Neuroendocrine Tumors (NETs) Support Group

I had my first Chromogranin A blood test in 2021. 2 months after I had the lower lobe of my left lung removed due to...

For those of you who’ve had a lung carcinoid removed, how did you decide on a particular thoracic surgeon or center? What helped you decide?...

I was diagnosed with DIPNECH at National Jewish Health 3/23. Two months later, I had a lumpectomy on my breast. The pathology came back with...

Good morning all. I have a question.How do I know if Somatostatin is in my system? Is it necessary for a PETSCAN Copper 64 show...

Does anyone know what the different colors mean or how you are placed in said group? I had a lung Tumor so they put me...

Recently I had a positive 5-HIAA urine test and a 64 CU Dotatate PET scan that lit up parts of duodenum and found a 4mm...

Help! Mom is 82. We’re at Orlando Health. Came in 2 weeks ago for pain in uterus through ER. They thought mom had tuberculosis at...

I have written on this form before. I am 71 and was diagnosed with very slow growing neuroendocrine tumors on my lungs 8 years ago....

I have had non-alcoholic cirrhosis of the liver for 7 years. I’m doing really good but after a lung biopsy last week, I have also...

I was diagnosed with DIPNECH a few days ago, following lung biopsies. I will be having a second PET scan, called Detectnet Dotatate on August...