Neuroendocrine Tumors (NETs) Support Group

I am wondering what followup testing is done after surgery for lung carcinoids. Also is there a NET specialist in Philadelphia? thanks Faith Martin

Just diagnosed with High-Grade Neuroendocrine Lung Carcinoma in the right lower lobe. My oncologist is recommending surgery. Anyone have a history of surgery with NETs?

What is my life expectancy as a result of my NET? Diagnosed 3 years ago with Grade 1, Stage 4 NETs. Primary tumor is probably...

I was wondering if anyone has been shown their tumors on any scans? Mine are lung and lymph nodes.

I was diagnosed with NETs in 2021. My case was deemed unusual since it's only on the liver. According to my oncologist and from what...

I came across a blog this morning that was “too good as not to share”. Let me preface this with the knowledge that I was...

Good morning all. I have a question.How do I know if Somatostatin is in my system? Is it necessary for a PETSCAN Copper 64 show...

My nephew recently became the third family member to have a NET diagnosis - his a Merkel Cell carcinoma. My father's was carcinoid of the...

I was diagnosed with DIPNECH at National Jewish Health 3/23. Two months later, I had a lumpectomy on my breast. The pathology came back with...

What am I missing? I have been feeling sick for 7 months, basically life has stopped. They have done many many testings on me and...