...
Last active: Nov 10, 2022
What kind of plans are possible if you are looking ahead for many year
I am reading that Evenity is for one year; forteo/Tymlos for 2 years; Reclast for 3 years; bisphosphonates for 5 years; and Prolia for ten...
Last active: Aug 3, 2023
Younger than usual with severe osteoporosis
Looking for others with severe osteoporosis at a "youngish" age, for mutual support. I am 53 with severe osteoporosis---t-scores: lumbar -3.7, and femoral neck -3.2....
Last active: Jul 6 1:06pm
Suggestions regarding low dose estrogen/progesterone for osteoarthri
I am a fit 76 year old woman coming off 3 years of Reclast. It prevented further bone loss. The rheumatologist suggested Evenity which I...
Last active: Apr 14 3:33pm
DEXA scores 2018-2025
I thought I would post my DEXA scores before and after treatments. I would say the results closely match my CTX and P1NP bone marker...
Last active: Feb 2 7:56pm
Raloxifene Question
Background: I am on Raloxifene (Evista) and like it but my Endocrinologist wants me to change to a anabolic bone building therapy (Tymlos, Forteo, Evenity)...
Last active: Apr 21, 2023
Anyone Have Exp w/T-6 Fracture & Weighted Vest?
Does anyone with a T-6 compression fracture have experience wearing a weighted vest? What type and how many lbs? Did it help? I’m 76. My...
Last active: Dec 12, 2023
Questions about my CTX and Osteocalcin test results
I just received my CTX and Osteocalcin test results. CTX is 75 Osteocalcin is 11 I tried to do a quick search regarding these results...
Last active: Sep 28, 2024
Is it common to switch from one osteoporosis drug to another?
I honestly thought most people worked with their physician to choose a drug that felt right for their circumstances, and stuck with it. I also...
Last active: Feb 5 12:23pm
Does anyone self pay for an anabolic?
I have been told by one doctor that I probably won’t qualify with my insurance company for an anabolic, without first trying something like fosomax...
Last active: Jun 15, 2024
Osteoporosis meds and mast cell activation syndrome
I have mast cell activation syndrome and my metabolic bone doctor at Hospital for Special Surgery in NYC wants me to take Evenity and Tymlos...
Last active: Jul 2 9:05pm
Anyone else being treated for Osteoporosis and Scoliosis?
Greetings: I just finished the 12 month course of Evenity without any serious problems. Other than occasional soreness at the injection sites on my arms,...
Last active: May 13, 2023
Reclast Risk of Atrial Fibrillation with Mitral Valve Regurgitation
I'm 64 and in good health except for mild (1+) mitral and (1 or 1-2+) tricuspid valve regurgitation last checked two years ago . I...
Last active: May 7 1:51pm
Tymlos or Forteo to treat osteoporosis with underlying adult HPP
Anyone have experience taking Forteo or Tymlos for osteoporosis with underlying Adult HPP? I am in a unique situation. I have adult HPP (confirmed with...
Last active: May 25 6:45am
Recently diagnosed with severe osteoporosis of lumbar spine -3.4 T sco
I just saw an endocrinologist (referred by my OB/GYN) and all of my bloodwork came out within normal ranges. Although she did not test my...
Last active: Apr 1, 2024
Choosing Our Poison
Our bodies are very complex entities. The drugs used to treat Osteoporosis can also affect other functions but that often seems to be ignored or...
Last active: Jun 29, 2024
Bone meds prior to spinal fusion
I had seen a doctor recommended by my PCP to explore injectables - spine is -1.9 and hip is -2.3, worse than scan two years...
Last active: Jan 12, 2023