Neuroendocrine Tumors (NETs) Support Group

I was surprised this morning by an unexpected call from my surgical oncologist. I saw him mid-January and after another MRI (I had one in...

Has anyone left their Lanreotide out of the fridge overnight? What to do in case of an appliance breakdown.

Has anyone got a calcified mass from the injection? My first injection was given in the wrong place The orthopedic doctor says it is possible...

Hiya. My partner is on her fourth monthly lanreotide & just had scans. They showed significant growth in liver despite the treatment ( grade 2,...

4 yrs ago routine prostate MRI showed nets in my Ilium of small intestine, surgery 2022 to remove 2 feet of small intestine and about...

Anyone have problems with elevated blood pressure while on Lanreotide?

I had my first Lanreotide injection four days ago on Monday, but was not told of any diet restrictions. I've seen that I should eat...

My partner is grade 2, stage 4 PNET diagnosed Jan 28 2025 and post start of lanreotide (3 months) showed growth still. Starting PRRT shortly....

Lanreotide Manufacturers Approved products are manufactured by Ipsen and Cipla - does anyone have experiences when the the two products are used in ones' NET...

After 8 months on lanreotide I am getting the diet down and no longer losing weight, but my hair loss is beginning to be noticeable....