Hello the NET community, I am a 63 yr old male with generally good health and BMI. About a year and half ago I had a CT scan for another reason but the radiologist discovered a 2cm mass in my pancreas that looked like a pNET. After further imaging studies such as Ga-68, MRI (with Eovist contrast), endoscopic US (without FNA) the diagnosis was confirmed. It is a non-functional NET in the body of the pancreas and I have no related symptoms and no visible metastasis. I went back to 2005 and retrieved some old CT scans and sure enough it was there back then and was maybe 3-4 mm smaller. I have also monitored it in the past year and a half and it’s still stable. Also, blood markers did not show anything specific or of concern. I have seen 5 GI surgeons and 4 of them strongly recommend taking it out using distal pancreatactomy. They would remove about half of the pancreas and there is a small chance that I would develop diabetes and possibly needing digestive enzymes. The last surgeon along with a couple of GI medical ecologists are comfortable with monitoring it every 6 months and so far I have agreed with them. I am wondering if anyone in the NET community has had a similar condition and what their thoughts would be.about surgery or not. Thanks much.
Liked by Teresa, Volunteer Mentor