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Discussions (643)
Autonomic and Peripherial neuropathy
I have never opened up in a forum before, and still feel uncomfortable doing this one, but I'm going to give it a try. I...
Small fiber neuropathy- unilateral facial paresthesia, carpal tunnel
Does anyone have small fiber neuropathy along with unilateral facial paresthesia, bilateral carpal tunnel, tinnitus? I have non-length dependent small fiber neuropathy from a skin...
Desperate: Is there any hope for neuropathy?
Hi everyone,In 2019 I developed neuropathy in some toes in my right foot. Stabbing, sharp, creepy crawling sensations. My podiatrist prescribed a compounded topical and...
Polyneuropathy. electric cell signaling treatment (ECST)
Hello, everyone! I have a question. Recently I was diagnosed with Polyneuropathy. This started kinda strange way-about year ago , after I was prescribed metformin...
Help asking doctor if this is small fiber neuropathy or something else
HELP please. im going to a neurologist that deals specifically with neuropathy. i had seen him in march and he took a bunch of blood...
Could AFOs help with balance?? They are helping me!
A few months ago, I happened to notice that @njed mentioned in a comment that he was using AFO (ankle foot orthotic) braces and that...
In Search of Relief
About 10 months ago I started feeling a pain in the second toe on my left foot. As time progressed my wife noticed my toe...
Neuropathy making a comeback
Hello all - I’m new to the group. I’m a 43 year old female in good health. About 2 years ago my feet started burning...
Wheelchair for axonal polyneuropathy & ME/CFS: So freeing
Hello. I’ve been disabled with ME/CFS (Chronic Fatigue Syndrome) for almost 40 years. It began suddenly when I got a severe acute case of Epstein...
Some relief from idopathic peripheral neuropathy using hyperbarics
I've had PN for about 10 years. I am not diabetic. This past summer PN had progressed from my feet to almost my knees. I...
Young adult with idiopathic sensory axonal neuropathy
Hello all, first time poster here. I'm hoping by reaching out and telling my story I might connect with others who may be going through...
My PN? What do you mean it's "progressive"?
Hello, fellow PNers! We've all had toothaches at one time or another. Do you remember what that's like? When you have a toothache, that's all...
Suspected auto-immune or immune mediated Small Fibre neuropathy
Hi everyone, I'm reaching out to see if anyone here has experienced a similar journey to mine and can offer some insight or hope. I’m...
CIDP diagnosis after severe GBS long ago, where do I start?
https://connect.mayoclinic.org/discussion/cidp-diagnosis-after-severe-gbs-long-ago-where-do-i-start/
I had a very severe case of GBS in 1973 but recovered and led a normal life including a stint in the Marines Corps. For...
Neuropathy and pain after failed pain stimulator surgery
Hello well here is my story i went to get pain stimulator put in and we'll I walked in the room surgery room and did...
Small Fiber Neuropathy and genetic testing?
Hi everyone, it was great to find this forum and all of you wonderful members on it. This is my first post.I was diagnosed with...
Finally relief from peripheral foot neuropathy! (my story)
I have had peripheral foot neuropathy for a few years. At first it was just numbness and minor tingling. Then the tingling was so bad,...
is it small fibre neuropathy? (SFN)
is it possible I don't have SFN? My diagnosis was, in my opinion, a bit iffy. No test was done , like a skin biopsy....
Illioinguinal nerve pain
Hello all, I searched through a few threads, but I wasn't quite sure if any quite matched what I wanted to post below: In 2014...
Idiopathic Small Fiber Neuropathy
I'll try to keep this as short as possible. About 2.5 years ago I (35M) woke up one morning with tingling on my left side....
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