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Public Support Group 1,626 total results
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I have continually gotten my lanreotide and have MRIs with contrast on a regular basis for...
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Hello...I am a new member here and I am scared. And was recently diagnosed with neuroendocrine...
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I have stage 4 NET pancreatitis to liver cancer. Also had trouble with sugar levels dropping...
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Thank you everyone for your support I will be getting the liver embolization tomorrow I opted...
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Carcinoid tumor of the appendix.PET scan results
Hi everyone i was diagnosed w a carcinoid tumor of the appendx. It was removed 8 m again along w my rt colon. Fast forward...
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Who has had Distal Pancreatectomy and regretted it?
I am seeking input about experiences with losing the tail of the pancreas and spleen. Has this been the right choice for you? I will...
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Interested in hearing people's experiences with PRRT
Sorry if this has been discussed before, but I was interested in hearing peoples experience with PRRT (Peptide Receptor Radionuclide Therapy)? I live in Georgia...
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Questions I should ask before surgery for Lung NETs?
I’m scheduled for a zoom call with a nurse Jan 8 in preparation for robotic surgery of a 13mm typical neuroendocrine carcinoid. I prefer to...
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Mother might have neuroendocrine tumors, is being told she has IBS
Maybe this is rant post, but my mom aged 56 has been having diarrhoea and flushing since past 7 months and I've seen three gastroenterologists,...
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Tincture of Opium for bowel issues with diarrhea
I have been able to get by day to day with my presciption for Tincture of Opium (Paragoric). This is the miracle drug, I have...
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FDG PET scan vs. 68Ga DOTATATE PET scan for neuroendocrine cancer
I would be curious to see if there are any laymen articles regarding the use of FDG PET scan vs. the Dotatate PET scan. In...
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Facing Cancer Recurrence, PTSD & Acknowledging Mental Health
https://connect.mayoclinic.org/discussion/facing-cancer-recurrence-ptsd-acknowledging-mental-health/
It's extremely difficult to face the fact of recurring cancers. After treatments we try and get away from it all and live our life. Then...
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Guide to Understanding Carcinoid Syndrome
To those in our Mayo Connect Carcinoid/NET group, @amyh2439 @tresjur @joannem @gaylejean @lucci50 @derekd @gulzar @joanney @jenchaney727@dzerfas @lorettanebraska @wordnoid @trouble and @upblueeyes @ahtaylor @heidilynn4 @junebug15....
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Plummer Project
With the implementation of the 'Plummer Project', moving all Mayo health records to the Epic system (from GE), a $1.5 billion project, I wonder what...
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