Neuroendocrine Tumors (NETs): Discussions

@nana120 So they didn’t remove your lung NET? Or had it already metastasized when first discovered?

https://connect.mayoclinic.org/comment/939523/

Discussion: Updating about My Lanreotide Injections & CT Scan

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 30, 2023

I do. I had a lung net removed In April. Best guy at Mayo is dr...

https://connect.mayoclinic.org/comment/771380/

Discussion: Anyone gone to Mayo Clinic in Rochester Minnesota for carcinoid tumors?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 9, 2022

yes they are just reference Dt. Willin and net team and their patient caregiver presentations are...

https://connect.mayoclinic.org/comment/673631/

Discussion: Feeling discouraged and too many specialists

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 21, 2022

Hello @amd12 You mentioned in your last post that you would be having another scan to...

https://connect.mayoclinic.org/comment/792439/

Discussion: Pancreatic NF-NET stable since 2005 - surgery or not?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 4, 2023

@pammy229 I appreciate the added information on your recent lung NET diagnosis. I'll invite some other...

https://connect.mayoclinic.org/comment/1198262/

Discussion: Any advice for someone recently diagnosed with NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 27, 2024

I hope you get answers soon. As someone who recently had a lung NET I know...

https://connect.mayoclinic.org/comment/1332822/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 22 2:03pm

@breck, Here is a discussion group on Connect that you might find helpful. Here you will...

https://connect.mayoclinic.org/comment/1169616/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 7, 2024

What type of NET do you have and where is it located? I have Typical Lung...

https://connect.mayoclinic.org/comment/1251272/

Discussion: Anyone have side effects after Lanreotide injection?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 5 5:27pm

Hi, I also had a 10 cm lung NET (lobectomy in 2020, no spread to nodes),...

https://connect.mayoclinic.org/comment/1392999/

Discussion: Anyone have a small pancreatic IPMN cyst that turned out to be cancer?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 13 3:41pm

Hello @sydmiller1 and welcome to the NETs support group on Mayo Connect. It appears from your...

https://connect.mayoclinic.org/comment/1333446/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 23 11:08am

@pammy229 Hello Pamela and welcome to the NETs support group on Mayo Connect. This is a...

https://connect.mayoclinic.org/comment/1198172/

Discussion: Any advice for someone recently diagnosed with NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 27, 2024

@winniew 10 cm lung NET, wow. Glad that’s out of there. Sorry about your IPMN. As...

https://connect.mayoclinic.org/comment/1393078/

Discussion: Anyone have a small pancreatic IPMN cyst that turned out to be cancer?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 13 7:14pm

Hi @amd12, welcome. You've certainly come to the right place. I can imagine that you are...

https://connect.mayoclinic.org/comment/657244/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 24, 2021

Hi ggiinnaa I am not a lung net person but I know as we get older,...

https://connect.mayoclinic.org/comment/1265572/

Discussion: Could a mass on adrenal gland be linked to my carcinoid lung tumor?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 24 9:30am

Just FYI, my NETs in my liver that is the largest tumor is metastatic from my...

https://connect.mayoclinic.org/comment/939449/

Discussion: Updating about My Lanreotide Injections & CT Scan

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 30, 2023

But what does the octreotide do to you? From what I've found when web searching, it...

https://connect.mayoclinic.org/comment/1254930/

Discussion: Typical Carcinoid Tumor in Lungs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 10 3:27pm

Hello @woundedwarrior1969 and welcome to the NETs support group on Mayo Connect. I'm pleased that your...

https://connect.mayoclinic.org/comment/911926/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 12, 2023

Ben, I read your post with interest. I was diagnosed with an inactive, "indolent" lung NET...

https://connect.mayoclinic.org/comment/782212/

Discussion: Pancreatic NF-NET stable since 2005 - surgery or not?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 7, 2022

Diagnosed 1/27/23 lung NET Bronchoscope on 1/24/23 results on 1/26/23 lymph nodes chest ok but nodule...

https://connect.mayoclinic.org/comment/803360/

Discussion: Typical Carcinoid Tumor in Lungs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 29, 2023

@mhcohan Yes, I had a 26 mm lung NET destroyed with microwave ablation 4 years ago....

https://connect.mayoclinic.org/comment/1415806/

Discussion: I have a neuroendocrine tumour in the small bowel and liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: 20 hours ago

Neuroendocrine Tumors (NETs) Support Group