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Anyone have side effects after Lanreotide injection?

Posted by genovaldi @genovaldi, Jul 3, 2024

I have been doing injection for a year now but as of a few months ago after the injection I am feeling very sluggish, and this would happen before the injection and now it's after. I did tell my doc and now I TAKE octreotide as needed. Anyone else have this?

Interested in more discussions like this? Go to the Neuroendocrine Tumors (NETs) Support Group.

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Teresa, Volunteer Mentor | @hopeful33250 | Jun 26 9:14am
In reply to @christobelle89 "@hopeful33250 When I was first diagnosed, I had had an endoscopy in late 2016 because of..." + (show)
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@hopeful33250
When I was first diagnosed, I had had an endoscopy in late 2016 because of GERD like symptoms. My gastroenterologist recommended an EUS and when they did the biopsy they discovered I had a NET of the pancreas. When I investigated places for surgery I decided on Hopkins as I live in Virginia and it was the nearest major cancer center with a team approach for followup care after surgery. I have gotten a CT at a Hopkins facility every year and have felt fine. After the CT in late November 2025, they requested an MRI and then a PET. I had mets to the liver. I had a biopsy to determine if it was the same cancer and to decide if I was a candidate for "debulking". It was decided that because of the number mets and their being in both lobes that I was not a candidate. The cancer is the same slow growing cancer. I was started on Lanreotide in March. I have felt fine until about a month ago. I have noticed my blood pressure is exceptionally high, my joints in my hands hurt, I am very tired, and I have more dark spots on my face and those that are there have darkened. The pain in my hands is ameliorated with Tylenol but the blood pressure is scary. I am monitoring it at home and my local oncologist, my PC and my cardiologist are aware of it.

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@christobelle89

There are other members on Connect who have been given Lanreotide or Octreotide. Here is a link to a discussion that might be of interest to you:
--Octreotide or Lanreotide
https://connect.mayoclinic.org/discussion/octreotide-or-lanreotide/
Here is some information about PRRT treatment, which has been effective for many members with NETs that have metastasized to the liver and/or pancreas:

--PRRT Treatment, how does it work?
https://connect.mayoclinic.org/discussion/prrt-treatment-how-does-it-work/
--PRRT Treatment
https://connect.mayoclinic.org/discussion/prrt-treatment-2/
In these discussions about PRRT, you will meet members who have had good results, including @vinnie694, @dbamos1945, and others.

Was Lanreotide the first treatment that was suggested?

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