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Neuropathy Support Group

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Acetyl L-Carnitine and neuropathy
A retired dr. Recommended 3 grams daily. For my heart and diabetes. Have been taking liquid form for 3 months. Have reduced my insulin units...
Last active: Aug 14, 2023
Discussion
I am curious to know other’s stories of post viral neuropathy.
I am curious to know other’s stories of post viral neuropathy. I acquired a peripheral neuropathy out of the blue after a viral illness; and,...
Support Group: Neuropathy
Last active: Mar 31 4:31pm
Discussion
Use of Glycine and Magnesium Glycinatr
I have sever e PT in my calves and feet, also my hands are beginning to get very red (palms) and numb. I am 85...
Support Group: Neuropathy
Last active: Jan 26 2:26pm
Discussion
Twitching in upper body (biceps) after axonal, length dependent diagno
Hello, recently diagnosed (Feb 20th) after EMG on left leg with axonal, length-dependent, peripheral neuropathy. Experienced numbness in both feet and twitching in thigh just...
Support Group: Neuropathy
Last active: Mar 10, 2023
Discussion
DADS-M Neuropathy with Anti-Mag Antibodies...anybody else?
After 4 years of lower limbs weakness, I was recently diagnosed with Distal Acquired Demyelinating Symmetric with the M protein and tested positive for Anti-Mag...
Support Group: Neuropathy
Last active: Mar 30 7:46am
Discussion
Doctor says I have a granuloma on catheter tip of my pain pump implant
Has anyone had success with intravenous saline dissolving granulomas ? Doctor has halted start of spinal cord stimulator trial yet again for third time as...
Support Group: Neuropathy
Last active: Apr 3, 2023
Discussion
Beware - Ciproflacacin antibiotics can cause permanent damage
In 2017, I took Cipro for just five days to treat a simple UTI. Since then, my quality of life has been steadily deteriorating. Over...
Support Group: Neuropathy
Last active: Apr 30 3:18pm
Discussion
Is there a way to test neuropathy w/o sticking needles in your veins?
I have neuropathy from Hansen’s Disease (leprosy). It was actually the first symptom for 18 months until others started manifesting in my joints which led...
Support Group: Neuropathy
Last active: Jun 16, 2023
Discussion
Severe pain in upper inner thigh
I’ve had SFN, i.e. PN in my feet for ~2.5 years, taking Oxycodone and Methadone for severe pain. Yesterday, I had an attack of severe...
Support Group: Neuropathy
Last active: Apr 1, 2022
Discussion
Has anyone used the MIKO Foot Massager and found it helped?
I'm a little worried about trying I purchased it two years ago. (MIKO MAS II) I don't know where to go for the neuropathy ..rediculopathy.....
Support Group: Neuropathy
Last active: May 10, 2025