Neuropathic Knee Pain Etc.

Posted by sunnyflower @sunnyflower, May 28, 2020

Dear Ones, Neuropathy is so strange but I was wondering if any of you have more intense sting/burn etc., in your knees than other places on your body? This doesn't minimize the same Sxs everywhere else!! This is often my experience. I haven't seen any mention of that. It's so bad that I must sit with ice gels on them a lot! I don't recall seeing the words, "sting" and "burn". I don't have the pins and needles bad enough to bother me but the stinging and burning skin everywhere, is so bad it makes me crawl out of my skin, fight for my sanity, cry, my heart beat faster and harder with irregularities constantly. Feels like I 'm being burned alive. My feet feel swollen /fat, ice cold, damp and NUMB! I have so much numbness that when in the pool I can not feel the water on my skin! I can only feel temperature and pressure. It's the oddest phenomenon ever! I have sensations that my skin is wet in places as well but when I touch it, it is dry. I also have what feels like constricting bands of continuous low voltage electricity around my upper arms. My newest symptom is that my back feels like it's leaning on a heating pad turned up high. Go figure! I could go on about many, many other paresthesias I live with. This is info only, no complaints! Many blessings, Sunnyflower

Hi @sunnyflower
I have small fiber PN, with many of the same symptoms.
I also have moderately severe knee pain. However, I have had an xray, and I know that it is caused by osteoarthritis.
However, I feel that my knee pain has dramatically increased since my diagnosis of PN. I have tried to find out if PN can exacerbate osteoarthritis, but I'm not convinced that I have found the answer.
Anybody else out there with more information?

REPLY
@jeffrapp

Hi @sunnyflower
I have small fiber PN, with many of the same symptoms.
I also have moderately severe knee pain. However, I have had an xray, and I know that it is caused by osteoarthritis.
However, I feel that my knee pain has dramatically increased since my diagnosis of PN. I have tried to find out if PN can exacerbate osteoarthritis, but I'm not convinced that I have found the answer.
Anybody else out there with more information?

Jump to this post

Hello Jeffrap, I too have osteoarthritis and severe osteoporosis (daily Prednisone); several fractures over the years. Left knee is bone on bone, ortho wants to replace but not yet. So I thought the knee pain was from that but it's skin pain not it bone pain. It really is neuropathy Sxs. I 'm glad you asked the question whether or not neuropathy can exacerbate the osteoarthritis. I hope we get some answers. My Neurologist had no comment on that. Take care, Sunnyflower

REPLY

if it's neuropathy in large fibers – nerve conduction study will show. Otherwise I would look for arthritis. Did you loose weight recently?

REPLY
@sunnyflower

Hello Jeffrap, I too have osteoarthritis and severe osteoporosis (daily Prednisone); several fractures over the years. Left knee is bone on bone, ortho wants to replace but not yet. So I thought the knee pain was from that but it's skin pain not it bone pain. It really is neuropathy Sxs. I 'm glad you asked the question whether or not neuropathy can exacerbate the osteoarthritis. I hope we get some answers. My Neurologist had no comment on that. Take care, Sunnyflower

Jump to this post

I developed severe side effects after Prednisone. hope you're aware of them

REPLY
@jeffrapp

Hi @sunnyflower
I have small fiber PN, with many of the same symptoms.
I also have moderately severe knee pain. However, I have had an xray, and I know that it is caused by osteoarthritis.
However, I feel that my knee pain has dramatically increased since my diagnosis of PN. I have tried to find out if PN can exacerbate osteoarthritis, but I'm not convinced that I have found the answer.
Anybody else out there with more information?

Jump to this post

kneecap. Have you tried physiotherapy or knee stabilization?

REPLY

@sunnyflower Your description with intense neuropathy is spot on. I wish it wasn't, because there are so many people suffering with many of the things you describe. There are many types of sensory nerves, each doing bizarre, painful things due to their dysfunction. Yes, my feet feel wet. sometimes soaked, when they are dry. Yes, I have stinging, stabbing, itching…..I am so sorry for all you are going through….Lori

REPLY

Could you have shingles perhaps? I don't know much about that disease but have heard its symptoms involve bad stinging pain.

REPLY

@sunnyflower I have both Small fiber and Large fiber neuropathy (plus a load of spine issues, but I won't bore you with those ;-)I'm completely numb from my waist down to the bottom of my feet, yet I get really intense pain in both legs, particularly around my knees. My local osteopath ordered x-rays of both knees and both hips, and those showed some osteoarthritis, but not enough to explain the intense pain at my knees. I'm heading up to Mayo in late July for a week of appointments with doctors in Pain Medicine where they will address both my issues with neuropathy and my very arthritic, scoliotic spine. Wish me luck!

REPLY

Good Luck!

REPLY
@steeldove

@sunnyflower I have both Small fiber and Large fiber neuropathy (plus a load of spine issues, but I won't bore you with those ;-)I'm completely numb from my waist down to the bottom of my feet, yet I get really intense pain in both legs, particularly around my knees. My local osteopath ordered x-rays of both knees and both hips, and those showed some osteoarthritis, but not enough to explain the intense pain at my knees. I'm heading up to Mayo in late July for a week of appointments with doctors in Pain Medicine where they will address both my issues with neuropathy and my very arthritic, scoliotic spine. Wish me luck!

Jump to this post

Hello Sunny flower, I am reading your comment in late August 2021. You indicated going to mail Clinic in late July. Did you receive any answers or comments about your neuropathy problem? I have similar problems and would be very interested in hearing what the people at Mayo Clinic told you. Thanks for your reply. Ron

REPLY
@techraw

Hello Sunny flower, I am reading your comment in late August 2021. You indicated going to mail Clinic in late July. Did you receive any answers or comments about your neuropathy problem? I have similar problems and would be very interested in hearing what the people at Mayo Clinic told you. Thanks for your reply. Ron

Jump to this post

Hello @techraw and welcome to Mayo Clinic Connect. I can see you are interested in connecting with @sunnyflower so I've used the "@mention" feature to notify her of your interest. You may use that to send a notification to another member that you want to connect as well as reply directly to a comment they've made. I hope that helps!

That said, as you wait for Sunnyflower, would you give a little bit of background on your neuropathy history?

REPLY
@amandajro

Hello @techraw and welcome to Mayo Clinic Connect. I can see you are interested in connecting with @sunnyflower so I've used the "@mention" feature to notify her of your interest. You may use that to send a notification to another member that you want to connect as well as reply directly to a comment they've made. I hope that helps!

That said, as you wait for Sunnyflower, would you give a little bit of background on your neuropathy history?

Jump to this post

Hi Amanda, I have neuropathy from my knrrdown to my feet. That section of my leg is very numb and I have no feeling in my feet. I was just wondering if there was some treatment or medication that could keep the pain relieved. I have had this problem for many years and it affects me twenty-four hours a day.

I had surgery in my right knee about 40 years ago. The doctor took out about 15% of the cartilage and my leg is now pointing towards the right below my knee and I am bone on bone on the right side of my knee joint. I have severe pain in my right knee that throbs about number 8 out of 10 along with my neuropathy. Pain meds don't help!

Any helpful suggestions? Thanks. Ron

REPLY
Please sign in or register to post a reply.
  Request Appointment