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Neuroendocrine Tumors (NETs) Support Group

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Discussion
Questions I should ask before surgery for Lung NETs?
I’m scheduled for a zoom call with a nurse Jan 8 in preparation for robotic surgery of a 13mm typical neuroendocrine carcinoid. I prefer to...
Support Group: Lung Cancer
Last active: Jan 2, 2024
Discussion
NET (Lung + liver metastatis) Radical nephrectomy done for RCC
I would like to know if there is another one with same case as mine - 2 primary tumor. 1) NET lung 2) RCC recently...
Support Group: Kidney Cancer
Last active: Jan 9, 2023
Discussion
Recently diagnosed with a NET in my middle lobe of my right lung.
It has been a frustrating process with the dr office handling my case. Fighting to get approval for a NET Spot Scan. I’ve been having...
Last active: Aug 1 5:40pm
Discussion
A couple of questions
One, I'm curious about NETs pain. Do they themselves cause pain or only when they are pressing on or blocking other things? I have lung...
Last active: Jul 27 7:51pm
Discussion
Carcinoid NET changed to carcinoma: What's the difference?
Lungs Nets biopsy typical Neuroendocrine carcinoid tumours., in 2023. Oncologist refers to them now Neuroendocrine carcinoma tumors!!!! Does she have to biopsy them again for...
Last active: Feb 13 10:32am
Discussion
NET Lobectomy
I had a typcial stage 1 NET. I had a lobectomy. I started having chills 6 weeks post op. Antibiotics helped. I have fluid around...
Last active: Jun 19 10:26am
Discussion
Newly diagnosed High-Grade Neuroendocrine Lung Carcinoma
Just diagnosed with High-Grade Neuroendocrine Lung Carcinoma in the right lower lobe. My oncologist is recommending surgery. Anyone have a history of surgery with NETs?
Last active: Aug 2, 2023
Discussion
Procedures?
Was diagnosed with NET last year, have been getting Lanreotide injections every 28 days plus Everolimus medication everyday Dr stopped Everolimus in September because i...
Last active: Apr 9 10:27am
Discussion
Life expectancy with NETs and lifetyle as it progresses
What is my life expectancy as a result of my NET? Diagnosed 3 years ago with Grade 1, Stage 4 NETs. Primary tumor is probably...
Last active: Jun 1, 2023
Discussion
Anyone have a small pancreatic IPMN cyst that turned out to be cancer?
Have CT scans every 6 months to monitor both recurrent breast cancer and neuroendocrine lung cancer. CT showed 7 mm cyst that looks like side...
Last active: Oct 5 7:57am