Neuroendocrine Tumors (NETs) Support Group

After all the radiation, my oncologists recommend 30 radiations and numerous related ct scans. I wonder if these tumors having been there, one the size...

One doctor suggested that I have DIPNECH I do have small carcinoids throughout my lungs. They were discovered when an Adenocarcinoma and my top right...

I was diagnosed in April 2016 with a Typical Carcinoid Tumor in my right lower lobe, approx. 3 cms. It has remained stable, per most...

I am at the beginning of this journey and have very little answers so far. They are doing a MRI of my brain and a...

I was diagnosed with DIPNECH at National Jewish Health 3/23. Two months later, I had a lumpectomy on my breast. The pathology came back with...

Help! Mom is 82. We’re at Orlando Health. Came in 2 weeks ago for pain in uterus through ER. They thought mom had tuberculosis at...

I have written on this form before. I am 71 and was diagnosed with very slow growing neuroendocrine tumors on my lungs 8 years ago....

I had a typical Lung net removed in Nov 2025 but before I found out I had cancer I had a thyroid light up on...

Hi just a quick question I'm 9 months after surgery for typical grade1 carcinoid that has been fully removed will I need to get onto...

Hi I've been experiencing back soreness where I got surgery done 9 months ago to remove typical grade1 carcinoid they said they got it all...