Neuroendocrine Tumors (NETs) Support Group

I’m scheduled for a zoom call with a nurse Jan 8 in preparation for robotic surgery of a 13mm typical neuroendocrine carcinoid. I prefer to...

I would like to know if there is another one with same case as mine - 2 primary tumor. 1) NET lung 2) RCC recently...

It has been a frustrating process with the dr office handling my case. Fighting to get approval for a NET Spot Scan. I’ve been having...

I have been diagnosed with both NETs-Lung and DIPNECH. Do I need two teams to be involved since I have two different conditions or one...

This is my story....A lobectomy of upper right lobe of the lung in 2016 It returned in 2023 with a tumor in a lymph node...

I had a typcial stage 1 NET. I had a lobectomy. I started having chills 6 weeks post op. Antibiotics helped. I have fluid around...

Lungs Nets biopsy typical Neuroendocrine carcinoid tumours., in 2023. Oncologist refers to them now Neuroendocrine carcinoma tumors!!!! Does she have to biopsy them again for...

Just diagnosed with High-Grade Neuroendocrine Lung Carcinoma in the right lower lobe. My oncologist is recommending surgery. Anyone have a history of surgery with NETs?

Was diagnosed with NET last year, have been getting Lanreotide injections every 28 days plus Everolimus medication everyday Dr stopped Everolimus in September because i...

What is my life expectancy as a result of my NET? Diagnosed 3 years ago with Grade 1, Stage 4 NETs. Primary tumor is probably...