Neuroendocrine Tumors (NETs) Support Group

I was diagnosed with MCC and had surgery and followed with 30 treatment of radiation on the right side of my head, cheek and neck.The...

I had chromograinin A test done which was very high and 5-HIAA been waiting for results for over 2 weeks, I have a lot of...

I came across a blog this morning that was “too good as not to share”. Let me preface this with the knowledge that I was...

I've been on the fence whether to have genetic testing. My concern is how it might affect my future insurance coverage, and possibly, that of...

Hi everyone i was diagnosed w a carcinoid tumor of the appendx. It was removed 8 m again along w my rt colon. Fast forward...

We are traveling to Mayo from Indiana. My wife needs surgery to remove a carcinoid tumor from her right lung. We have an appointment for...

Hello all, I wanted to start a discussion on a finding from a CT Scan I had yesterday and hope I am in the right...

Hello All! I have had flushing for several years with alcohol, stress, emotions, heat/exercise, and some other foods. I also have cyclical diarrhea. In the...

Has anyone had experience with a Liver Transplant that has Neuroendocrine NET? My wife after chemo, surgery, PRRT, etc was suggested my our medical team...

Does anyone have long term experience with larger appendix tumors? Especially women in relation to gynecological issues? My appendix tumor was well-differentiated and slow growing...